markjholden replied to the topic Dexamethasone and mood in the forum Side-effects 8 years, 7 months ago
Sorry in paragraph 2 I meant good things happen, not old things.
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markjholden started the topic Dexamethasone and mood in the forum Side-effects 8 years, 7 months ago
i just wanted to raise awareness of the ups and downs of dexamethasone. I take 40mg on Friday mornings. By lunchtime I feel I can do anything, I don’t sleep a wink on Friday nights but once I resigned myself to this I find it is good catching up time for TV, emails etc just keep away from Amazon and ebay!
saturday is my true Dex day, for some…[Read more]
markjholden replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects 8 years, 10 months ago
Liz
I have just re-read my posting and I seem to have said the complete opposite to what I meant.
Mr Malloy was brilliant with me. I meant to say I cannot recommend him highly enough. Continuous back pain is horrible and I’m sure it is making life difficult for both of you.
Give him a try, he is always very busy though.
Best wishes to you and…[Read more]
markjholden replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects 8 years, 10 months ago
Liz
I have just re-read my posting and I seem to have said the complete opposite to what I meant.
<p style=”text-align: left;”>Mr Malloy was brilliant with me. I meant to say I cannot recommend him highly enough.</p>
<p style=”text-align: left;”>Continuous back pain is horrible and I’m sure it is making life difficult for both of you.</p>
<p…[Read more]
markjholden started the topic Peripheral neuropathy and the DVLA in the forum Side-effects 8 years, 11 months ago
hello I’m Mark
diagnosed June 2014.
STC Feb/Mar 2015
Remission until May this year.
Can’t say I wasn’t gutted when I found out it was active again but I don’t have the excruciating back pain I had the first time round (I cannot recommend Mr Sean Malloy at the Royal National Orthpaedic Hospital,Stanmore).
what I have had continually is…[Read more]
markjholden replied to the topic Stem cell transplant – share your experience? in the forum Newcomers 8 years, 11 months ago
Hello, I’m Mark
i don’t want to put a damper on things but I had my STC in Feb ’15 and was in remission until May this year, so 14 months. I am now on second round of chemo and go to see transplant consultant in July to decide how to proceed.
I was gutted when it came back so soon as I had it in my head that the STC would give me 5 years…[Read more]
