Hi Dai

That is sound advice8-) 🙂

We have just had a problem and rang up Mac Millan . We were both amazed how much they helped us,and you know me,it takes a lot to please me. Lol

Slim rang because mu daughter and friends asked why we were not claiming VAT off are new vehicle ,truthfully I did not know we could.!!

Any way we rang…[Read more]

Hi Ozzy

Would like to know more,as when I approached the subject of Velcade again it was. not recieved very well. I just think Slim did well on Velcade,and he is starting to use options up quickly without much remission or in the case of CDT,it was in affective.

At the moment my feelings are that I am angry the way our questions were…[Read more]

Hey Peter
Well done you 😀 ( oh is it wrong to advice folk to drink??) Life as you say is Great and am sure you will soon be on the red :-).

Vickie
I think my Vodka goes ahead of me I think Lol, am pleased Colin has got his white back (don't do white) 3 glasses then sleep sound darn good to me ha ha.

Take Care you all

Tom Onwards and…[Read more]

Hi Nikki

Sorry Nikki I seem to have missed this post 🙁 and am sorry for the late reply.

Good Luck to your dad in his road to remission, I assume you looked through other post on here re do's and dont's through SCT for advice?

love Tom Onwards and upwards xx

Hi Gill

Well you are doing good and 7 months is still a very short time yet.

I have over the years lost many a friend/family, and I talk to one of those often, Ian was an old workmate of mine for many many years, he was also a drinking mate of mine for many a many a year, as was his Family.
Some time I well up when we talk about him with…[Read more]

Hi David
Hope your doing well with the treatment and this "Sun Thing" isn't too much of a bother for you.

I recall now that you had your SCT about 11 months after me.
Stay well and Fit

Vasbyte and Onwards and upwards
Tom

Hi Mohammad

My husbands Amitriptyine was increased from 5 m to 25 m.by consultant in Kings Hospital London for PN,see consultant!!!!

Also I used a coco based buttermilk cream which I massaged his feet and legs,I still do this as it helps circulation plus helps with dry skin.
Eve

Hi Gill

Two steps forward ,one step back, you are taking little steps!:-)

I cannot help you with the grief of Stephen.but grief of anyone takes time and it has to be done individually .
My daughter and I talk about Matty her son,my first grandchild all the time,some times laughing,some times tears. 16 is no age to die.

I hope you find…[Read more]

Thanks again for everyone's good wishers,

We go to see consultant next Friday,for more results,that they have known the results of for over. 2 weeks,never mind about Slim he,s just the patient!!!

At first we jumped from positive to negative ,now just preparing for more treatment ,Slim more positive,one because he has the mentality of a…[Read more]

Billy

A number of people on here,had problems with private insurance,one I can think of is Gill,her husband was at deaths door,and insurance still would not pay,I do not know if they ever recieved the insurance. Before he died.

The insurance make it hard to claim,there is only one way to go, Name and Shame to a national paper.Eve

Hi Jane

Only 31 not to bad lol, some one on here use to put Dex tablets in yoghurt might be worth a try..

Hope things go well for you Eve

Hey Peter I had a femoral line in don't do Hickman's as the get infected easy, and I am on glasses now femoral line has been removed Ha ha.

Eve now don't you go blaming the Ipad as it has a spell check with it Lol, and I know you could never run out of nerves Lol.

Love to you Both

Tom Onwards and Upwards xx

Hi Mohammad

The Consultant I mean is the one that is dealing with your Mum's Myeloma and or the nurse in his department.

I am sorry I cant add anything else Mohammad as am sure this should be left to your Mothers consultant.

Good Luck and give my regards to your Mother

Tom Onwards and Upwards

Hi Jacquie and Geoff

Well Done, I got enough for nearly two but they put them into three bags instead of two 🙁 so they used them all 😎 av none in reserve 🙁

Good Luck with it in June and go and enjoy your holidays

Tom Onwards and Upwards x

Hi David
Sorry to hear about your relapse 🙁 just remind me how long was it since you had SCT (me brain has gone??)

Good Luck with the Journey with the "Velcade" and I hope its gentle with you.

Vasbite, Onwards and Upwards Tom

Hi Peter

I was ging to say that about Tom bu ran out of nerves,he keeps an eye on my post in case I take the mick.lol
Sorry about spelling this I pad has a mind of its own, Eve

Ho Jean

I am so happy for you,they are good bloods,and I am so happy you have a first class consultant who knows there is no way a man who has had a SCT should be waiting three hours in clinic

Tell Frank if you cheese on toast is not good enough,he can make it all the time and give you a rest. love Eve

Only 3.5in one go!!! That's great.

I know you tend to want to get this over and done with,but you are wise to have that holiday . Good luck Eve

Hi Mohammad

Sorry your Mum has got MM but a warm welcome to you both.

As for PN it is a side effect am afraid I suggest she talks to her Consultant they might reduce the drug dose that she is on and the sooner the better I think.

Tom Onwards and Upwards

Hi Billy
Well done on getting that news 😀 I know how good that feels (still remember it lol)
Good Luck with your Transplant its a bit uphill sometimes but well worth it 😎

Eve I never said my buds are back I just like the "Feeling" Lol, and trust me you can take my name anywhere it will stand you in good stead :Lol hope your both doing…[Read more]