mango174 started the topic Myeloma And related problems in the forum General 10 years, 4 months ago
has anyone with myeloma experienced problems with sinusitis and pseudomonas infections
since my SCT last November I have regular spells of both the above, with the periods between infections decreasing over time most recently the current bout started mid September and in spite of three different antibiotics just can’t shake it off. is familiar to…[Read more]
mango174 started the topic Trails. in the forum General 11 years, 11 months ago
Hi I have been offered a trail via Addenbrooks on a Phase II study of the use of Lenalidomide with patients who have two sct treatments, one their own and a second from a donor,has anyone been offered anything similar or aware of this trail?
I'm up for it even thought there are risks with some of the intervening drugs used, but on the plus…[Read more]
mango174 started the topic Velcade side effects?. in the forum Side-effects 11 years, 11 months ago
Hi I'm on velcade+cyclophosphamide+dexamethasone and apart from a huge 'moon face' have this constant dry throatand a sinus blocked up feeling all the time anyone else with similar problems?
mango174 replied to the topic 1st relaspe in the forum Newcomers 12 years, 1 month ago
Hi Trish I'm finding that as I'm working throught the cycles I'm finding the tiredness & fatigue more prominent but I'm still full time working ansd find after tea I'm sound asleep much my Lits indiferance no trouble sleepimg throught the night.
I have the injection subcutaneously and haven't had a problem apart from slight brusing around the…[Read more]
mango174 replied to the topic Croaky/husky voice on Dex in the forum Side-effects 12 years, 1 month ago
Hi,/I'm on Dex + velcade just on 2nd week of third cycle, since starting my throat is alway croaky & dry especially in the morning , odd tastes and a husky voice and I'm very prone to soar throaty coughts first cuppa tea in the morning usually helps although even that dosen;t taste right!!!
hang in there never give up keepp safe
Mango…
mango174 started the topic 1st relaspe. in the forum Newcomers 12 years, 1 month ago
Hi I was diagnosed in October 2010 and although not fully clear felt really well rom June 2012. only for 'Arnie' to be back with a vengance October-November 2012. so I'm now on Velcade + cyclophosphamide+dexamethasome )+ others cycle 3 of possibly 6-8 no (which appears to be controling things) anyone else on this ?
I find I'm very fatigued &…[Read more]
