[mandyphillips41Participant]

Hi Susan
I finished my SCT in June and last week I bought a Nice and Easy Ash Blonde hair dye. My own hair has started to grow back and its a dark grey colour – sort of non discript really, anyhow the home attempt did not work out as planned so I ended up going to my hairdresser and she put a peroxide on first then a toner afterwards that I chose from a chart. I absolutely love it and my hair still feels strong, I even let a few people at our caravan site see me without my wig this weekend gone. I would never have done that with the colour that my hair was before. I know that I am going to get root growth, but to be honest that excites me because I can then see how quick my hair is growing and I shall just pop back to the hairdressers for them to touch it up… felt the best I have since this all started, I suppose its really a confident thing and I am starting to get really fed up with wearing a wig 🙂

Good Luck

Mandy x

[mandyphillips41Participant]

Hi Dawn
Thanks for your message. Well yes I am back at work and last week found myself in tears and it was my daughter whom said to me that I was expecting too much from myself and because I was unable to do what I expected to, then I broke down and felt useless. I worked too many hours each day too. I am self employed so I am going to take on more staff and take more of a back seat (fingers crossed because that's the plan). I do hope everyone is doing well at the moment
Love Mandy x

[mandyphillips41Participant]

Hello All

Well I do hope that I will be able to work my hands as I was planning on going back to work this week after the work but typing this is making me thing differently after reading some of the comments…. hope I can prove everyone (including myself) wrong as I am so fed up. Its been 10 months since I last worked and I am more than ready for it.
Oh well… what will be will be!!
As Tom says – 'Onwards and Upwards'

Thanks for your comments and advice as always

Mandy x x x

[mandyphillips41Participant]

Hi Eve

I think I would have had to have said something to the nurse – the sarcastic B***h is there really any need to be so unkind to someone that is so poorly!! It makes my blood boil and we just dont need it. Good luck with everything xx

[mandyphillips41Participant]

Thanks Eve & Tom

Tom, Yes they are doing both on the same day – I cant stand the pain a day longer, I realise it may be a struggle for a few days with both hands bandaged but hey ho seems nothing compared to some of the things I have been through this past year and I am desperate to get better and feel normal again.

Once this is sorted I then have to go for a brain scan as I have fluid leaking from my spinal chord and they think this may be why I am in such pain also with the joints in my legs – it really does seem that as soon as they fix one thing another is broken… still as you say Tom onwards & upwards!!!

Mandy xx

[mandyphillips41Participant]

Hi. Sorry you didn't give your name. How old is your mum? Yes I still have trouble sleeping sometimes I don't even bother going to bed. But, just lately I have stopped sleeping in the day (that's another battle to stay awake). Lol. Can't win! But I go to bed at 8 pm and generally sleep till about 2pm then I get up & make a drink then lay on the couch watching the tv. Hopefully this will improve. Good luck to you & your mum. If you ever want to know anything just ask if I can help I will. They told me I was one of the unlucky ones and had just about everything but the most important advice I can give is to try and stay positive. Mandy xx

[mandyphillips41Participant]

Hi all

The pain I was describing in my legs is still bothering me. The hospital told me that's it's caused by the chemotherapy that is probably still in my body and I need to keep drinking lots of water to flush it out
Now I also having problems with my right arm and hand. Yesterday I couldn't get out of the bath as I had no strength in my arms to push myself up. They also feel like they have pins and needles and like a dead feeling in them.
Has/is anyone else experierencing this – I feel useless at the moment
Thanks Mandy xx

[mandyphillips41Participant]

Hi Megan
Thanks for replying. I went for a scan on Monday but that didn't show anything sinister which has at least given me peace of mind. Spoke with the oncology team in Liverpool and they suggested its probably still the chemo in my system and to keep drinking lots of water to flush out my system and also a little light exercise – so I have been walking a bit more – then I am exhausted haha. Can't win. Still staying positive
Thanks again – take care
Mandy xx

[mandyphillips41Participant]

Hi John
Yes the staff at the Royal were amazing!!
Thanks for the advice over my legs. I have just come to bed and the pain has already started
I have also been advised to drink lots of water to flush the rest of the chemo put of my system so I doing that
Really really looking forward to my hair growing back now it gets me down when I look in the mirror but I suppose that's a woman vanity thing – I just really miss it!
Anyway as they say 'onwards & upwards'.
Glad you are doing well – carry on !!!! thanks again
Mandy x

[mandyphillips41Participant]

Hi everyone

I have nit been on here for a while, well after saying how well I was feeling in the hospital after the SCT – then I got it!! My mouth started first and I can honestly say that I am fanatical with my mouth and my teeth I always have been! But I still got the ulcers so I couldn't eat or drink – that lasted about 4 days or so then I was sitting on the toilet for the best part of 2 nights I was so exhausted and the pain was unbearable!!
Saying all that I got through it and was even allowed home a week early so I was only in for 3 weeks instead of the planned 4.
Since being home I am doing ok (ish) I am very very tired and sleep a lot but hardly ever wake up feeling refreshed but I have been told that is what fatigue is.
I have posted another topic about my legs, when I am in bed they are very painful and heavy, I went for an MRI scan on them yesterday as the doctor thought it may be spine compression from the Kyphoplasty operation that I had done just prior to my SCT but it wasn't so we are still left wondering on that. I am going to try an exercise bike to see if it is bad circulation.
Apart from the legs and a little anxiety I think I am doing ok.
I am hoping to try to go back to work in about 6 weeks just for a few hours a day and see how I get on.
I truly hope everyone else is doing the best that can be expected at whatever stage you are at

Much love to you all

Mandy

[mandyphillips41Participant]

Hi Mothas

Unfortunately I do not had a good view of the Mersey. But the rooms with the view are half the size of mine so I decided I would much sooner have the space.. 🙁 SHAME

MANDY X

[mandyphillips41Participant]

Good Evening everyone

Well I will have been in for a week tomorrow and to be honest I don't know where the time has gone.. I had my SCT on Thursday and so far – so good!! Couldn't feel better if I tried. Its a real weird feeling laying/sitting here waiting to feel poorly.. when you just feel good.
Sorry I have not much to tell but it really is as simple as I have said – all done!!

Talk Soon

Mandy x

[mandyphillips41Participant]

Thanks Tom.. I have been using the mouthwash also like its going out of fashion because mouth ulcers is something I have always suffered from and that scares me hence I also use the mouthwash and the Nystatin. Right nurse has give me a sleeping tablet as I haven't had much sleep the past 2 nights.. good night everyone
Mandy x

[mandyphillips41Participant]

I am eating a lot but mostly all of the wrong things – I have developed a terrible sweet tooth – got to stop it I dont want to gain the weight… I will keep you posted about the x-ray – fingers crossed I am right and the doctor is wrong. hehehe, Mandy x

[mandyphillips41Participant]

Thanks Tony.. thats very reassuring – about the weather at least.. haha. I love the outdoors and have such a happy social and family life I am not going to let anything take that away from me and I am going to be a Nanny in October so thats something worth fighting for 🙂 Its also my 50th birthday in October so that 2 good things to get better for..
Mandy x

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