Hi Karen

I was on CTD had five cycles of it leading up to SCT in dec 2009.
When I was on CTD I had the cough(still got the bugger lol) and as for the wishy washy brain I was told its "Chemo Brain" and it will come back???? but I think I got Chemo brain then straight into Old age lol

Few of us on here have F/B think am here…[Read more]

Hi Jill and Mum
I hope the new treatment for your Mum works, I am not sure why they stop treatment ? when its known to cause problems??

Good Luck to you and your Mum in the road to remission.

Love Tom "Onwards and Upwards" xxxx

Hi Jean and Frank

Well I was on CTD and I was taking "Granisetron" twice a day evry seven days, I cant recall feeling Sick while going through MY CTD but was felt it after SCT and did for over a month so get the anti sick tabs for Yourself Frank when you get sent home.

I would check for a sickness bug ? lot of it going around, so get well…[Read more]

Morning Keith

I also hope the Bendamustine works for you with little or no side effects (as if :-S ) lets hope it kicks its butt and give you a long long remission.

Tom "Onwards and upwards" xx

Hi Liz and Kev

Am sorry to read you both are having a bad time with the Bloomin MM 🙁

And hey Liz a tear here and their is good for you trust me been done tee shirted an all, am sure it will only be a matter of time before they get a comination that will work.

Stay strong you two its the best way hard at times i know like all of us here…[Read more]

Morning Chris and Lena

Yes the ward was a comfort as much as we wanted to get out and home 😀 a strange strange feeling :-S but when home for that day and a bit it all falls into place.

I was like you Chris 5 (ish) days when I was a bit too bad not wanting the young bride (Elaine) to visit as I spent most of it asleep, the nurses used to…[Read more]

Hi Chris

Well a warm welcome home and long may it continue 😀

As for me I was a wee bit scared when I was at home at the start ie not having a proper nurse on call and if it will keep n keeping better it worked and still is so you my Friend enjoy that Cuddle its a good healer 😉

Love to you both
Tom "Onwards and upwards" xx

Hi Karen

And a warm welcome to you, you have had some great advise from the group and I hope it has helped?

As you have read some peopls have placed the MM rthingie in box's shoved it in a cupoard under the stairs I have placed mine on my left shoulder in a imaginery brick box (with Lid 😉 ) and leave it alone(as best i can) for as long…[Read more]

Wendy Lovely Post very moving, I aslo am sad that we lose so many in a year and wonder why I am still here and in comparative good health.
Many Thanks for the Link, stray well and strong

Love Tom "Onwards and upwards" xxx

Well Done Ali's Mum 😀 Thats great news Ali, and yes its a hard year or tow to getting back to near normal but as your Mum health and strenth improves thats when you will say "Well that was worth it" and I hope thats not too far away now 😎

The "Onwards and Upwards" is not mine to give 🙁 but its certanly yours and your Mums to take 8-)…[Read more]

Hi Dai

Awake like you,had my tea and toast,Good night .Eve

Hi Mari

I thought I had problems,by gum,you beat mine,one of my mantra,s is there is always some one worst off than you, I am feel better already(joke);-)

We know the body copes with what ever it has too,it,s when every thing has passed,Myeloma has been put in its box,I have put a padlock on the box and thrown away the key.another learning…[Read more]

Hi Helen
I have seen this coming and should know better,the only way I can explain it,is every part of my body has for gotten how to relax.Any way a few more days tying loose ends up.We fly next Sunday evening,Slim as usual is taking it in his stride,
In past years when travelling in the Motor Home,all christmas shopping was done in the summer…[Read more]

Good Morning Vicki and Colin

Yes It Looks like you are on the HOMEWARD BOUND Colin 😎
Its Good to Blubb its a release and it works :-D, am sure the pains will soon be sorted.

Love Tom "Onwards and Upwards" xxx

Ps am on here at this time of the morning because the three grandkids we are looking after are Up and At em Lol.

Hi Chris

Sounds if you are doing wonderful,a glass of beer!!!!!!!!!!:-P Slim cannot even look at beer,every now and then he has a sip of my wine,and pulls a face.I am saving thousands of pounds;-)

Please look after yourself this period is so easy to mess up,Love Eve

Hi Deirdre

I will not say I know why you are so confused,its either something that has gone drastically wrong or lack of knowledge about mm,and some were along the line you have extra complications.

Even if your husband had smouldering Myeloma,some one should have been keeping watch on his bloods,from your answer" only having Zometa"Well it…[Read more]

Hi Dai and David
I think I upped the stress limit with this trip to NZ,getting everything ready doing all the organisation,plus producing Christmas presents for the people we leave behind,specially the grand children.Have not seen one of my Kiwi grand children for 3 years,so this trip is a must.I also feel it has to be now rather than later,I do…[Read more]

Hi Jet

Nice to hear from you,must have been heavy going with back to back SCT,they do say it is the best thing to a cure.Have not heard about vaccination for shingles,but do know if you catch it early,have less side effects.
I believe you have to have all your childhood injections again with donor transplant:-S Helen got whooping cough,seems…[Read more]

Hi Chris and Lena
Well I hope you are waiting for your drugs now and ready packed. Dont forget to get some Anti Sick Tabs as I needed them for a month or two after SCT :-/
Take care when you get home now is when the healing starts stay away from infections and you might (i did) need some sleapy pills also.

Vickie and Colin
It wont be long…[Read more]

Hi Stuart and Vanessa

A Warm welcome to the site.

I am Tom had CDT and SCT in Decenber 09 am now in remission and Drug free am pleased to say.
Good Luck on your road to remission as its a hard one some days but stick with it and stay strong you will soon be my side of it and it feels great 😎

Ask away and this is the place to vent out…[Read more]