Oh Gill

I am so sorry to read about your beloved Stephen has Passed away I honestly wish i was with you to give you that great big Hug that am sure you want and need right now, but am afraid it can only be a Cyber Hug (((HUG)) sent to you and of course to Stephen.

I watched with a smile on my face the way you two have coped with all that the…[Read more]

Hi Helen and Ali

Have found out some info on the Myeloma beacon,but not for maintenance,so asked at the hospital today,

Seems gathering up the people to sign for trials,once they have enough they will be randomised ,its new to trials,it breaks down protein in the cells,side effects and more information at a later date.
So we wait and see.Love Eve

HI Joanne

Not a problem, and i wish your Dad luck with the harvest on Monday.

Tom "Onwards and Upwards" xx

Hi Craig and Etta

You both kn ow I can only speak about myself in this 🙂 but yes I had sickness for ages after never brought anything up cept the Bile and wind, was on anti sick tabs for ages even my Consultant wondered why I still needed them :-S but hey I did and got them 😎

Keep going one day Etta will wake up and that Corner will…[Read more]

Hi David
You must be over the moon with the news,it should give you some peace of mind to know there is no hidden pockets of Myeloma lurking in your skeleton,

So I hope that coffin is locked away for lots of years,i had a feeling you might be rushing to finish it,LOL.David did you know you can get lovely pictures embossed on them now,you can…[Read more]

Hi Cathy
Did Ivan have an problems with Kidneys before SCT???How much chemo did they give him,they try to get it in and out of the body very fast with lots of fluids before during and after to minimize damage to the kidneys.
It does sound if he is one of the people,that some times have kidney problems,with the treatment,and it looks if this is…[Read more]

Hi Chris
Just coming on to wish you good luck,hope they manage a good harvest,so they have lots to put back in.
To answer you question Ali Slim is a good 3 months post SCT,his hair showed no signs of coming back until 3 weeks ago,it,s come back very dark and is a bit like a babies first born hair very soft.Eve

Good Luck for today/tomorrow Chris I hope you do well

Tom "Onwards and Upwards"

Hi Everyone,

This is what I have never understood,people come on here desperate for some knowledge,then b—er me,they do not even bother to reply,is it that they have only concern for them!!!!!! or are they some sick person who gets a kick from knowing these people are fighting for there lives.

Its a sad day when people need to troll this…[Read more]

Hi Keith
Thanks for that info:-)

I cannot get any protein in Slim,gone off all meats fish,only thing is eggs,so egg and bacon,ham egg and chips lives off them given up trying good food,My weight has gone up because I cannot keep eating different food,if I eat Slim eats.:'-(

At the moment very p—-d off,thought the cruise might help,he gets…[Read more]

Hi Joanne

Sorry I seem to have missed this post? so a late welcome to the forum.

As the great members here have said its a rolercoaster ride getting remission with this MM but it is doable as I like many can confirm.
Just a run down on mine (am now 57) found out in Jan 09 I had MM, had 5 courses of CDT then harvest leading up to Stem…[Read more]

My Dear Gill and Stephen

I am so sorry to read about you Stephen and your MM grabing you so hard and so Fast, Stephen and Gill my thoughts are with you both at this moment (and have been as am sure you know for a long while) Stay Strong Gill I like most wish we could take the pain away for you and heal Stephen but am afraid we cant.

One…[Read more]

Hi Les and Welcome to this Merry Band of folk ? yes we are merry most of the time 😉

Think Eve has coverd most of it so at the moment I will wish you all the best in your trip with MM

Tom "Onwards and Upwards"

Hi Newbie

I cant add to this one as i haven't had Velcade, but wish your dad well in his road to remission.

Tom "Onwards and Upwards"

aww thats Nice but Dai my Friend as we all know you are the ones with the words for the wright occasion 😎

Hi Keith

Well we are doing this the hard way 🙁 but I think its a Man thing?? we know its on its way but we/I sit and wait it out where we should be knocking on the Dr's Door at first sign of dodgy problems:-S

Am pleased you are better to leave Hospital they aint that good for ur health :-0 I was skin and bones when I first got MM but…[Read more]

Hi Keith
You have been through the wars,while Slim and I have been enjoying ourselves,correct that I enjoyed myself.

I am interested why some people like you and Slim loose so much weight with the Dex but other people put on weight,has anybody come up with a good answer.Slim now weighs 63 k,skin and bones no bum left,try as much as I can but…[Read more]

Dai
That was lovely,I find a great inner peace in poems,not very good at lyrics,but do enjoy reading them.Love Eve

Hi Les
Nice to hear from you and you have come to the right place,this lot on here will soon cheer you up.

My advice is take one day at a time,what seems awful at this moment,will not seem so bad in the future,but you are going to feel worse before you feel better.

First have you applied for a blue badge,or any money like attendance…[Read more]