[marialParticipant]

Thank you once again for your great support and information. This is priceless for me. No doubt a huge part of my sleeplessness is due to anxiety about the MM diagnosis and treatment however fortunately last night the Nytol seemed to take the edge off so was able to get some deep sleep. I generally avoid sugars except for fruit but occasionally indulge in dark chocolate so good to know I should avoid it on my Dex days.
I guess I’ll know at the end of the first cycle how things are looking so currently meditating and focused on a positive healing journey.

So motivating to hear positive stories on this forum

[marialParticipant]

Thank you kh0305, 2nd treatment and will see how I go this week. Not allowed CBD oil after all but they have recommended Nytol (a herbal sleep support) from the chemist which doesn’t interact with the meds, so will try that. It is certainly a journey and one I’m still trying to navigate. x

[marialParticipant]

Thanks so much Mulberry. I managed to get at least four hours straight last night so feeling a little more human. I’m in for next 2nd treatment tomorrow and will ask the nurses about something to help me. It’s so reassuring having a wonderful community here to get some of the practical tips as well as support!

[marialParticipant]

Thank you Tony, I must say that the forum has become an extremely useful resource and support from others going through this. I do have a question around the use of CBD oil to help with sleep as I’ve not been able to sleep well since my first treatment last Wednesday. I’m on VTDD and there is so much conflicting information online, I’m not sure if it’s worth taking CBD to help me sleep. Has anyone had any experience with this and should I post this somewhere else on the forum?

Really appreciate all your support!

[marialParticipant]

Thank you kh0305, it’s now my third day since I started and apart from dex insomnia which hopefully I won’t have this evening (no DEX today), I seem to be doing ok but don’t want to fall into a sense that this is it. Can anyone tell me whether the side effects get worse over time?

[marialParticipant]

Thanks Dawn, the journey starts on Wednesday with my first treatment and I’m certainly going into it with a positive mindset x

[marialParticipant]

Thank you Jane, I too hope I can describe myself as a “fraudulent patient” in time. Crazy thing being I feel well, no pain or other symptoms so hope this continues.

I have looked at the local support groups and although there’s not one in Richmond, there are a couple not too far away so may explore this once I know how I react to the treatment.

This forum has already been so valuable and I appreciate the time people have taken to respond. Thank you!

[marialParticipant]

Thank you Lilli, that’s good advice. I’ve already set up “Project Maria” to track my journey as well as symptoms, medications, clinical trials, etc that are currently underway. It’s a time when I guess being organised is crucial. I had no idea what to expect signing onto the forum but even after a couple of responses I can appreciate the value of connecting with people who are going through this. Thank you so much

[marialParticipant]

Thanks kenb, that is encouraging to hear and will see how I go on Wednesday. Fortunately I am flexible re work so that is one pressure I don’t have although from a mental perspective I feel I need to have the distraction so the MM doesn’t completely take over. Your experience sounds manageable so will stay positive and hope that my journey is also similar from a side effect perspective. All the best with the high dose chemo/transplant and hope you have a long and deep remission.

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