HI Eric
Hello and welcome.You must be wondering why you have not had any reply,s???

Well if i may explain,because you went into an old thread,although it shows a posting it has come on screen in the middle of an old posting.The best thing to do is ,log in go to the first section,which you did,then scroll down to start discussion ,then you can…[Read more]

Hi Sue
May be the answers lie in what you did not hear!!!!!

When Slim was being taken to ITU a doctor in front of me said to him,you are being taken to ITU "I cannot promise you,you won,t die",he did nor ask and he cannot remember:-P.

Sue you need to speak to someone may be a consultant or your own doctor,you need to ask for a second…[Read more]

Hi Vicki & Colin

Its Good Colin is out of bed for a time even if he is asleep in chair, I bet he is a great Host before and will be again after SCT
Dai is correct but as for me I went out amongst it all club and walks (short ones)

Hope your counts are good Tomorrow Colin and get you off home where the hard work starts 🙂

Love Tom…[Read more]

Hi Phil

This disease has no normality,so one persons story,has no baring on your,s,my husbands neuts and platelets took a long time to become stable.The thing they look for is,although the neuts dip,they look for a little gain each time,my husbands went down to o.3 when he was taken back in,he is now 6 months on and plates are 84 should be…[Read more]

Hi Kerry and Melvin

Sorry it was another Hospital Dash but am pleased That you are now back Home Melvin, this MM is a bloody hatefull thing, but you are both fighting it with all the strenth you can muster keep that strenth going you two.

Love Tom "Onwards and Upwards" xx

Hi Vicki and colin

Well Colin you are soon on the move and sleep is good for you I slept for about 5 days when i had my SCT some times didn't know the young Bride was with me (wot sort of a host was i lol) as for the eating I didn't just water for me I used to order sandwhich for tea and choos it for Elaine so i didn't eat it.

Sleep well…[Read more]

Hi Tina
That long and hard ride you are having will soon be a distant memory for you (mine is nearly lol)
Think if i am correct I was about two months post SCT before I woke up and turned that Corner to being Fixed and that I knew I just felt "Fixed" 😎

Keep Well Tina and it wont be long now before you are "Up and At Em"

Love Tom…[Read more]

Hi you all

Not be long before you are at home Chris 😀 then you can start to get better faster, just keep away from those bugs and you will still need to sleep a lot and if you are like me still keep the bathroom door open Lol.
I was also stil taking the Anti Sick Tabs for a few weeks after getting home so ask for them before you…[Read more]

Hi Helen

Well I stopped smoking in November 2009 just prior to SCT and my cough/chest has never been as bad 🙁 I have always had a iccle tiny cough when I smoked as my Young Bride (Elaine) called it an attention cough Lol, but that iccle cough has grown up and been a bother for a few years now its just weaker :-S

Had me flu Jab…[Read more]

Hi Sue and Michael

I am Pleased you are Home Michael as am sure its best place for rest and comfort, sorry you had a panic attack michael it must have been scarey ?

Sue I have three Handsome Sons but all soreted now but am sure that Pretty Daughter of yours will be sorted when she is ready, aint no rush these days is there?

You both kep…[Read more]

Hi Sue
If it is any help Sue,Slim had panic attacks when in ITU,and of course I was not there,and I was there 20hrs out of 24.made me feel awful,but he did say to me they were bad dreams,and we did talk about them after he came home.

So glad to hear he is coming home,make time just for you and Michael,you will need all your strength in the…[Read more]

Hi Emma
Glad to hear your mum is feeling better,there is so much to learn when starting treatment,so it is a big learning curve.:-)

When your mum starts treatment everything will be explained,about tablets when to take them and the best times,there are a lot of tablets so go out and buy a pill box,and make a chart makes life easier.

Kidneys…[Read more]

Hi Debbie and Les

And I dont know your Mum and dad but I wish I was going with them also Lol.
A m sure your Dad (Les) will be lucky with his treatment and I for one hope the road to remission is a smooth one.

Tom "Onwards and Upwards" xx

Hi Lizzy and mom

Its not a problem and am pleased to read Mum is getting better today and Hope it gets better and last longer 🙂

Love Tom "Onwards and Upwards" xx

Hi Keith

I have strong gums and teeth 😀 but i was told during treatment to use a soft brush, and i always use mouth wash every time i go to the loo its hand wash and mouth wash, I dont floss that often and my dentist tells me to but :-S

if in doubt phone hospital 😀

Tom "Onwards and Upwards"

Hi Lizzy

A Warm Welcome to the site to you an your Mum.

My Run was straight foreward so Cant add nor help you at this time but am sure some one will be along that is on this treatment and give the advice you need.

What Hospital is your Mum getting treated as some on here might be able to help and advize.

Tom "Onwards and upwards" xx

Hi Chris and Colin

Doing great Chris 😀 and Colin you will be the same soon My Friend, dont rush it as we all differ in the getting home Time mine was on day 16 and I have been beat and i have beat others so as you all see we differ in the Home run.

Stay Strong you all

Tom "Onwards and Upwards" xx

Hi Debbie
A warm welcome to you and your dad and sorry am late with the reply, and am sure it has been answered.
But Get that holiday in and dont wait till after or during treatment as I didn't know how I was going to feel the day after let alone four months away :-/ but the Uk is fine as you wont need Insurance as such?

As for Driving I…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve