Hi Tom

Thanks for the info on Dai,new something was up.

Tom you are brave,its lovely to see grand kids,but they do tire you out,but were would we be with out them!!!.Your just braver than me.

You are doing so well,I can understand now how people feel about the 3 months,it is not until you walk out of the consultants room,that you suddenly…[Read more]

Hi Pat
Nice to see your face,took me a while just to learn how to get a picture up,I agree with you,I am growing old disgracefully,we are lucky to have a good bunch of people on here,when my husband was going through a bad time,I could not have managed with out all the help and advice I received. Time has gone on from when I joined and faces have…[Read more]

Hi Eve and of Course Slim

Its not brave havin the Kids (we have one now) its good to see the Grandkids and they love granddad Pub Lol

Enjoy the oplace that your both in as it will get better (with a few hickups am afraid) but its great just got my tests comming up soon ? and am sure they will be spot on (unless this body is telling me…[Read more]

Hi Gill

Well what a read and a well done you it sounds like it went well.
Your Post wasn't a waffle it was warm funny and it oozed the strenth that you have always had it made me smile it made me cry (yep Gill you made me cry)

I understand about being away for that "Regroup" and I hope it comes to you fast.

You have am sure heard all…[Read more]

And a Good Morning to you also Pat 😀

Do you know thats the way I think of it when I was having treatment, treatment all finished now but I tell everyone that I have built a little shed on my left shoulder and shoved the pesky MM in that and shoved a lid on it 😀 and yes I talk to it:-S and yes I tap the top of the Lid :-/ but hey ho it…[Read more]

Hi Jo

If your on face book please become my friend,and I will enjoy a game of scrabble with you,i play with Jean.I would love more contact in general and play a game of scrabble.it is interesting to know about people outside the bubble.You will find me under my full name.I feel I already know you anyway.

Mike if I had to choose it has to be…[Read more]

Hi Mike
Yes mike it is like someone has switched on a light bulb,and you can see a way forward.8-)

I think at the moment we will settle for this time we have, and try not to look to far back or ahead,as both are not a nice place to be,I see the Myeloma Trials helping generations ahead,in a cure,for people who are here now I only see it buying…[Read more]

Hi Tom and the family of Lappins

Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.

It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain…[Read more]

Hey Tina Good Luck with it all and if I remember well Nightie is faster for lifting than jim jams are for lowering and I prefer the fastest way (not that I wear Nightie's though)
As Eve says During SCT its a throw away Culture you need to have, dont bother with Posh (bless)

Love Tom "Onwards and Upwards " xxx

Hey you two

Aint you BOTH done well you and your team have and are working wonders 😎

Great Post for the Newbie's and those that are having a rough ride, now all can see it CAN and WILL be sorted just takes longer for some ?
Onwards and Upwards now you two Great Post

Love and Hugs from Us Lappin's in Scunny "Onwards and upwards"…

Hi Mavis Megan Joanne and Jean

Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.

Jean I think Slim would be the same about going,I think they…[Read more]

Hi Tina
Well I have to say Slim never found the energy to get dressed until near the end,and lots of clothes just got thrown away,you will not expect them to be taken home.

Take things in that are around you at home,like your favourite mug,I would also take anything,that you like to drink in,as this is so important,as food and drink do not…[Read more]

Hi Joanne
Sorry you Dad is having a rough time of it,at least they found out what it was,and he is on his way to improving,just forget about the Velcade for a few weeks,just work on getting your dad in better shape and in the frame of mind to start Velcade,because that will be the last thing he wants to do.

Slim had pneumonia and was 21 days…[Read more]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then…[Read more]

Hi Gill

May I say you should be very proud of your self,because you not only gave Stephen a good send off,but you did it in style,

I have enjoyed reading your post,I did not cry but smiled and laughed,I can only say,it was like hearing you talking about Slim,even to Rod Stewart. If there is another life,you can bet he will be looking down on…[Read more]

Hi Joanne

Sorry your Dad was poorly but am pleased he is getting better and in his own home (you cant beat it) its all about rest and recuperation now for you and your dad (yep I bet you forgot about your self??)

Hope Velcade is started soon, and please no need to apologize for not being on for some time as this site is for when you have…[Read more]

Thats great news David and a well done to you and your team 😀

I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.

Am sure am due this month some time?? but hey ho am sure My Doc will be smiling 😀

And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week…[Read more]

Hi Mary and Charlie

Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all…[Read more]

Hi Mary and Charlie

I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.

Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM…[Read more]