Hi Peter
I never noticed about my hair till you said? then i had a wee look? and to be fair you are correct I seem to be going Bald ;-0 , Now I wonder why my Young Bride didn't tell me before ha ha, and am sure the dentist could have given you your three teath so you could have saved them in a tin for your old age 😀 in many a year to come…[Read more]

Dear Rachel

am sure you know how sorry and sad I am to read your Post about Paul, I was sure he was going to have a long remission and be fit and well for many a year.

I hope you can take comfort in that in the short time he was with us in the group he helped mamy a member with his strenth and determination.

Love and Hugs for you and…[Read more]

Hi Kerry

Hope your Mum is doing Ok. I was told Zometa only for two years and that is now complete so far Jaw intact and teeth still good (check out my smile Ha ha)

I do hope they can control the pain for your Mum.

Love Tom "Onwards and Upwards" xxx

Aww RIP John, and thanks for letting us Know Mavis.

Thoughts and Prayers to his Wife Su

Love Tom xxxx

Hi Everyone

Well am back and had a great time with Elaine(the young bride) and two Grandsons (Alex 9Years and Liam 7 Years, Lord knows i wasnt ready for a zimmer frame before I went to Thorpe Park" but I tell you I could use one today Ha ha.

Dai Am pleased to see your getting better 😀 am my you have been through the wars, The NHS is…[Read more]

Hi Pat

Take this trip to hospital as a big learning curve,it is such a worry to a carer when temp goes up and BP goes down,steroids mask infections,so are very hard to spot,I now go on Slims BP,when he had pneumonia his BP went right down had him in A&E,and even they failed to spot it,although I pointed out his BP which was 60 over 45,Pat next…[Read more]

Hi Dai
Well as you know we have all been worried about you,this forum just did not seem the same with out you,Tom in his wisdom managed to get info on you,clever block that he is,when someone goes missing who usually post,it becomes a puzzle why they have not posted,do they need a break!!! are they ill!!! or worst still pushing up the…[Read more]

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2…[Read more]

Hi Etta

Treatments Zolinza or Lenalidomide or no treatment randomised,Slim go t no treatment.They are testing the new drugs as a maintenance treatment. Zolinza has been doing well treating other cancers and it is a prohibiter,no results are available as a maintenance drug as this is first time,Lenalidomide has been in use for some time and…[Read more]

Dear David

I think you have cracked it,something for everyone,just watch your back when throwing those balls,have a lovely anniversary,love Eve

Dear Rachel

I am so sorry,Paul seemed to be doing so well,and if any one should have been able to get extra time,it should have been Paul,as he was one of the younger and fitter one,s on this forum,my thoughts are with you and his parents.

I lost my grandson with an infection all so unexpected,the shock and numbness,leaves you drained,I…[Read more]

Hi All

Yep our Dai is going through the mill of Late I got these to inform me how he is doing 🙂

::::::::::Hello Tom, Dai is quite poorly at the moment he has some sort of stomach bug, but he also had DVT in his other leg and it has travelled to his stomach, they are considering surgery but allowed him home yesterday. Good news is his…[Read more]

Hi Mary

Am pleased Charlie is home and am sure he will stay at home for some time 😎

Its a roller coaster ride getting treatment for MM it has its ups and downs am afraid 🙁 but its as we say Doable 😎
Give my Best to Charlie and wish him well, tell Charlie mine also had its ups and downs but after this lenth of time I (and he will be…[Read more]

Hi Mary well it is an Uphill struggle 🙁 but it will be worth it am sure, they will find out why and sort that out so as you also say Onwards and Upwards, Stay strong and stay focused.

Good Luck on the road to remission.
Love Tom "Onwards and Upwards" xxxx

Hi Peter and all

I lost all Hair cept my eye lashes but I gould feel those falling out as the time went, but me I was balder than a Coot (if a coot is bald??)
so no more nasty Nose hair nor ear hair that needed trimming lol

Nettie I trid the The L'Oreal oil and it was great folk could see the shine in the dark Lol.

so for all of us that…[Read more]

Hi Peter

Well I felt like I had Flu a few days after my Zometa aches and Pains you know Like flu, it soon passed then after a fair few month my veins fought the needle each month and used to play hard to get and when they did find one and blood was flowing it would Collapse and Nurse (bless) would have to have another dig in Lol.

Go ahead…[Read more]

Aww you two thats great news 😎 And just to let you know I had a few tears after reading your Bags are Full, am that happy for you both I cant smile wide enough, but i am gonna have a vodka for you two.

Love Tom "Onwards and upwards" xxxx8-)

Hi Louise

Hope its all sorted now and i wish your Dad Luck in the treatment that has been given, it will have its rough days but it will be well worth it

Tom "Onwards and Upwards" xxx

Hi Kerry

Welcome to the site,14 years is a long time,so your mum is doing very well.

What little I know about Zometa is Slim having a tooth out,was not a problem just had to be 2 weeks clear of having Zometa,told only 1%| of people get osteonecrosis very rare,so nurse or computer your best bet.I do know as time goes by Zometa does not work…[Read more]

Hi Helen

I was wondering were you were,good holiday shame about chest infection,i think there part and parcel of having a SCT,leaves your immune system so low,I think with winter coming on,I might just dose Slim with vitamins although he will moan about more tablets.

I enjoyed Venice when we went,but not to Slims taste hated the queues,went…[Read more]