tom replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hi David
Sorry to read you got confirmation that the damn MM is on the move 🙁 Hope your MRI goes well.
Vasbyte and of Course Onwards and Upward
Tom x
tom replied to the topic Platelets will not rise in the forum Treatment 11 years, 9 months ago
Hi Keith
That I did (sorry consultant) yes i thought you were left and not getting the info. (am a silly billy) 😀
Hope your PP's are soon sorted
Tom Onwards and upwards x
tom replied to the topic Ian in rehab in the forum General 11 years, 9 months ago
Hi Maureen and Ian
Aww I bet you miss him, lets hope its just for a short stay and Physio soon get Ian as near up and running as they can.
Take Care and Give Ian My Regards and tell him we are rooting for him and of course you.
Love Tom Onwards and upwards xxxx
eve replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hi David
Velcade is good although you have to go to hospital a lot more,Slim had less side effects,we did the hospital bit twice in one day two times a week,blood in the morning infusion afternoon,tablets once a month,you look forward to the week you do not take anything.
Lets hope MRI scan is clear,it's the damage it causes,I think is more…[Read more]
eve replied to the topic Michael in the forum End of Life and Grief 11 years, 9 months ago
Hi Sue
I hope you are feeling at peace with yourself and when you go to bed have a good nights sleep,you did your best for Michael,no one can ask more.
My best wishes to you and your girls,I am sure Michael was very proud of you all.Love Eve
tom replied to the topic Michael in the forum End of Life and Grief 11 years, 9 months ago
My Dear Sue
I am so sorry for your loss as your loss is now our loss.
Please Take Strenth on the Good Times and push this Myeloma to the back of your mind.
Although its very sad when Michael passed away he is in no pain now and I hope you all feel better with Michael passing away at home.
I wish I lived near you Sue as am sure you need…[Read more]
tom replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi Jean and frank
Good Luck with it all
It will be worth it in the end the results far way out the bad bits, let Frank determine how his body feels each day and go with the flow.
Love and hugs to you both xxx
Onwards and upwards xxx
tom replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
went in wrong place so here it is again Lol
Tom
RE: Got call at las
20-02-2013 at 9:16 PM
Jean sent you a PM xxx
tom replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Jean sent you a PM 🙂 xxx
eve replied to the topic A hip operation during CTD? in the forum Treatment 11 years, 9 months ago
Hi Marina
Sorry you are in this situation ,but it will help you with future dealings if you end up in A&E again.
I can tell you during the fourth cycle of CDT my husband was admitted to ITU and was in hospital for 23 days they stopped the chemo ,said that came secondary to Pnuemonia ,all together he was 6weeks no treatment ,then went back…[Read more]
tom replied to the topic Platelets will not rise in the forum Treatment 11 years, 9 months ago
Hi Keith
If one thing My Friend you are a fighter keep it going Keith and as for the Dr at your hospital not being contactable ?? well I must be very fortunate as I can get hold of my Dr at hospital and if he is busy he phoned me back.
Stay strong Keith and hope you have a better time with it as I know you deserve it.
Fingers crossed Tom…[Read more]
tom replied to the topic Chemo brain, chemo fog in the forum Side-effects 11 years, 9 months ago
Hi Lorry
Well let me tell you I was told I had "Chemo Brain" after my SCT ?? asked the Q's when i had your problem :-/ and was told Chemo Brain :-0 now I had my SCT in December 2009 am now drug free and in remission or platued whatever??: Age 57 (born 1955) I was told it will recover ?? am still waiting Lol 😛 :-S
Hope your soon…[Read more]
eve replied to the topic Chemo brain, chemo fog in the forum Side-effects 11 years, 9 months ago
Hi Lorry
You do not say how old you are!!!
Slim has a chemo head,it has taken him along time to get back doing crosswords,which he use to be very good at,I did speak to a trial nurse,who said in a polite way he may never get back to the person he was,one year on I would agree.
No one would pick up on it as it is just the odd thing for…[Read more]
tom replied to the topic A hip operation during CTD? in the forum Treatment 11 years, 9 months ago
Hi Marina
Sorry you had to join after your Husband diagnosis with MM you have come to the correct place.
I am sorry you two have had a bit of a rough time with it of late and sorry I cant help you this time but am sure some one will pop along and give you the Good advice you need.
Tom Onwards and upwards x
tom replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Hey Rock and Roll Hey Rock and Roll 😀
Hey Vicki and Colin
A Well Done a very Well Done, you dont need me to tell you how good it feels now do you 😀
Now I will have a Drink of beer for you both tonight, Great news well done you two.
From one Onwards and upwards to another Onwards and Upwards xxxx
Am well chuffed 🙂 x
eve replied to the topic Platelets will not rise in the forum Treatment 11 years, 9 months ago
Hi Keith
Just picked up on your posting,if it is any help I know the can get platelets which are more comparable with you,plus injections that help,but I do no know what they are!!!!
You can always tell when the news is not good the nurses keep looking at there shoes just in case there not shiny enough,and doctors avoid the eye…[Read more]
eve replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Vicky and Colin
This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve
eve replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki
So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]
tom replied to the topic So Alone 2 in the forum End of Life and Grief 11 years, 9 months ago
Dear Sue
How I feel for you all at this difficult time, I send you all a Cyber hug and i hope that helps, its no good me saying you must rest as you need to keep your strenth up as am sure you cant sleep.
Will you do it again I say yes as though we have not met I know you are a very strong lady, stay strong throu out this difficult…[Read more]
eve replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi Jean
All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.
Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]