[martinwardParticipant]

Hi Jackie

I am sorry to hear your mum is in dialysis. Yes, I have been lucky in that I have been able to recover much of my kidney function from the 11% when I was diagnosed in August 2009. Being really honest this has been a combination of good luck and the implementation of a long term strategy to regain health. I cannot reply to you quickly as it will take me a while to write down my approach (I am a carer as well as having myeloma and this takes much of my time). I will respond fully within the next couple of days.

Just a quick note on fluids. Some of us on diagnosis have very poor kidney function but our kidneys still pass significant amounts of urine (mostly water). This means it is both possible and advisable to flush the kidneys by drinking lots of water. However, when all the tubes (nephrons) are blocked the kidneys cannot get rid of the water and it builds up in the body. It is for this reason your mum is limited to 1 litre a day. More on this later.

Kind regards

Martin
PS My response will be too long to post here. If you can text me an email address to 07968483337 I will respond fully with my long-term renal strategy.

[martinwardParticipant]

Hi Dee
I am now 58 and was diagnosed very late in disease terms 3 years ago this month. When I was admitted into hospital my kidneys were down to 11%. After two lots of plasma exchange I was told I would be on permanent dialysis.
I have been extremely lucky because my kidneys have recovered steadily over the past three years. I am living proof that renal recovery is possible. My consultant told me to drink 3 litres of water a day and I am sure that has helped.
The decision on the type of dialysis is very personal as both types have their pros and cons. I opted for peritoneal dialysis in the end because it can be done at home, but I was lucky to escape the operation as my kidneys started to improve.
Cancer treatment is not nice but manageable. I am also a carer and had to help my wife even though I have recently been on treatment. I say this to encourage you that a positive attitude and sheer determination can work wonders in terms of recovery. I really hope your Dad improves. Try not to worry – there is lots of support available for the asking.

Kind regards

Martin

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