Hi Mary
This thread is getting so long,it will be a record soon,IF you sign in and go to the section you want example General or Carers.Scroll right down to the bottom and you can start another discussion.

Mary Slim had a good few infections you will get use to it,first sign of low blood pressure or temp or just not very well,ring the…[Read more]

Hi Ali

Tell your mum not to rub the site after injection,this is what causes the bruising,try not to touch it,hold the tummy firm,and make sure ,to use alternative sides.

Slim has very little flesh,but never had bruising only the flesh getting a bit hard.

Polly I know it,s hard,I make a better carer than patient,I know all the theory but…[Read more]

Hi Polly
Well my advice is to go on the trials,you will be randomised for CDT or CDR first one is standed treatment second one is a new version,both available as first treatments.It is the Velcade which is second line treatment that is important,Velcade at the moment is second line treatment that is still under trials,so could be with drawn,but…[Read more]

Hi Kevin
Just come on to say good luck with your SCT,it is hard going but like most things you will feel better just takes some time.Eve

Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and…[Read more]

Dear Ann

I am sorry to read about The loss of John in his hard fought battle with MM.

Love and Hugs to you and your Family at this sad Time

Tom xxx

Hi Lorna

Hope you are feeling more up than down,this illness brings you down to earth,big time,but saying that it does make you appreciate what you have,in your case how lucky you are to find the man you love.
Some one once said to me life is like a card game,you have been dealt your hand and it is how you play it that counts.
I feel down at…[Read more]

Hi Pat

Glad you managed to sought you pain out,pain can drag you down,and it is the last thing you need.Tramadol is effective but again not a slow release,your own doctor will not like you having a controlled drug,plus they are addictive so watch out for side effects.

Going once a week will take away some of the strain,when Slim was very ill…[Read more]

Hi Everyone
I do not think I ever felt angry with are situation,sorry we had put off doing many things,wish we had not put them off to a later date,but that,s life,you take your chances.

In fact I felt lucky,we do not have much money but we have not waited for retirement to do lots of things,I just looked at people,s lives around me.So anger…[Read more]

Hi Keith
When you feel well the last thing you want to do is spend time in hospital,it was always a fight to get Slim there when I thought he needed to be checked over,you tend to think you know what is best,but I know from Slim there is a fine line between being well and being confused and he crossed it many a time.

The platelets below 20 is…[Read more]

Dai Why oh Why do you seem to do it most of the time????? Yep I had a tear in one of my eyes you burgar 😎 its great dai and much too good to be spoilt by adding my name to it.

I Know you will be well for the big day and am sure every one will loove it.

Tom xx

Hey Nettie

I wasn't told to avoid it but I did (aint too good in water lol)
My Young Bride was told to avoid indoor pools (for 121 months) after she had Radio therapy when she had her op for breast cancer but wal Ok to go in the sea.

Keep well

Love Tom (cant swim well) "Onwards and Upwards" xxx

Thank Ali I am doing Ok not coughing as much but think I am losing my Voice (am sure I heard my young bride say "cant wait" lol)
I was told I dont need to redo mine?? but am sure it will help if you E mailed the Nurse on here 😀

Love One Getting Better Tom "Onwards and Upwards" xxx

Dear Vicky

I am so sorry about your loss but am pleased your Dad was at home with you all.

Love and Hugs to you all at this sad time

Tom xxx

Dai and Janet am sure you will have a great day and dai you will be spot on as I know you have rested up and saved your strenth for this wonderful day, Have a great time and Love to you and all yours on the great day, you may add me into your speach I dont have a problem with that Lol.

Love to you all

Tom "Onwards and Upwards" xx

Hi Charlie and Mary

Well am Pleased you are both well 😎

Am sure you know that I am now Drug Free 😀 but what I read on here the Velcade sounds like a good one and good for us humans 😎
I am with you re that hot beach and a few Vodka's thrown in also.

Our week end away was great we had a bril time and sent kids home on Sunday…[Read more]

Hi Helen well am pleased I am reading this as it makes my bad chest seem a lot better, and trust me I dont think you could get "Grumpy" 😉

I asked about child hood jabs and was told i dont need them?? we will wait and see Lol.

Now waiting for Dr's to get more Flu jabs in they have run out??

Love Tom "Onwards and Upwards"…

Hi Sara Jane

A warm welcome and I would like to wish you well on your road to remission. I hope the road is a smotth one ? I felt mine was smooth after reading some posts on here later on? or is it that the mind can blank things out?? nope I had a easy run thats for sure.

Stay Strong and stay well and follow what your body tells you, I know…[Read more]

Hi Helen
Well you must be feeling rotten ,I asked should Slim have all his childhood injections again,and was told,only needed them if he had donor cells,sounds if there might be a case for having boosters.

At least you now know what it is,which must give you some peace of mind,are you having to have a lot of time off work,this cannot go down…[Read more]

Hi Sarah Jane

It,s all a bit mind blowing at first,and naturally you are worried about your child.Try to take one day at a time,and get help to sought out your problems,the easiest way to do it,is contact the Mac Millan Nurses.

They can help you with all forms,get things in place now because you will not feel like doing it later,blue…[Read more]