MANDY PHILLIPS

  • eve replied to the topic Stem cell transplant in the forum Carers 13 years, 5 months ago

    Hi Cathy

    7 days into SCT,sickness is what you can expect,have they not given you books to read about the procedure????.
    It is not very nice to watch,but your husband will come out of this ok.
    The reason the nurses have little contact is they try to keep him and other patients germ free,going from one isolation room to another,brings its own…[Read more]

  • eve started the topic Good News. in the forum General 13 years, 5 months ago

    Hi Everyone
    I have thought twice about posting this news,as we have been loosing so many people lately ,but I also realise how much hope good news gives to people going through treatment,so here goes!!!!

    Slim was diagnosed with Myeloma 20 months ago,and has been through two lots of chemo CTD plus Velcade,with Septic pneumonia spending 9 days…[Read more]

  • tom replied to the topic Teeth. in the forum Side-effects 13 years, 5 months ago

    Morning Sandra the only problem I know about is when you are haveing Zometa and you cant have teeth taken out at dentist have to go to the hospital (think fillings are OK but always worth a check with dentist.

    Love Tom "Onwards and Upwards" xxx

  • tom replied to the topic Radiotherapy in the forum Treatment 13 years, 5 months ago

    Morning you two 🙂

    Well My young bride (Elaine ) had 25 sessions of RT and towards the end of it she started to burn so the Nurse gave her some cream for the burns its all good just ask for cream.

    Have a great week end

    Love Tom "Onwards and Upwards" xxx

  • tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 5 months ago

    Hi Vickie and Colin

    Well in the nicest possible way I hope Colin gets some pain tomorrow not forgetting we all differ and some dont get the "Pain" for some reason or another.

    As for the worry Vicki I worry about worrying about not worrying?? if that sounds sense lol, keep off the paint and try and relax

    Love and Hugs
    Tom "Onwards and…[Read more]

  • tom replied to the topic Feeling Useless in the forum Newcomers 13 years, 5 months ago

    Hi Maxine

    Thats not a problem at least your sister has got some one fighting her corner as am sure the whole family will rally round keep as much pressure off your sister and keep her calm.

    Dont forget Ask away nothing is too daft for us to answer.

    Love Tom "Onwards and Upwards" xx

  • tom replied to the topic Positive News I Think!!! in the forum Treatment 13 years, 5 months ago

    Hi Keith

    I think it is Positive news, I hope the Dex is cut for you am sure that will make your life far better.

    The lowest I got with the weight loss was 68 kilos and i was normaly 95 kilos, now back to the 92/95 yep i float from one to the other.

    Good Luck Keith

    Tom "Onwards and Upwards"

  • tom replied to the topic Diagnosed this week in the forum Newcomers 13 years, 5 months ago

    Hi Ted

    Well done that Man another three months doing good, keep it up and hope Xray is just put down to "Middle" Age 😉

    Tom "Onwards and Upwards"

  • tom replied to the topic My Mums SCT in the forum Treatment 13 years, 5 months ago

    Hi Ali

    Well am pleased your Mum is getting stronger and Hugs all round are OK 😎
    Am sure your Mum will feel better with the line out, and less chance of infection:-D .

    I came out on the 16th Dec and was driving the following day (not far though) but I had my Line (Femoral) taken out the day before I came home.

    I bet those two Kids…[Read more]

  • Hi Dai

    So one part is looking Good am sure it will all fall into place whith rest and as for a healthy diet well for me you can throw that out of my window I have never had one? dont wish to play about with one and am sure your Dr is correct eat what you want when ect ect ect as I have done and Take a look at iccle ole me (touching wood) doing…[Read more]

  • tom replied to the topic Feeling Useless in the forum Newcomers 13 years, 5 months ago

    Hi Maxine

    Sorry to hear about your sister getting MM and being so young, i dont think you will know what treatment your Sister will be on at the moment?
    Let us know where your Sister will be getting her treatment as we might have some one on here that is being treated at same Hospital.

    If you need to ask any Q fire away and we will try to…[Read more]

  • tom replied to the topic Hello in the forum Newcomers 13 years, 5 months ago

    Hi Megan and Phil

    A warm welcome to your site, ask away and just remember no Q is too silly or daft we have all been through it Like me as a MM or one that is a carer.

    Good Luck in Phils road to remissin.

    Love
    Tom "Onwards and Upwards" xx

  • Your Welcome Scott

    I also hope that your results turn up and say you are Myeloma free 😀 and that Scott is not selfish its self preservation and that is what you need if confirmed with Myeloma.

    If confirmed with Myeloma am sure you will kick its Ass and soon be on the road to remission (am sure we ought to get a songwriter to write a song…[Read more]

  • Hi Teresa

    Many Thanks for this post as am sure it must be hard for you, but your strenth has and will carry you on.

    I never Met Peter or you am sorry to say but you both have and are in my thoughts.

    I also hope and wish A cure is soon found for this dreaded illness.

    Thank you for posting.

    Love Tom xxxx

  • tom replied to the topic My Mums SCT in the forum Treatment 13 years, 5 months ago

    Hi Ali

    Am pleased you had a great Birthday and am Pleased your Mum is getting better (no rush though) your Mum will still need to rest often to help heal.

    As and when Mum checks what she can and cant do I hope she is still able to recieve "Cyber Hugs" as I am sending some more

    Love and Cyber Hugs ((hugs)) to you both

    Love Tom…[Read more]

  • Hi Scott
    Great Intoduction I may say 😀 Sorry you had to join us but you have dropped in to a great place great set of folks MM folk and carers (well those that look after us 😎 )

    No need for the WWW now you are here so just ask away and am sure some one will help, nothing is too scary for us lot now 🙂

    Good Luck (if it turns out to be…[Read more]

  • tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 5 months ago

    All the best with GCSF, my pain started on day three I think and lasted just over two days 🙂

    Tom "Onwards and Upwards" xx

  • tom replied to the topic Weight Loss in the forum Treatment 13 years, 5 months ago

    Hi Keith

    Am sorry to hear your having another rough one 🙁

    Am not sure if this will help?? and if it upsets people I am extremely Sorry 🙁

    But during Mt Treatment I also had the Eff it av had enough, lets get some proper life and do away with the drugs. I told him upstairs (god) three times over the two and a bit years that I have had…[Read more]

  • Hi Charlotte

    I also must say sorry as I also missed your post ????? I dont have anything to say about your plasmacytoma as I am fortunate enough not to have had one? (I tell you MM gets staranger the longer I have it?)

    I have to say you done as was aked "I've been instructed to introduce myself" and you have done that well 😎

    Dont…[Read more]

  • tom replied to the topic Revlimid in the forum Treatment 13 years, 5 months ago

    Hi Pennie and Andy

    Thats a lot of breaks and fractures ?

    I am pleased Andy is feeling better but if it was me "I would burn those logs that gave Andy all those problems 😉 )

    Thanks for the boost you will have given others going on to that treatment 😎

    Tom "Onwards and Upwards" xx

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