Hi Nordic and everyone else involved in this topic.sorry this is such a long response I didn’t realise how much I had to say! I had my first dose of belantamab at the end of nov 25 after my first line of dara/ lenelidomide stopped working,my paraproteins climbed back to double digits as did my light chains and increased size of lesions in various parts including femur and spine. Great improvement as numbers began dropping. However only had my second dose of belantamab yesterday (although weekly velcade injections and 20 mg of dexamethasone )due to eye problems, grade 3 impact on corneas, dry eyes and the start of cataracts, I’m having 3 weekly examinations at specsavers and finally they confirmed sufficient improvement so treatment could restart. I also have been referred to ophthalmology for assessment but who knows when that may be.i did use a cold eye mask yesterday during the infusion as some people on the trials felt they helped but there is no clinical evidence to support this. Even with the eye issues I do feel very positive about belantamab and the consultant emphasises that 12 week gap is fine as it will still continue to work. The only pain is weekly velcade and 3 weekly bloods, eye tests and consultant appointments so life seems to revolve around the hospital once again. Good wishes to all of you and anyone considering this treatment.
