eve replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 8 months ago
Hi Daniel
You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .
Although you dad is cheerful he must be worried, this problem is not going to go…[Read more]
eve replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean
Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Helen and Garry
Your both welcome, the sickness and trots was with me for a couple of months post SCT so not too much of a problem as long as you drink plenty Garry ???????????????????????? it will work out .
Stay well not be long now ????
Tom Onwards and Upwards x
eve replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 8 months ago
Hi Daniel
Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it…[Read more]
eve replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Hi Everybody
It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Hi Dai
Good Luck with this one 😀 and am plesed the net found you albeit Late :-S , I went on Zometa in 2010 after my 100 day BMB after Sct and had them for two years.
As for the Fatigue well I have sort of starting to put mine down::
1) being less active since diagnosis
2) Just plain old getting Older :-S Lol
Dai its Ok to…[Read more]
tom replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 8 months ago
Hi John and Dai
John you have been on Zometa for a fair bit?, I was only on it for two years in 2010 after my SCT in 2009 and was told thats enough ?
Dai yes i had flu symptoms for a few of the sessions it soon went, But i also would keep an eye out for your temp as it has been a bit of a problem for you.
Hope your all Ok
Tom Onwards…[Read more]
tom replied to the topic Nottingham Patient Info Day in the forum General 11 years, 8 months ago
Hi Jet Well done and good Luck 😀 and if you need something for your slide show to make people realy Laugh go on my Face book and nick some photos of me Lol.
All The best and am sure you will do a cracking job
Love Tom Onwards and Upwards xx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Vicki and Colin
Am pleased you get a smile from my posts and that makes me Happy ????and it's just common old nuts am afraid ????
Love Tom Onwards and Upwards xx
tom replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
hey no tracking am here :::::: tom.lappin.5
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 9 months ago
Aww I cant remember if i was cold and shivery? to be fair Jean but I do remember my room being cold all the time anyways 😀
But if Elaine (the young bride) woke me up for Football I would kill her (sorry Elaine xx lol) am sure you can tell I dont do footy 😛
Its started now Jean one day at a time dont worry too much just both Relax and let…[Read more]
tom replied to the topic Mum developed Sepsis after just two courses of chemo! in the forum General 11 years, 9 months ago
Hi Sandie
Sorry your Mum is going through a rough time, I cant help on this one am afraid just wanted to send My Good Vibes.
Love Tom Onwards and upwards xx
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Eve
Yes you are correct and am sure you know i have heard the word NO many a time Lol
Yes and Pension people do give you more if you are ill and let them know.
6 til 2 is what i have done all my working life and prefer that shift more than the others 🙂
I will give it another think about it.
Many Thanks for all your Input's its been…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 9 months ago
Hi Dai
Baby steps is good if its working no need to rush it and cause more side effects?
As for you feeling Weak and Weary well I will be same on thursday but am putting it down to cold weather 🙁 roll on Spring 😎
Stay Steady
Love to you and janet
Tom Onwards and Upwards xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 9 months ago
Hi Helen and Garry
I was told that I should not have my dog and My Parrot (African Grey) and that was so as not to get in contact with the Poo from either 🙁 so Elaine took over cleaning Sam's Cage but in the end we gave him away to a lovely lady who says we can go and visit anytime we want (Both are well happy) still got dog cos Poo is…[Read more]
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 9 months ago
Hi Jean and Frank
Hope (am sure it will) SCT goes in nice and smooth 😀 dont forget when you see frank to mouthwash as much as he can.
Frank you will soon be dabbing with the soft loo rolls.
I was out on Day 16 go and beat that one Frank 🙂
Tom Onwards and Upwards x
tom replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
Now Girls dont pick on the simple ones leave tom alone lol 😀
Eve My Friend you have a great sense of humour it brightens my bad days up to bloomin good uns 😀 and i am same see it say it I cant bite my tongue as it makes it bleed lol.
Jane trust me girl i have been called worse (aint i Eve Lol xx) its good to chat and for our sins Eve and…[Read more]
eve replied to the topic Breaking the law in the forum General 11 years, 9 months ago
Hi Trish
The program was Saints and Scrounges I tend to have the TV on rather than the radio as I am deaf so need subtitles,I was not paying a great deal of attention I do not know what the lady claimed but she was showing dogs and they filmed her,she had said she could not walk more than 50 yards without pain,and her answer was she had dosed…[Read more]
eve replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
Hi Tom
I just say it as I see it,and people should not ask questions if they do not want answers. I think coming from Liverpool is the reason people seem to be more blunt and take bad news and turn it into a lighter thing,it helps people to talk to you about it.
I do find my sense of humour does get me in to trouble down south,as I have aged,I…[Read more]
eve replied to the topic Breaking the law in the forum General 11 years, 9 months ago
Hi Babs
Slim had a letter ages ago just a general letter from pensions office,he gets attendance allowance ,right in the middle of the letter it actually says you must inform them if you have a SCT or any other change. I am glad I looked through mail,what I do is quickly look at things,keep them,then when I have a pile if I am going to keep…[Read more]