Manu

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  • #143352

    manu
    Participant

    Ian,

    Like you after the initial treatment period I was 100% free of myeloma. I understand the chemo is to completely clear the body of any lingering cancer prior to the STC. Mine was 2.5 years ago and I have been free of MM since then

    Good luck

    Tim

    #142463

    manu
    Participant

    Samella,

    Like all of us in this club the diagnosis comers as a shock. It is good that you have reached out through this forum where you will receive support from people who are going through or have been through treatment.

    Tim

    #142330

    manu
    Participant

    At the age of 67 two years ago I was diagnosed with MM located in my spine. I was in total agony for a number of months unable to walk without the assistance of my wife, it was so bad my grand children would not visit as it upset them to see their very active grandfather in agony. I had a cycle of VTD over 6 months after 4 months my consultant was waiting to see my wife and myself, I thought it was bad news, but she told me the myeloma had almost disappeared but I was still in pain walking with the aid of a frame. Following from that in late January 2019 I had my STC. Eventually I was able to walk around again and in fact I now go on walks in the countryside where we live and play golf again. 3 months ago my consultant set me on a course of maintenance medication Lenalidomide. A check up this week confirmed my bloods were perfect as my consultant remarked. It was not easy when lying in bed with any movement resulting in agonising pain but I was determined not to give in.

Viewing 3 posts - 1 through 3 (of 3 total)