Hi TontF, I have just seen Dr Barton ( for the first time), I said hello from you, she said hello back to you! 🙂 She mentioned there may be a myeloma group starting back up.
My blood count is all within range, kidney function okay, calcium back up( it was borderline), just waiting for my paraprotien. I am in day ward waiting for zometta (45…[Read more]

Many thanks David

Regards

karen
xx

Thanks Tony,

I will say hi if I see her, never seem to get the same consultant twice in a row nowadays. Although I heard from Dr Garg recently, (emails) regarding holidays. She gave thumbs up as I am in remission! ;-).

Regards
Karen H
x

Dear Helen

What’s ironing lol!!!

Hi Helen

Dog is fine just an old man the vet said,not to feed him on are rich food,but he does like smoked salmon and scrambled egg plus bacon butties.
Legs collapse every now and then,will not leave house when Slim is very ill,would not go out yesterday,but today went to beach be it all 15 minutes.

Gammon steak in a cheese sauce tonight!!!!. Lol.

Thank you,for all your thoughts.

I very seldom leave Slim now,he has to be good before I think of going even to get a paper,today the district nurse came to change his driver and 2 carers came so I popped out with the dog,he knows he has to do a super fast pooh. Lol.

I have agreed to a hospice nurse for tonight!?, coming at 10 pm going at…[Read more]

Hi all

As I am on thought I would let you know what is going on in are lives,hope it’s not to frightening but it does not seem like this to me.

Slim is on palliative care,plus we have two carers coming in 4 times a day,plus district nurse to do driver,I have back up medican and I often have to call the district nurses out any time,they work 24…[Read more]

Tom

It’s all that gallivanting and beer drinking lol!!!?

Go for it Tom,make the most of the time ,this is what every one should be doing,a bit of a rest will do you some good. Love Eve.

G&T for me please.

Hi David and all you others.

Yep am still here lol, and I wasnt an SCN ha ha.

Hope your doing good David as we are at this sunny end 🙂 yes as Jean says bloods taken last Friday and results today:-)

Bit of an update on me seen as am on the forum.

Myeloma came back December last year (i got four years remission from SCT #1) was put on Velcade…[Read more]

Hi Dick

I know,I can always remember thinking,I wish I had known that at first,we try to cram all this information in and it is hard,Slims consultant was very good at answering my questions with ” don,t worry about that” hindsight is a wonderful thing! And the best place to come for knowledge is here on this site,there is always someone in front…[Read more]

Hi Bryn and all the other new comers that have joined this post.

We all approach the news of Myeloma differently ,we were just glad we new what it was!!!!
Then you get all these books and you are having to make choices about things you do not know anything about,you spend time reading a book,but it’s hard to understand at first.

As Dick says…[Read more]

Hi David

Yes someone is trying to kill you!?, your body!

When it gets to this stage do you find it’s just something else to add to the list????
Slims was a SNCO Richard so that explains every thing,cannot see him repenting he is to stubborn!!!!

His own doctor came to see him yesterday as his dosage in his driver is very high,plus backup…[Read more]

Hi again Tony, I am on the trial too, and go up to the Hope clinic, I agree it is much better, and seem to get seen to much quicker! One day we may bump into each other again. I know what you mean about getting tired. Keep well.

Karen x

Please pass on my condolences to her husband and sons.

I would like him to know that although Eva had not been posting for some time,I always had her in my thoughts,the last time I heard from her was when she was in London having treatment that would go on to her second SCT,staying at a B&B,that takes some courage to be alone in London waiting on…[Read more]

Loopyladye

Hi I do not usually reply without knowing some back ground,as this site is open,!!!

You are obviously going through a very hard time,and had to cope with a lot in a very short stretch of time,this can be very hard as it does take time to get your head in the correct frame of mind,everyone is going to tell you,you must look after…[Read more]

ps, sorry I typed in the tag box, hope I have no mucked up your thread! K x

Hi Tony, I am 19 months post SCT, I had my last baby injections at begining of July, and I am on 3 monthly clinic visits, mine is 14th August. So we are pretty much the same stage. I still have morphine for back, and 6 weekly Zometta. But I drove for the first time since diagnosis the other day! There are more positives than negatives post SCT…[Read more]

Hi David

Love ing it,grandfather in the nick. Lol

I could not dream of going in to my cupboard,would find I am associated with IRA Slim says I have the face and back ground lol.

Live is for living and you are making a good job of it!!!,so that’s what is important.

Best Wishers wishing Dai was around to correct everything,in a nice way!!!? Eve

Oh my that’s awful!!!

I agree my daughter in NZ sold here house 10 percent deposit,done and dusted !!

My youngest daughter has had the chain broken 4 times,moving anyway! Does need up heavily .

Sorry for taking over post Judy,you will find in time you will make cyber friends,!!!?,Eve