markd replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS 9 years ago
Hello. I just wanted to say that these notes really give me hope and comfort, thank you. I am very up and down at the moment as a relatively new smoulderer. I hope you are all doing ok. Very best. Mark
markd replied to the topic Smouldering and lifestyle in the forum Smouldering myeloma / MGUS 9 years ago
Thank you so much for your responses. I’ve shared them with my wife as well. Incredibly helpful and one of the great things about this is the way people are so willing to share their thoughts and experiences to help others – and it really does help. Thank you so much.
markd replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
Hi there, thank you so much for this reply and your reply to my other post: I really appreciate you taking the time to send these responses. It helps so much. It’s definitely the bit between my ears I am finding most difficult!
To be honest the consultant didn’t say anything about water so I will now take that up! I have never drunk enough water…[Read more]
markd started the topic Smouldering and lifestyle in the forum Smouldering myeloma / MGUS 9 years ago
hi all. I was wondering if anyone had any advice about how to approach eating, drinking, stress etc…as a smoulderer? My docs and consultant basically say “look after yourself” but what do they really mean? How much exercise should I do? My nurse said “don’t play rugby or go skiing”. I don’t play rugby but I do go skiing every year, so do I give…[Read more]
markd replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
Thank you Rebecca and Nicky for your posts. I really appreciate it. I’m still in a bit of a state of confusion but your words are so helpful.
thank you so mich
mark
markd replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
Dear C
thank you so much for your response – it was so helpful and kind of you.
Everything you say makes such a lot of sense. To be honest since finding out about this on weds after an initial couple of days finding stuff out this weekend I have just been trying to forget about it – I’ve been laid low with a cold or flu so it’s been a funny…[Read more]
markd replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
<p style=”text-align: left;”>Dear Rebecca</p>
<p style=”text-align: left;”>Thank you so much for your reply and such incredibly helpful advice. I’m so grateful to you. What you say makes so much sense. My head has been all over the place but reading your and the other response has been so helpful. I feel like I am thinking a bit straighter now and…[Read more]
markd replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
By the way I should have also said, I am thinking of you and sincerely hope the ultrasound doesn’t come up with something unpleasant. The way you told your story is really inspiring and gives me hope and energy. I try to think optimisitically though in reality I am just coming to terms with this.
So grateful to you
markd replied to the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
Thank you so much for your responses. It is so good of you and has really helped me. I’m 48 and to be honest I dont know what to think. But I’m very scared.
the consultant seemed slightly as though I was over reacting and maybe that is a good thing. But being told you have cancer seems a pretty frightening thing!
I had the bone marrow biopsy and…[Read more]
markd started the topic Confused, worried, can anyone help in the forum Newcomers 9 years ago
Hi. I’ve been told today that I have smouldering myeloma. My blood protein is 28. This has been a roller coaster few weeks since the high protein level was found just before Christmas. I’m told there is myeloma in my bone marrow but it is not apparently causing damage. The consultant said it was not a time for ‘doom and gloom’ but being told you…[Read more]
markd became a registered member 9 years ago