tom replied to the topic Home after SCT in the forum Treatment 13 years, 6 months ago
Hi Paul
And a welcome home 😀 16 days is good same as mine 😎
Keep germ free and fit (ish) and good Luck in the road to recovery.
Tom "Onwards and Upwards" x
tom replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief 13 years, 6 months ago
Dear Lynne
I am so sorry to hear that John has Lost the Battle with Myeloma.
Over the years you have been a strong Lady in this Group helping others with strong words of wisdon and kind caring ones at all times, and that Strenth you had will help you get through your sad loss.
I am sure I dont have to say it but feel i want to and that is…[Read more]
eve replied to the topic Nearing the End? in the forum End of Life and Grief 13 years, 6 months ago
Hi Gill
So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]
eve replied to the topic Starting Padimac trial in the forum Treatment 13 years, 6 months ago
Hi Helen
Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.
One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
I have just come on to say…[Read more]
eve replied to the topic A Final Plea in the forum Side-effects 13 years, 6 months ago
Hi Keith
I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S
I know all about green tea,green…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 6 months ago
Hi Ali
Your Mum is doing great so far (dunt look like it but Mum is dong well) its still up hill for your Mum but will get easier as the days,weeks flow by.
I needed anti sick tabs for weeks after my SCT just couldn't keep anything steady.
Give your Mum a Hug from me as like most here we have been through it.
Love and hugs
Tom…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 6 months ago
Dai My you do sound (and i know its silly to say) better than you have on the other posts 😎 I also am gonna use the "Mystic Jo" if ever i feel ill 😀
Good Luck with the new Tabs and hope the little beggers are soon Flushed away Lol.
Am sure we would all love to see your "New" Goatee 😎 so will a photo be posted?
Keep Flush and…[Read more]
tom replied to the topic Waiting and worrying in the forum Newcomers 13 years, 6 months ago
Hi Pat
A warm welcome to you.
First I must say Moan if you need (we alll do at times, cept Eve that is 😛 )
Its a wait and see am afraid but I was seen fairly fast when Bloods were dodgy so hope yours is soon sorted out.
and as has been said if it is the MM am sure it will soon be sorted out like mine and many more 😎
Enjoy your break…[Read more]
eve replied to the topic My Mums SCT in the forum Treatment 13 years, 6 months ago
Hi Ali
This is the hard bit,you mum will sleep a lot,take a book to read,if the clothes are soiled just get the nurses to throw them away,this is were your mum will feel if she is loosing control,very emotional for her,the nurses understand,but expect a few tears,you keep your chin up,tell your mum she is through the worst,the nurses should be…[Read more]
tom replied to the topic Hereditary link???? in the forum General 13 years, 6 months ago
Hi Michele
Resurect what you need to as am sure some of us Old Hands have forgot about them :-S I asked my Consultant about this as I have three grown up sons, I was told that no hereditary links have been found (at the moment) but I told My Son's if you have symptoms like mine or ones i talked about over the years keep your eye on your Dr as…[Read more]
tom replied to the topic Fundraising and Awareness Day in the forum General 13 years, 6 months ago
Hi John
I shoved your link on Face Book am sure you wont mind ?? take a look here its my page http://www.facebook.com/tom.lappin.5 if you aint got a page you realy should open one up as your chip shop ?
Tom "Onwards and Upwards"
tom replied to the topic Fundraising and Awareness Day in the forum General 13 years, 6 months ago
Na then John
Yes I do remember that song Lol and am sat here humming it now he he,well done with the Elvis theme 😎
I would watch those two Staff that are going to do a Tandem Sky dive as am sure they must be nutters lol (I dont do heights)
Its great for it all to happen and throw some money into MM and inform lots of people about MM and…[Read more]
tom replied to the topic Second opinion result in the forum General 13 years, 6 months ago
Hi Andy and Steph
Its Looking good and even a plan if it starts to fail (but we know it wont) I hope its a long way off before you need the SCT.
Elaine (the young bride) and I are going to Newcastle next thurs (16th) for my Audition for deal or no deal 😎 scarey aint it Lol.
Good Luck with it Andy.
Tom "Onwards and Upwards" 😎
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 6 months ago
Well done Jo 😎 you just might get dai on the straight and narrow again (i can hear Dai saying "not before time")
Good Luck with it all Dai am sure you and yours are well and truly fed up to the back teeth with it:-(
The pain is bad enough but when you are that washed out its bloom harder to cope with but as i have said before you my…[Read more]
tom replied to the topic Fundraising and Awareness Day in the forum General 13 years, 6 months ago
Hi John
And what a read, sounds great to me but you are gonna be very busy so good luck on that and a well done to all your staff that are giving the time and wage they would have collected (you must have some good un)
Good Luck John and stay well 😎
Tom "Onwards and Upwards"
tom replied to the topic Type 2 Diabetes in the forum Side-effects 13 years, 6 months ago
Hi Keith
Well we get meds to make us better??? but those in turn make us Ill with something else (strange world this is)
BUT am pleased you have got somthing to help. good luck with the dex 🙂
Tom "Onwards and Upwards"
eve replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 6 months ago
Hi Dai
I would agree with you about the infection,hope you are taking a sample when you see doctor,you have to find out which one it is.:-P
When Slim was discharged from Kings he was given 200 paracetamol,bit of a shock to be given so many,as you cannot buy more than 30 over the counter,get depressed enough,they might help.:-(, I do not take…[Read more]
eve replied to the topic Kappa Light Chains on the Up in the forum General 13 years, 6 months ago
Hi Wendy
Good for you that's the way to go;-) Eve
tom replied to the topic Nearing the End? in the forum End of Life and Grief 13 years, 6 months ago
Hi Gill and Stephen
Your man sounds like my man never seems to have a day off ? I know when I was at the start of mine he phoned me way past 8pm and gave me advice and came back to hospitla to take my femoral line out so I could go home.
I hope between him and the wizard soon sorts out the pain, you know we all have fingers crossed and…[Read more]
eve replied to the topic 2 Months past SCT in the forum General 13 years, 6 months ago
Hi Mari
Glad you had a lovely holiday,and Steve,s feeling a lot better,just what was needed,when we asked about going away it was a complete no no,but are own personal circumstances would have taken over any way.
So on Wednesday I will look out for a tall man who looks if he has moth eaten hair lol,you tell Steve to look out for Slim the…[Read more]