Myeloma Forum | markjholden | Activity https://forum.myeloma.org.uk/members/markjholden/activity/ Activity feed for markjholden. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e4508103ecc3dc4880400bf68ffd1150 markjholden replied to the topic Dexamethasone and mood in the forum Side-effects https://www.myeloma.org.uk/forums/topic/dexamethasone-and-mood/#post-130169 Sun, 23 Oct 2016 20:15:32 +0100 Sorry in paragraph 2 I meant good things happen, not old things.

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]]> 4f8fb20387d58ceabb5d620a9faa59ac markjholden started the topic Dexamethasone and mood in the forum Side-effects https://www.myeloma.org.uk/forums/topic/dexamethasone-and-mood/ Sun, 23 Oct 2016 20:13:17 +0100 i just wanted to raise awareness of the ups and downs of dexamethasone. I take 40mg on Friday mornings. By lunchtime I feel I can do anything, I don’t sleep a wink on Friday nights but once I resigned myself to this I find it is good catching up time for TV, emails etc just keep away from Amazon and ebay!

saturday is my true Dex day, for some…[Read more]

]]> 1b1df4bfb0517a9736ec712bc6645efe markjholden replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-129035 Mon, 01 Aug 2016 06:24:46 +0100 Liz

I have just re-read my posting and I seem to have said the complete opposite to what I meant.
Mr Malloy was brilliant with me.  I meant to say I cannot recommend him highly enough. Continuous back pain is horrible and I’m sure it is making life difficult for both of you.

Give him a try, he is always very busy though.

Best wishes to you and…[Read more]

]]> a3b5aa6113a2e7dff27976a7d3cbc97c markjholden replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-129035 Mon, 01 Aug 2016 06:24:46 +0100 Liz

I have just re-read my posting and I seem to have said the complete opposite to what I meant.
<p style=”text-align: left;”>Mr Malloy was brilliant with me.  I meant to say I cannot recommend him highly enough.</p>
<p style=”text-align: left;”>Continuous back pain is horrible and I’m sure it is making life difficult for both of you.</p>
<p…[Read more]

]]> 6b8e670304ec14b3a3b4ad06e45c930c markjholden started the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/ Fri, 01 Jul 2016 23:37:42 +0100 hello I’m Mark

diagnosed June 2014.

STC Feb/Mar 2015

Remission until May this year.

Can’t say I wasn’t gutted when I found out it was active again but I don’t have the excruciating back pain I had the first time round (I cannot recommend Mr Sean Malloy at the Royal National Orthpaedic Hospital,Stanmore).

what I have had continually is…[Read more]

]]> 3cb680e900f3fc823b84d1fbe42622df markjholden replied to the topic Stem cell transplant - share your experience? in the forum Newcomers https://www.myeloma.org.uk/forums/topic/stem-cell-transplant-share-your-experience/#post-128514 Sat, 25 Jun 2016 22:59:48 +0100 Hello, I’m Mark

i don’t want to put a damper on things but I had my STC in Feb ’15 and was in remission until May this year, so 14 months.  I am now on second round of chemo and go to see transplant consultant in July to decide how to proceed.

I was gutted when it came back so soon as I had it in my head that the STC would give me 5 years…[Read more]

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