Very well put Andy
I feel very much like you,.Eve

Thanks for that David think a few have been a tad upset with it here :::
http://www.myeloma.org.uk/index.php?cID=16917&ccm_paging_p=1&time=1340657058#msg16940

Lol Eve I forgot aint none of us in here able to do the TV Programe as we will all be here after the 12 month is up Lol.

And you are correct they should do one On Myeloma and why Nice take so long to release the drugs and why the drug Company's charge what they do 🙁

And am sure you are ready for more than your five mins of fame Lol…[Read more]

Tom
I doubt it very much,
They could do a good documentary on Myeloma,not someone dying of Myeloma.
But that would not get the ratings going as good as a documentary as a person who is going to die of Myeloma,and don,t forget they gave you a time limit to do it in a year LOL:-P
If they did a documentary on all the new and exciting drugs…[Read more]

And for those smiles I and Eve are eternally Grateful.

But would it do some good to be aired? it would get Myeloma out in the open rather than just a few thousands that know about it.

Its just the Gaul of the words that got me IE "[u][b]life-limiting illness[/b][/u]" and Or "[u][b]and have a short time left to live[/b][/u]"
We with MM are…[Read more]

Good for you Tom and all those people who live with Cancer.
There are some Freaks around LOL.
Still got NZ in are sight,but do not mind a bit of France,in Fact I would settle for any were,Love Eve

Lol Eve and do you know that is Correct I aing going nowhere this next 12 months apart from abroad on our holls Lol xxx

Love
Tom "Onwrds and Upwards" xxxx

Hi Helen
it worked,but you have not said what beach it is or were!!!!
What amazed me about NZ every new turning had beautiful scenery, Would be out there again if we could,ONe of the good things to come Love Eve

Hi Judd

A warm welcome to you sorry you had to nip in, now lets hope they can nip your problem's in the bud and get you into remission soon.

Is the road Long? is tit a hard road?? I dont know you seem to have had it bloomin hard already 🙁 Its not a walk in the park but I had my SCT in December 2009 and am now in remission.

Good Luck on…[Read more]

I think you would be better putting your posting Off Topic as People on here are living with Cancer,not dying with it!!!!!!:-P

Hi Teresa

How are you coping ,this must be a very hard time for you,are you managing a little free time for yourself!!!!!
I take it you have told all the family the position now,and you and your girls are coming to terms with what is going to happen,but still looking forward,to the birth of your Grandchild.Also the walk down to the botton of…[Read more]

Hi Judd
This is just a welcome to the site,I have read your posting and cannot help you much,Its my husband with Myeloma and he had the usual treatment of CTD then Velcade with DC which is part of Myeloma X1 trials.

May I suggest you get in touch with Ellen the nurse and she might be able to put you in touch with someone who goes to the same…[Read more]

Thank you all
You have eased my mind,and my daughter tells me they will be able to take it out in Canterbury,so no long journey back to Kings.

I was worried about it coming out,as Slim had such a bad time of it going in,he said no way were they going to replace this one if it became infected,:-( It seems his vein thinned out and they had to…[Read more]

Wendy as a "mere Male" that is (well so am told) Bald on Top I am not in a position to advise on Curls or waves Lol.

Tom xxx

Hi Eve and Slim

Well I had a "Femoral" Line fitted and had it taken out on day 15 the day before I came home and all my bloods were OK, That said I was going to Castle Hill every week till my 100th day and some folk had the Hickman line in most of the 100 days that I attended? never thoght about asking why that thing stuck out the top was doing…[Read more]

Hi Wendy

Well this has got me thinking,!!!
Slims was put in on the 24 April,then my |Grandson passed away,so he came out of hospital and was readmitted on the 13 may,and came out on the 1 of June.

Officially he is under Kings for 100 days but having bloods and platelets at local hospital.
We have been back to kings to see consultant,but…[Read more]

Hi Gill

Welcome Home I bet you were fed up

You are correct its better for you when they find something ? anything to put a name to it:-/

I see your eyes have got bad? some times I feel mine aint as good as they were? Youing Bride (elaine) tells me to go and get new glasses but I aint due for an eye test till next year:-0

Keep strong…[Read more]

Morning Dai and all

Well done on the trip a double wammy 😀
But its a shame when you book time away and get or feel ill.

You now know you can do it so am sure its going to be the MM way? "Little and Often" 😎

Tom "Onwards and Upwards" x

Hi Girls

Eve keep your eye on Slim's facial hair when it grows back, mine sometimes I grew a Pencil tash like in the old movie's (or so am told lol) just a thin neat line grew all on its own, but my hair grew back darker with a lovely wispy curl Lol and gosh was I pleased to get rid of that lol.

Helen I wish you luck with the Blond bit but…[Read more]