[markjholdenParticipant]

Pippy

I’ve had two SCTs and I wasn’t given any maintenance drugs. I’m not sure if you mean lower dose chemotherapy or the standard penicillin, anti fungal and anti viral drugs that we all get?
I’m sorry not to be better informed.
I wasn’t so lucky with the transplants as I didn’t really get any significant remission and was back on chemotherapy within 18 months of both. They have assured me that having a donor STC that is 100% it improves the response to further treatment.

I think you are right in that they tend to react to the blood results and then treat it.

Best wishes to you both

Mark

[markjholdenParticipant]

Sorry in paragraph 2 I meant good things happen, not old things.

m

[markjholdenParticipant]

Liz

I have just re-read my posting and I seem to have said the complete opposite to what I meant.
Mr Malloy was brilliant with me.  I meant to say I cannot recommend him highly enough. Continuous back pain is horrible and I’m sure it is making life difficult for both of you.

Give him a try, he is always very busy though.

Best wishes to you and your husband.

Mark

[markjholdenParticipant]

Hello, I’m Mark

i don’t want to put a damper on things but I had my STC in Feb ’15 and was in remission until May this year, so 14 months.  I am now on second round of chemo and go to see transplant consultant in July to decide how to proceed.

I was gutted when it came back so soon as I had it in my head that the STC would give me 5 years remission but now I find that 18 months is the average, so I guess I’m average.

The descriptions above are correct and the Specialist Nurses know their stuff.  I was in for 4 weeks and went back on a phased return to work in the May.

One thing I would say is don’t worry about forcing yourself to eat as your body will tell you when it’s ready, I found myself dreading meal times. Small and often if you can.

You will learn a lot about yourself when you go through it and you will find you are stronger than you think.

Best wishes

Mark

 

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