hello Dave
i`m 56 years old, never been ill in my life, except for man flu where i would just go to bed for a day and sweat it out.
then in august i was breathless, ended up in A&E, and after lots of scans was diagnosed with cardiac Amyloidosis, similar to Myeloma but not quite the same.
The shock was the biggest thing of all to get over, here i was, never been seriously ill ever, and suddenly i have a rare and life reducing disease inside me!
my urine is frothy, i have trouble with my kidneys (or so i thought). I have had every scan and test there is for every vital organ.
when I asked my amyloid specialist about my kidneys he said there was nothing wrong with them, it is my heart which can`t pump the blood round my body properly, let alone pump the fluid out.
experimenting at home i have found the less i drink the better i feel.
i have found that drinking no more than 3 cups of tea or coffee a day plus a mugs worth of water when taking medicines makes my kidneys work better.
perhaps keeping a note of your fluid intake, and altering the amount each day may help you.
its trial and error i
m afraid.
the mental shock takes time to get over but you will, there comes a day when you accept your situation and start becoming more positive in your thinking/attitude towards it.
just out of curiosity, have your legs, ankles, feet swelled up?
regards
matt
-
This reply was modified 2 years ago by mattl.