Hi Andy

Well good luck for Friday,either way I think it will be a great relief.You will know what you are fighting so you should be able to take part,and do some research towards that treatment,you have jumped so far ahead with different treatments in so little time.
All treatments need time to work Velcade they say 6 cycles and like to know…[Read more]

Dai
I would do it now,but my dead mother in law use to tell people i started the G&T at 10am,but you have no excuse enjoy one then have a snooze,Bridget would be laughing at that, Eve

Hi Dai
Bridget amazed me,as I know from the amount of pain relieve she was on and still in pain,how hard it must have been for her,they gave her another hurdle to jump and she put her self forward.
She had the will to live,thinking always about her daughters and her mum,always there for them,Grandchildren as well,she has left her own goodness…[Read more]

Hi Everybody
Just got in,I have been down to the sea front walking and thinking about Bridget.
I hope she is there with her family looking on,I hope her daughters are strong.
They say things happen for a reason,and this is one of the times you think life is so unfair,Bridget is no longer in pain and to me this must be the blessing in her…[Read more]

Well Andy what can I say its almost if I have started a ball rolling,did not mean to just found it strange so many treatment with out real progress or time for progress.

If I was you I would ring up your consultant and ask to see him!!! he should be able to give you time away from the clinic!!!!! don,t go on chance.

Have your list of…[Read more]

Hi Tina

And well done, making any decision after SCT is hard, and to make one that delay's our "Back to Normal" is even harder but I feel you are correct its too early, I was daft and jumped straight into it as soon as poss even though both consultants at both hospitals and two leading Nurses told me not to, (stuborn old cuss I am)

I also…[Read more]

Hi Alethea

Sorry you had to join us but you will have found a great site with great folk (oh and me?)

I found it easy to tell people about it, I feel that the problem shared is a problem well halved 😀 the more you have to help you bounce back up when yopu are feeling low the better 😎

I also had that depression but a half hour under…[Read more]

Hi Andy

Well am sure you know me by now ??? well am happy if my Doc is happy 😀 if he aint got a smile on his face when I go into the room am out till he has Lol, as Long as My Man says its working I dont feel the need to ask anything else 😎

And am "Onwards and Upwards"

Good Luck M8

Hi Cinzia
Hello and welcome,
i think like me a lot of people have missed you joining the forum,because unless you have a related condition you tend not to go in to that subject.

My post now is just to say welcome and hope you have a good response.Eve

Hi Helen
Hope you are feeling better,not nice at the best of times,but must be an added worry with Myeloma even when in remission.

I can understand you wanting to get back to normal,and go back to work,there is a nurse on the chemo unit,who has had treatment,her words were[ i just want to be normal],I did not ask much just talked about her…[Read more]

Hi to you all
Tina I can only tell it from Slims side,had a few problems with his bladder side,it was an infection,antbiotics given.another side effect way down the list.
I must admit I gave in with Slim at one point tried commode plus bottle,to him it was a no no,I kept telling him be ok once he was feeling better,he was not having any of…[Read more]

Hi Gail
I am so sorry Gail,you must be beside yourself with worry.
Some times people choose there own fate and it must be awful for you to watch,it does happen some people choose,not to fight.
I can only imagine what it must be like for you as the carer.Howard is a very brave man,his decision must have been hard to not fight and leave his loved…[Read more]

Hi Gail
Howard can fight back but he needs all the help you can give him.
You do not say if he is on a ward or in ITU.!!
If he is on a ward get the dietician on board,and be there at meal times and feed him,even if it is only a few mouthfuls plus stay by his side and make him drink,its hard I did it for 22 days.Take anything in he will eat.the…[Read more]

Honest Dai I have never felt nor looked like a hero Lol.
Its a job that has to be done and we have all gone through it (Pardon the pun)

I tend to forget the times i didn't make it and had to shout Elaine (with a pitifull tone lol)

So now all well its an "Onwards and Upwards" 😎

Hey Eve and Slim

One Banshee here but this one is " short fat and bald and wears No long nightie" but has had its moment of the comb throwing but thats cos am Baldish Lol

Pleased you never got that call 😀 looks lie its on the up 😎

Stay Strong and Catch you lata

Love

Tom "Onwards and Upwards" xx

Hey Mavis

A well done that girl 😀 as for the withdrawal symptoms we all differ did I have any in 2009 ?? I cant remember 😀 so thats a good thing aint it 😎 .

Just hab[]ng in its looking and working real well 😎

Love

Tom "Onwards and Upwards" xxx

Hi Onlyme

I am pleased your Mum is being looked after At the Mac Unit.

Stay Strong for your Mum and Prayers are being said for you all.

Love and Hugs Tom xxx

And Tina that minute is now 😀

Well am sure you know I had my SCT wayy back in December 2009 (went on sick may 2009 when on CTD) went back to work (light dutie's) May 2010 and as I sit here after being back at work for just over two years and still on the Light Dutie's I feel as I should have not gone back to work :-S I feel tired and just…[Read more]

Hi Keith

Now I remember Phil Kelly had a problem with passing out? not sure if Phil was on same treatment?? but I would phone your Contact Nurse.

Hope your soon sorted

Tom "Onwards and Upwards"

Hi Alison

And that it is and Thank you for the Birthday Wishes 😎

Hows you coping??

Love Tom "Onwards and Upwards" xxx