tom replied to the topic After Stem Cell in the forum General 11 years, 7 months ago
Hi Charlie and Mary
No I didn't keep them away from me but to be fair Elaine (the young bride) had to clean Sam the parrots cage out for me, but I still had a wee cuddle from Charlie our Yorkie 😎
Elaine and I are not what people call domesticated to be fair might be that's why I have done so well Lol.
Am Sure its going to be fine…[Read more]
tom replied to the topic New in the forum Newcomers 11 years, 7 months ago
Hi Ann
A warm welcome to this great Forum, I see you have made yourself comfy already That's Good 😀
I wish you well in your road to remission, looks like you might be going down the road I travelled, My first defence was CTD then onto Stem Cell Transplant, I have 5 sessions of CTD then waited for a spot to have my SCT and all this was in…[Read more]
eve replied to the topic Update from hospital appointment today in the forum Treatment 11 years, 7 months ago
Hi Jean
Pleased you are feeling better,you got to see the x rays,that's more than I did,it pays to ask questions or in my case be a pain in the a——–s.keep asking as Bridget use to say,knowledge is power.
Is you husband on trials???
Take your boots off its spring,if you cannot cope emotionally ,go to see doctor ,nothing worse than…[Read more]
eve replied to the topic Update on 21/2 years in the forum General 11 years, 7 months ago
Hi Sue and Helen
Slim has been much better with sleeping since we saw are own doctor,and if Slim sleeps I sleep.
I spoke to her,she recommended paracetamol on top of Oxycodone ,which has helped,he is always reluctant to increase drugs,this is a man who never had a prescription until he was sixty and that was a drug being pushed through…[Read more]
eve replied to the topic Stem Cell transplant, given go-ahead in the forum Treatment 11 years, 7 months ago
Hi Tom
Start eating ,you can eat for as much as you like,but keep it health, 😛 🙂 😎
Then it will not matter about weight loss,you must be feeling ,it's all bee worth while,lets hope you have a very long remission .Eve
tom replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hi Sandie
Yes I am on the mend am well into this back to work Lark, honest just go out and buy the Onsite he will love it, I don't wear it too Bed Sandie its just for loling about downstairs Lol .
Ali sorry to hear about your Mum 🙁 I think the chest is now ONE of our weak spots am afraid winter or summer, Hope your Mum is soon sorted Ali…[Read more]
eve replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hi Dai and Tom
May I suggest a design problem with a onesie it concerns men and women,not so much kids as there bodies are flexible .you do need an a functional escape area,were you can quickly remove part of he garment,to attend to you normal body functions.
Love Eve
eve replied to the topic Mysteries of the heart in the forum Side-effects 11 years, 7 months ago
Hi Helen
I wish you well on your belated or should I say early birthday,I feel like that about Christmas Slim has nt been well enough to enjoy one for a few years,with that in mind why do I look forward to it !!!
We all need a little Mills and Boon,in are lives even the people who go uck!!,seriously does this heart problem worry you,or are…[Read more]
eve replied to the topic Dad's final days in the forum End of Life and Grief 11 years, 7 months ago
Hi Tanya
So glad you managed to be with your Dad,that is something no one can take away from you,be kind to yourself have no regrets,
You are a lucky lady,good husband kids and a kind mother in law,
Move on with your life and enjoy it.Eve
eve replied to the topic Update on 21/2 years in the forum General 11 years, 7 months ago
Hi Sue
I will keep trying,I do understand that even with the knowledge a PET scan brings,it will not change the outcome in Slims case,what they fail to understand,we need that knowledge !! I say this because we are busy planning are future, we are retired and intend to make the best of what ever time while Slim is reasonable fit.
I think they…[Read more]
eve replied to the topic MM and immune system in the forum General 11 years, 7 months ago
Hi Ted
It is not strange,it sounds if they are checking your Kappa Light chains,they send a blood sample off takes a while for results to come back,then I'm a few months they will do the same again,this gives them extra knowledge to see how the Myeloma is advancing,it is just another marker to manage the stage of Myeloma.
Hope that…[Read more]
tom replied to the topic After Stem Cell in the forum General 11 years, 7 months ago
Hi Charlie and Mary
Aww bless you Mary I feel you are being overwhelmed by this cleaning lark !!
Yes I had. An African Grey Parrot and trust me they are dirty dusty birds and we have a dog, we coped as you two will, it's just same as keeping a new baby's feeding bottles sterile and clean.
As for Charlie's other room well I slept in another…[Read more]
tom replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hey Babs
Thanks for that but am a lot better thanks to the Anti B's and am now back at work.
Yes I wish I could have Just the good old fashioned Cold Lol.
Get one of those Onseie's bought they are very warm and that's what I want.
Hope your Soon Better Babs
Love Tom Onwards and Upwards xxxx
tom replied to the topic dental treatment post SCT in the forum General 11 years, 7 months ago
Hi Terry
I was told same all work is Ok bar an extraction, but am sure your dentist will know this make sure he knows what you are taking and what you have had done and leave it up to him to say Ok.
Happy Filling
Tom Onwards and Upwards
tom replied to the topic Feet in the forum General 11 years, 7 months ago
Slim
I have to say you are well and truly Spoilt well done you.
And Eve am not sure if I should tell Slim or just leave him to his own Imagination Lol.
Love from one Tender and cold footed MM sufferer awaiting massage 😉
Tom xx
tom replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 7 months ago
Hi Dai
Am Sorry you have the Flu symptoms with your Zometa and no one made you aware of it, I can say that I was told what Might happen whn I was going to get my first one and was given a Sheet to take home and study with what migh or might not happen after Zometa inf.
Hope its not proper flu you have and don't know Dai.
Tom Onwards and…
tom replied to the topic Wife's life on hold? in the forum General 11 years, 7 months ago
Been their and done that Terry my old friend 😀
BUT Turned my sorry little ass round and now face it head on (not always with a smile though).
I get asked how I cope with the prospect of Dying ?? I say the same way I cope with Living, one day at a time, yes I was given "Notice" that I have a terminal illness, but that's just warning me…[Read more]
tom replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
Well well done on the good bits 😀 and am sure the bad bits will get better 😉 .
It is that Roller coaster that we all dread aint it.
As me ole Aunt used to say "Get some more Veg in ya itll mek ye better (as bloody if lolol)
Love Tom Onwards and Upwards xxx
tom replied to the topic One year on (A long year) in the forum Newcomers 11 years, 7 months ago
Hi Paul
Welcome and well done, I also am 57 but I had all mine done in 2009.
You have done well with it am pleased to read, keep it up
Tom Onwards and Upwards
eve replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.
They…[Read more]