Hi Sue

The posts above are correct.
A Hospice is one of the best places to go to have the pain sorted out faster than a GP or Hospital can do it.

I have talked to my young bride Elaine and said that I dont want her to have to care for me 24/7 am not fussed about going into a hospice for her to get a break and for Last stages I dont want to…[Read more]

Hi Chris

Good Luck in your new treatment I hope its fast and puts you and keeps you in remission for many a year 😀

Re the hiccups ? well My steward at our local drinking hostelry gets rid of everybody's and she has never failed.

get a glass of water (we do it with beer lol) fill your mouth DONT SWALLOW YET, put your fingers in your…[Read more]

Hi. Chris

Just read you. Post with great interest,my husband is not in your position concerning SCT second time round so unable to comment,just storing info for future ,as we all know MM will find you.

I can say I think Velcade is a not as harsh as CTD,but y ou do spend more time at the hospital ,I would like to see Velcade given as a…[Read more]

Hi Sue
I just cannot believe this is happening to you.i do not think it is different we're every you live.

You should have a package sought end by now it can be different depending on your needs.were is you local surgery,in this get in touch with the district nurse,she should be able to sit down with both of you,and decide what you…[Read more]

Hi Sal
Your welcome, sorry to hear Dad had two heart attacks, am sure they will find treatment that will work with your Dads heart problem.many have said that RT helps ease the pain.

Tom Onwards and Upwards xx

Hi Trish

Your welcome and you need two more to catch up with my young bride and I. Who have six from age 9 years down to Sophie who is nearly 8 months young.

Love Granddad Tom

Hi Charlie

Am sure it will be a none impact one, I do walking and A bit of leisure cycling, but not too much am afraid so am not the best to advise, am sure Some one might have been told what's best I would love to know myself .

Tom Onwards and Upwards .

Hi Sue

I would agree with |Tin,I know you feel how an earth are you going to cope,but you will find that inner strength.

I have 2 friends who have both lost there husbands last year,one to Myeloma and one to lung Cancer,both stayed at home and both had different deaths.
Both the wives coped and have no regrets,I wish I could say I was there…[Read more]

Hi Trish

Yes it is wonderful that first holiday,after SCT,as you say you just could not believe this would be possible after Myeloma,so just go out there and grab a slice of life.

we are just back from NZ,blood test Zometa then consultant,and with a little bit of luck off to France in our motor home,then home for 1 st march as my daughter…[Read more]

Hi Eve
Yes thats correct you cant smell it lol. ye reflection is hard even for us in remission? but hey ho.

The site is great for old and new members as out treatment changes as some one will have been through it before.

Pleased you like the Onesie my youngest Son bought it for me as a christmas Pressie 😀 and yes he likes a laugh 8-)…[Read more]

Hi Peter and Trish

Great to read you all had a great time I bet it was worth that long flight 😎 and trust me May will be here before you know it enjoy the twins.

Love Tom "Onwards and Upwards" xxx

Hi Sal

Am sorry your Dad has been Diagnosed with MM. your Dad has done well getting it found out as soon as he did.

What Hospital is your Dad getting his treatment from (some on here might be in same hospital)
What treatment is your Dad on or going on?

Good Luck to your Dad in his treatment and stay strong for your Mum also.

Love…[Read more]

Sue

You are correct this site is a godsend for us all, Patient and Carer.

The One I would advice anyone to phone would be 999 they would be my first call.

Honest Sue please ask anything you feel you need to know more about I know it wont be easy for you but am sure if you feel its important then it is.

Stay Strong

Love and Hugs Tom xxxx

Hello Dai

It is nice to hear you are doing well,with this new treatment,I just want to wish you well and to let you know although Slim has moved to remission,you are never very far away from our thoughts,I know the last few months have been hard for you, I wish you a good 2013with not many hiccups. Love Eve and Slim

Hi Tom,

With baited breath and anticipation,now I know why you drink vodka,you cannot smell it,( only joking ),it is the reflection time that hurts,that,s why it is so nice that Tina can reflect and enjoy the memory.

This is what is good about this site,people understand what you are going through plus the feelings which do come to the…[Read more]

Hi Megan and Phil
Still doing good as far as i can see 😀 , RE the hair thing well I got the Nurse to shave it in Hospital and when I came home I used my Leccie Razor and took it to the bone :-S and kept it like that till it started to grow back, and it was bloomin cold but a good hat sorted that out.

Megan you do right in resting as you…[Read more]

Hi Eve
And a Happy New Year to you and Slim 😀

I know what you mean when you say you look back each new year, I also do that but I also look forward with baited breath and anticipation 😎 but yet again I still worry during every new pain cough/cold and or ache its normal (or so am told) I also try and shove the MM to the back of my brain…[Read more]

Hi Tina and Tom,
Happy New year to you both,this New Year seemed very strange to me,as We were going backwards in time on our journey home from NZ,and a;ways at new year your mind goes back to the last year,and you cannot help but ponder and reflect about the good and bad of the year,and wonder what the future year will hold.

the year 2011…[Read more]

Hi Suzy

I had an itchy rash after my SCT but it soon settled, I have had exma for many a year in the winter months and as I had SCT in December I was on top of it straight away.
Hope hubby is soon sorted.

Love Tom Onwards and Upwards xxx

Hi sue
Am pleased Xmas was ok for you, this time of year is difficult for us all and I send you hugs during those dark moments (( hugs )) am not sure why you were both told how long?? As it doesn't sound like it has helped.
Stay strong.

Love Tom xx