And a Good Afternoon Etta

Well done you girl its good to rest.

Just remind me Etta when is your transplant due for??

Love
Tom "Onwards and Upwards" xxx

Hi Tina

Well how long is a piece of string?

1) the weakness well am sure that never leaves you fully :-S or that just might be iccle ole me ??

2) Bloating? mine soon went down (cept me belly lol) when I came off the Dex 😀

3) indigestion and 'burps'? well my young bride will tell you that I have burped and trumped all the way through…[Read more]

Hi Jen#

great news on your Pa 😎 and am sure pa will have a lot of the fatigue over the time and to be fair it aint left me for long before its back and tells me to slow down :-S

Hope your Two Boys are soon better also

Love
Tomm "Onwards and Upwards" xxx

hi Pennie
You do not say how old your are,your husband is entitled to Attendance Allowance ,it is not subject to how much money you have,plus you might be entitled to carers allowance!!!.Worth seeing about .

I cannot help with the REV.but you have coped with other treatments,my husband is retired,but I do get concerned about him driving,so I…[Read more]

A Warm Welcome Home Etta, and a well done n ow for the SCT 😎

Love
Tom "Onwards and Upwards" xxx

Hi Beverley

This is just a welcome to the site,and hope you keep on smouldering for many moons.

By being diagnosed early,it means they will keep a careful eye on you,learn as Much as you can ask Ellen for books on it.

My husband went full in to MM with a lot of damage,and we do not know how long he had it.
So my advice is learn as much…[Read more]

Hi Mari
Amazing we are 70 miles down the road,and had nothing but sunshine all day,a bit windy,I watched my daughter sitting in Wimbledon with just one quick shower,It came down at my other daughters nr.Dover in sheets,but did not rain much 9 miles up the road.:-S
I think they do have different polices on different wards,as Slim was in Davidson…[Read more]

Hi Liz, well am pleased I make you all smile 😀 and after hearing Kev's reply to you am sure he is like me anyways "anything for a quiet life" Lol

And Andy and all you other MM'ers am sure you dont want to follow my advice?? as you will all need a new Liver? what with all my drinking "Beer,vodka and not forgetiing my Red Wine"8-) but hey ho I…[Read more]

Good afternoon Etta

And how did we do today 😀 Hope you got enough for two (not that you will need two 😎 )

Get them all in freezer in small bags.

Love and Hugs

Tom "Onwards and Upwards" xxx

Hey Keith

I am on nothing,zilch at the moment but I tell you M8 I have been that fatigued (my word for fatigue 😉 ) i find it hard work to walk the bloomin Yorkie Lol, but most days I am spot on 😀 , energy levels have dropped a fair bit since getting MM I need more sleep than I did before? I ache more I??? hang on that could just be my…[Read more]

Hi Everyone
The procedure working up to a sct differ from hospital to hospital.
Slim was like Steve,s we travelled up from Deal that day and got back at 8pm.
Slim did his own injections,we did stay up in Kemsing for the harvest as it took 2 days,Slim found it tiring he was dosed up with Calcium through a driver,because of feeling sick.
At…[Read more]

Hi Teresa
I know this is a hard time for you and your family,I hope you have a palliative care team,coming in to help you.
I can only send you my best wishes,and hope you achieve those small goals,that you talked about.Peter has a goal with the grandchild on the way.
Love Eve

Hi Dai
Well in truth you have been here before,and you know the routine,but you know you will get over this little hurdle,you both sound if you need a bit of a break and some pampering!!!!,can you do anything about that, I know as a carer how much it takes out of me,some times I just want me time.years ago i use to cook for England,I realised…[Read more]

She did Dai
They had excellent seats and said it was well worth going.
She phoned tonight to tell me she has won a holiday for 2 for I week to the Bahamas,adults only with a choice of 3 islands,Her husband did not believe her,thought she was joking as she never thought to tell him she had entered .

Someone up there is looking after her.

Hi Liz and Kev

Great to see the lights are getting dimmer 😀 and to be honest its the chest that has been my downfall since I started my treatment (and I stopped smoking?)

Note to Kev, "You and I know that our young Ladie's know us better than we know ourself, so I suggest you follow my lead:::and do as you are told I do lol" keep up the…[Read more]

Aww Etta you tight devil not even parting with your stem cells, go on girl let them have them I promise they will give them back to you soon 😀

I had a Femoral Line done for my bits (in the groin) and am sure thats the best thing to do as it seems to me to get less infections or problems.

Etta did you have a Nurse with you all the time you…[Read more]

Hi Dai

Well what a game and a half you are having 🙁 but am pleased you are getting the treatment you should be having.

I know that Anti Biotics shouldn't be given out willy nilly but us MM'ers need them to be given at first click of an infection.

I also home you are "Tickety-Boo " by Wednesday and for longer.

Keep well My…[Read more]

Hi Gary
Slim had his SCT on 13 may and came out Ist of june
He still takes ante sickness pills used to take Ondansetron but known to make you constipated,so now on Domperidone he was given 2 months supply by Kings,he takes them 30 min before meals,but does eat in between mealtimes.

If your sister is having all this and is still being…[Read more]

Thank You Teresa yep that girl did well 😀 and the four month stint is great especially when he said I know it a long time but you know where we are if you need us 😀

And our Grandkids are getting us fit Lol

Love

Tom and Elaine "Onwards and Upwards" xxx

Hi Etta

Hope they got enough in one sitting 😎 I hate seconds Lol xxx