Hi Grayham

Yes it is very scary,I think we all felt like that even careers,specially when they tell you there is no cure.we have all been there got over the shock asked the same questions ,my husband was like you,never took a pill or had a headache,well he has made up for it in the last 2years,our home has seemed like a chemist at times.

It…[Read more]

Hi Graham

A warm welcome to the Site, sit down make yourself comfy and ask away.

Me ? am 57 had CDT then stem cell transplant in 2009 now drug free and doing great.

Keep well Graham

Tom Onwards and Upwards
Al av a look at your photos too 🙂

Hi Lisa And Mick

Sorry you got an Infection Mick, its part of the side effects am afraid, I take it you taking in plenty of fluids?

Hope your soon better and Back Home

Tom Onwards and upwards x

Hi Tom and Helen

I have always thought that soft tissue myeloma is very very rare ,there have been a few people on here with it usually discovered because of another reason,not looking for Myeloma.
Tom are you saying you have no Myeloma showing in bloods or urine?????
So are you looking for answers????
A Pet scan will show any Myeloma in…[Read more]

Thank you helen for doing a better job of explaining it than me,although I understand why Tom is thinking along these lines,I just felt it would give the wrong impression to any one who read it.

I would like to say,Slim has a lot of damage,tumour plus lesions on shoulders and skull plus all spine damaged but no compression ,plus Pnuemonia…[Read more]

Hi John
Your welcome, Well SCT and back to work so soon and living on your own WoW now to be honest that must be blooomin hard work, Gosh I dont know how I/we managed without the young bride and our Family and Friends to look after me.

To be fair John I dont think of it much I am Lucky enough to just have my CDT then SCT and now drug free, am…[Read more]

Hey Keith

I feel for you M8, it must be hard, it wont be long before you think all the hospital visits are Normal, Stick with it Keith am sure they will soon have you sorted out, then you can have that long awaited Break.

Good Luck Keith am crossing everything for you

Tom "Onwards and upwards"

Hi Keith

You must be so disappointed ,but they are prepared to still top you up with bloods and platelets,so that must count for something,When do you see the top man again???
They are trying to give you the best chance of this working,if they are prepared to do it,you have to go with the flow.
Anyway who wants to go on holiday with all this…[Read more]

Hi |Tom
The school of thoughts with consultants is you should not,look at staging as the one and only aspect of myeloma ,as far as I know,staging tells you not only about bloods and urine,but the extent it has damaged the bones.
Everyone is aware the early cancer is caught the better the chance of curing it,but Myeloma is not curable.

Once…[Read more]

Hi Liz and Kev

Pleased the infection is sorted and that the R/T is helping the ribs, I have my fingers crossed for a good three weeks.

Vicky did you two get to the BMB through the snow? I hope it was pan free as the are a bugger to be fair.

Love all round

Tom Onwards and Upwards xxx

Hi John

A warm welcome to the site.

And WoW back at work so soon?? am surprised the Dr let you go back???
But hey Ho we all do it in differant ways, Just stay well and stay strong

Tom Onwards and upwards

Hi Tom

Well Good Luck with this lot M8 and am sure you can and will crack it.
lets hope side effects are kind to you.
Tom Onwards and upwards

Hi all

Well I am sorry you two have relapsed 🙁
I do hope the next move gives you both remision and little side effects.
Stay strong and well.

Love to you Both
Tom Onwards and Upwards x

23-01-2013 at 11:35 AM

Iam not sure if I am posting this message in the right place, but just wanted to finalise Glenn's postings. I know that he has not been on here for some time to post messages but has certainly kept up to date with information and blogs. Sadly Glenns fight ended on Monday 21/1 at 5.15 p.m. We had been told that he had an…[Read more]

Hi Jenny

Yes its a lonely road this MM lark,do you have a support group near you?? as am sure that will get you out and about and chat to other MM'ers ? failing that start up your own 😀

I used to go and pick mine (meds) up at the hospital and its correct you dont have time to Chat to folk, was a lot better when I went for my 4 weekly…[Read more]

Yep I was same Ozzy, and am told it wasn't Sexy lol.

Regards Tom

Hi Wendy and Ozzy

Sorry to hear you have both relasped there is not much one can say you must both be devastated,I can tell you Velcade is a good drug and seems to be having a good effect on the Myeloma,Slim got on better with the Velcade than CDT,he had 6 cycles straight after CDT,because they found the myeloma had gone up to 80% in bone…[Read more]

Hi Lisa and Mick

Sorry you had to join, but pull up that comfy chair and ask away, I had CDT in 2009 leading up to SCT Dec 09 and am now Drug Free, dont worry too much about not getting a SCT as we have people on here that cant do a SCT and are doing great without it 😎

Am afraid the chest thing is something we have all had to get used to,…[Read more]

Hi Tina
Sorry you have A rash, I had a rash during my CDT but I have had a skin problem for years it just kicked in worse during treatment.

Good luck and hope the rash soon calms down.
Love Tom Onwards and Upwards xxx

Hi Susan
Yes I was on Thal, I got through it pretty well to be honest, yes I went on sick for a year had all it done in 09 and am now Pleased to say drug free and still in remission, my ext visit will be 14 Feb,

Keep well and hope it all works well with little or no side effects
Love Tom Onwards and Upwards xxxx