Myeloma Forum | marian | Activity https://forum.myeloma.org.uk/members/marian/activity/ Activity feed for marian. Fri, 17 Apr 2026 20:32:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 93ba777d45c113e24a5f1294accde006 marian started the topic light chains in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/light-chains-2/ Thu, 24 Aug 2017 12:58:59 +0100 Hi

I havn’t been on here for a while.  Three years ago I was diagnosed with SMM and kept fairly well.

I am now more tired and am now struggling to understand my blood results. Paraproteins 48,g/l.    Hb 10.8 ? I think that is ? borderline.  Free lambda light chains 92.7mg/l.  This what I don’t understand and should I know the ?? ratio  wit…[Read more]

]]> ed365ee5ccea3d1cf93b0134ccbdb4c7 marian replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/page/2/#post-130245 Thu, 27 Oct 2016 21:15:17 +0100 Hello Heather

Thank you for your reply.  It was very useful.  I don’t have severe back pain like you but enough that I’m waiting for an MRI scan and an Osteoporosis test.

I have heard there are some centres that give treatment earlier rather than later, have you or anyone else heard of that?

Anyway Thanks again and good luck with your t…[Read more]

]]> 5d45cc53a679105a4628f48baf267182 marian replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/#post-130243 Thu, 27 Oct 2016 16:34:24 +0100 Hello Smoulderers

I was on here a year ago.  Usually very cheerful but nowf feeling a bit down.  Two years ago my paraproteinss were 25, last year 33 and this year 43.  What I have is Asymptomatiic Myloma, asymptomatic because my other blood results are OK.  HB 117 but not falling.

I get very tired and have back pain and some dizziness.  My GP i…[Read more]

]]> cd664be78eb1855a899110450ff7ac3e marian replied to the topic Treatment for slumbering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/treatment-for-slumbering-myeloma/#post-121900 Fri, 24 Apr 2015 07:53:50 +0100 Thanks for quick reply.  I’m glad you’re not having side effects.  Very reassuring

Marian

]]> 29a596dc392978d696f086c87546a07a marian replied to the topic Treatment for slumbering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/treatment-for-slumbering-myeloma/#post-121898 Fri, 24 Apr 2015 07:33:08 +0100 Dear Sean

I have just joined this forum.  I was diagnosed last year with Smouldering Myeloma.  Like you I was told no treatment until Myeloma proper developed.  I found all the terms re lab tests confusing, but I got a book from the library 100 questions and Answers about Myeloma and it made things much clearer. The ISB no is 97…[Read more]

]]> 2a0b280a2b13200e7fe7b9d1ed9842f5 marian replied to the topic Just joined in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/just-joined/#post-121835 Fri, 17 Apr 2015 17:53:32 +0100 Hello Mike

Thankyou for your explanation.  It was all very clear.  I got a bit lost however with the bit  about the ratio.   I havn’t been given any light chain readings readings, so still not sure how that relates to my Paraprotein reading of 26.4 and total IgG 35.5.

Thankyou for your help.  You’ve been very helpful.

How are you getting on wi…[Read more]

]]> 2ec466a46a58961060b46ef9f6b0ce68 marian started the topic Just joined in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/just-joined/ Thu, 16 Apr 2015 14:48:56 +0100 Hello all

I’ve just joined and am inspired by your entries.  I’m hoping someone can help me.

I had Smouldering Myeloma diagnosed last year.  Biopsy showed plasma cells 16%.  Immunoglobins 35.5 and paraproteins 26.4%.   My recnt readings are similar.   Some of you mention light chains.  I don’t know what that means?

I’ld like to know, could t…[Read more]

]]> cb2f640c61ca51d58813f2b9fb370129 marian became a registered member https://forum.myeloma.org.uk/activity/p/38599/ Thu, 16 Apr 2015 11:07:04 +0100 0