Myeloma Forum | JohnMurphy | Activity https://forum.myeloma.org.uk/members/meeuu/activity/ Activity feed for JohnMurphy. Sat, 11 Apr 2026 01:04:11 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7dac9fa06b926b10ee4fb2d6354884f0 meeuu replied to the topic Seizures in the forum Side-effects http://www.myeloma.org.uk/forums/topic/seizures/#post-111750 Tue, 07 Jan 2014 12:00:18 +0000 Thank you Sandra.

]]> a9c4eed0b8646ec584a802197ffc003e meeuu replied to the topic Seizures in the forum Side-effects http://www.myeloma.org.uk/forums/topic/seizures/#post-111739 Mon, 06 Jan 2014 15:01:37 +0000 Thank you for the reply Megan.

]]> 6769417a9650cfe6b9e7eefcf5ee5933 meeuu started the topic Seizures in the forum Side-effects http://www.myeloma.org.uk/forums/topic/seizures/ Sun, 05 Jan 2014 17:52:50 +0000 Hello all.
After a fairly long absence on this forum (because my wife has been doing very well on Valcade for the past 3 years) I now find I need to seek your opinions/experiences. Quite suddenly on New Years Eve (mid-afternoon) while preparing a meal, she began to talk incoherently and eventually became unconscious. She then had a seizure that…[Read more]

]]> 6f7c87ccdf0a3636ad0ac4c123efcea7 JohnMurphy replied to the topic Velcade and Cold Feet in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-and-cold-feet#post-104846 Sun, 21 Oct 2012 21:10:59 +0100 Hi Debs and all other kind folks.
My wife, Cecilia, has been on her current treatment of Valcade for more than 12 months now and is doing quite well TG. She has had PN for quite a while (including the dreaded cold feet) but since she went unto "Subcut" earlier this year, her PN has diminished greatly. Now she still has coldness in her feet and…[Read more]

]]> 72d2c6e422b15a7a811cab6db9107ec7 JohnMurphy replied to the topic Stephen has gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/stephen-has-gone/page/2/#post-107793 Fri, 21 Sep 2012 21:44:03 +0100 Dear Gill,
I am so very sorry to hear of Stephan's passing. You are in my thoughts and prayers.
Love,
John

]]> 337a3063dd2c2e8d28235bd476eaa3d1 JohnMurphy replied to the topic And the GOOD news is in the forum Off topic http://www.myeloma.org.uk/forums/topic/and-the-good-news-is#post-110443 Sat, 25 Aug 2012 10:36:46 +0100 Hi David,
Just to let you know that you have another sincere Cyberfriend here wishing you well.
John

]]> 86a3f1d918cfdad7c3c63fd686b55794 JohnMurphy replied to the topic Bridget... 10:30am today and beyond in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bridget-1030am-today-and-beyond/page/2/#post-107657 Mon, 09 Jul 2012 11:48:50 +0100 Thank you Dai for starting this thread and allowing us (Bridgets friends) to honour her memory. I have been away for the past few days, hence my late response.As with so many others, I never had the pleasure of meeting Bridget, but yet I always felt that she knew what I needed to know when I asked a question. In other words, she inspired me to…[Read more]

]]> d0029621a3baaf5fc8d03e4fa306ff8d JohnMurphy replied to the topic Brocho - Bridget Rochfort in the forum General http://www.myeloma.org.uk/forums/topic/brocho-bridget-rochfort/page/2/#post-92902 Thu, 21 Jun 2012 20:08:24 +0100 Dear Siobhan,
I am so saddened to hear of your Mum's passing. The sentiments expressed so eleoquently by other contributors are a testament to her wonderful and many contributions to this forum. Bridget has been a great help to me and so many others over the past number of years and I know now that her work on this Earth is done. I am so sad at…[Read more]

]]> 50b2435c78ff593720c38e3c14e01109 JohnMurphy replied to the topic Velcade Experiences in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experiences#post-104499 Tue, 29 May 2012 11:41:00 +0100 Hi Deborah,
I just want to let you know that Dai has (as is usual) given a great account of Valcade. My wife, who is 58 yrs old,has been on Valcade since last Nov and is doing very well. She was diagnosed 6 yrs ago and has had all the usual treatments (SCT, Revlimid, Thalidimide etc and many variations). Initially the Valcade was administered…[Read more]

]]> 87444d890f4b94faf8171125e16b61f4 JohnMurphy replied to the topic Bridget in the forum Treatment http://www.myeloma.org.uk/forums/topic/bridget#post-99185 Fri, 20 Apr 2012 12:40:43 +0100 Hello Tom,
I would be grateful if you would pass on my very best wishes to Bridget. Whereas I am on Facebook (very rarely) I could not find the MM UK website. Perhaps you could help me here?. Furthermore, I have been rather slow to contribute as much as I used to on this forum, but time is a bit hard to find. I do, however, regularly look in to…[Read more]

]]> 2147f261c95f7d63739fb5807aea6f33 JohnMurphy replied to the topic HERE WE GO AGAIN !! in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again-#post-98749 Mon, 13 Feb 2012 19:46:32 +0000 Hi Bridget,
I have'nt been contributing to here for a good while but I do monitor most weeks. So sorry to hear that things are gone a bit awry, but knowing you (from the many wonderful and inspiring contributions that you have made) I'm sure you will overcome this latest hurdle. Wishing you well and thinking of you,
John

]]> 2945357d78b6c9aeaf1e1a0631498fbf JohnMurphy replied to the topic Advice on Velcade please in the forum Treatment http://www.myeloma.org.uk/forums/topic/advice-on-velcade-please#post-98375 Thu, 08 Dec 2011 23:14:00 +0000 Good evening Mari.I have been caring for my wife for more than 5 years now, a lot of the "Jargon" goes over my head, so I will only tell you that she is on Velcade for over a year now and is doing quite well. In fact, compared to last Christmas, when she was just two months into that particulat treatment, she has certainly improved in strength and…[Read more]

]]> e137558785f6af864114b604dd4d8742 JohnMurphy started the topic "Subcute". in the forum General http://www.myeloma.org.uk/forums/topic/subcute Wed, 26 Oct 2011 19:59:50 +0100 Hello all you helpfull and delightful people.
I have not been on the forum for some weeks past, although I do read the posts when I can. Anyway, I just want to thank you for posting the info on subcutaneous injection of Valcade. As you probably know, my wife Cecilia,is now in her 6th year as an MM "member" and had a STC some years ago. She was on…[Read more]

]]> 420d92d2ae50b362cfdddf7414913268 JohnMurphy replied to the topic Collapsed Veins? in the forum Related conditions http://www.myeloma.org.uk/forums/topic/collapsed-veins#post-105607 Mon, 05 Sep 2011 14:43:01 +0100 Thank you, Eve, Bridget and Keith. Cecilia had the Hickmann Line installed some years ago and it caused fierce infection problems eventually. I had forgotten about the Picc line, so I will ask about it next time, and let you know of the outcome.
Kindest regards,
John

]]> 8575f3242a346020caed24fb43e0ba4e JohnMurphy started the topic Collapsed Veins?. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/collapsed-veins Sun, 04 Sep 2011 20:10:26 +0100 Hello good people,
I have'nt been posting here for a while, although I still look in fairly regularly. My wife, Cecilia, has been doing quite well on Velcade since last November (after a somewhat difficult start) and in effect, does not experience any more side effects, eg PN, nausea etc. We attend the clinic every two weeks for treatment and all…[Read more]

]]> 4ce5870abb74f56036d31e8146a77b44 JohnMurphy replied to the topic Gordon in the forum General http://www.myeloma.org.uk/forums/topic/gordon#post-90948 Mon, 08 Aug 2011 14:13:29 +0100 Dear Sarah,
I am so,so sorry.
John

]]> c1fcbe5842ba10447137c28f0c61e810 JohnMurphy replied to the topic Velcade - Cycle 4 - Update in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade-cycle-4-update#post-97858 Wed, 27 Jul 2011 18:07:03 +0100 Hello there Dai,
That is a pretty detailed account, well done on your attention to detail. My wife, Cecilia, has been on Valcade since last November and she gets an infusion every second Friday (no Dex due to problems with it 2 years ago). Thank goodness she is doing quite nicely now and the dreaded side effects (PN, mouth, nose and eye…[Read more]

]]> 8e6d05c3315f877483681a335a9b096d JohnMurphy replied to the topic A Quick hello in the forum General http://www.myeloma.org.uk/forums/topic/a-quick-hello#post-90660 Sun, 19 Jun 2011 21:57:17 +0100 Hello there Roz and thanks for calling in. Never fear, you will never be forgotten on this great site 'cos you had such an important input. I hope I speak for everybody when I say this. Like you, I have'nt been contributing lately, just too busy, but I do "drop in" for a quick look now and again. I can assure you that the adage "out of sight, out…[Read more]

]]> 00578dec2a9e1ff8cb7fc73c76bb2248 JohnMurphy replied to the topic Ah Well! in the forum General http://www.myeloma.org.uk/forums/topic/ah-well/page/2/#post-90109 Mon, 04 Apr 2011 11:06:23 +0100 Hello Dai,
That sure is a tough punch. As most other people on here have said, you have been a great inspiration and I'm sure, you will continue to be for a long time to come. My wife is doing very well on Valcade for the past 4 months (and the same drug nearly killed her 3 years ago!) so I urge you to "take heart" and continue the good…[Read more]

]]> 49779117eb17cd0cd0ab4a15d0f5648b JohnMurphy started the topic This might bring a smile. in the forum Off topic http://www.myeloma.org.uk/forums/topic/this-might-bring-a-smile Mon, 28 Mar 2011 11:00:05 +0100 Subject: The Black Bra

The Black Bra (as told by a woman)

I had lunch with 2 of my unmarried friends.

One is engaged, one is a mistress, and I have been married for 20+ years.

We were chatting about our relationships and decided to amaze our men
by greeting them at the door wearing a black bra, stiletto heels and a…[Read more]

]]> 7f179fb22c2c56b7f833e7c0ffef1da3 JohnMurphy replied to the topic Big hello one and all in the forum General http://www.myeloma.org.uk/forums/topic/big-hello-one-and-all/page/2/#post-89990 Tue, 15 Mar 2011 20:59:14 +0000 Hello there Roz, and I'm sure glad that that you still "drop in" from time to time. Just like everone else on here, I often think of you and your many contributions. Please keep them coming.
Kindest regards,
John

]]> eafeb56774a5f4f3054666cc1c238fa5 JohnMurphy replied to the topic Need a laugh? in the forum Off topic http://www.myeloma.org.uk/forums/topic/need-a-laugh#post-108904 Tue, 08 Mar 2011 21:16:53 +0000 Flippin' brilliant. You're a tonic!

]]> 5c9e5ab78586b8afabfb828b476811c4 JohnMurphy replied to the topic Friendship in the forum Off topic http://www.myeloma.org.uk/forums/topic/friendship#post-108892 Tue, 08 Mar 2011 21:12:16 +0000 Hi Roz,
When I saw this poem I thought of you (in the nicest possible way), and I think that you will see the humour and honesty in it, that I believe you always portray in your posts.

WHEN I AM AN OLD WOMEN

When I am an old woman I shall wear purple
With a red hat which doesn?t go, and doesn?t
Suit me
And I shall spend my pension on…[Read more]

]]> 3e06835df9f7b1df6fcd22696e3cc651 JohnMurphy replied to the topic Friendship in the forum Off topic http://www.myeloma.org.uk/forums/topic/friendship#post-108890 Mon, 07 Mar 2011 10:14:54 +0000 Good grief Roz, what a wonderful gift you have!. Such gorgeous sentiments and a terrific way with expressing feelings. I am lost for adequate words that should thank you for a wonderful posting.
Love and admiration,
John

]]> a52629be005e7df59966c52262800c66 JohnMurphy replied to the topic Velcade in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade1298948366#post-103784 Tue, 01 Mar 2011 17:59:50 +0000 Hello Gill,
My wife Cecilia initially had a fierce time on Valcade and Dex and she was eventually removed from that course of treatment.That was nearly two years ago. Now she is back on it, on a much lower dose and without Dex. So far so good. The current side effects are fatigue, occasional constipation and infections to her nose, eyes and…[Read more]

]]> 371b5dd0401ecb14f884e3e3f4a862b1 JohnMurphy replied to the topic Revlimid & Velcade in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-velcade#post-97133 Mon, 21 Feb 2011 17:31:42 +0000 Hello there Wolf,
My wife attends the clinic just once a fortnight now and she must give blood for the various tests before she gets her treatment of Valcade. We wait for about two hours and then most results come back. Some other test results dont return for a couple of days and only then does her doctor see them. Unless there is something amiss…[Read more]

]]> 67a4f4b05268100a2d54d5b50e7e973b JohnMurphy replied to the topic Velcade Experience? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experience#post-103721 Fri, 11 Feb 2011 20:57:31 +0000 Thats good to know Gill. In the early days Cecilia had a canulla fitted (when she was an in-patient for many months) but eventually it had to be removed because of infections. I will suggest the PICC line on our next visit in a weeks time. This is a great forum. Thank you all.
John

]]> d0e00630087e6e3516206543883d7ad1 JohnMurphy started the topic This might brighten your day. in the forum Off topic http://www.myeloma.org.uk/forums/topic/this-might-brighten-your-day Fri, 11 Feb 2011 10:27:29 +0000 Subject: Disorder In court

These are from a book called Disorder in the Court, and are things people actually said in court, word for word, taken down and now published by court reporters – who had the torment of staying calm while these exchanges were actually taking place.

Lawyer : Are you sexually active?
Witness : No, I just lie…[Read more]

]]> ff14fbaa944f3807535d62797f866028 JohnMurphy replied to the topic Velcade Experience? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-experience#post-103717 Fri, 11 Feb 2011 09:57:59 +0000 Hi Jen,
That is very interesting about the subcutaneously administration (such difyclut slpeling!). My wife and nursing staff are experiencing fierce difficulty in finding a suitable vein in her arms each time we attend the clinic. This has become progressively worse over the past few months (she has been on all the treatment regimes during the…[Read more]

]]> 426fa9a19ea91b2d159df884fcd2d269 JohnMurphy replied to the topic Velcade for a second time, anyone? in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade-for-a-second-time-anyone#post-97026 Mon, 31 Jan 2011 10:18:28 +0000 Hello Jentay,
Yes, my wife Cecilia is now on her second course of Velcade. The first course, which included the dreaded Dex was particularly harsh on her, but it did the business. However, after about three months she had to come off it because the adverse effects were too debilitating. That was about one year ago. Now,after Revlimid for a few…[Read more]

]]> 5ce2b269f8c9f076feb40f987c8707b4 JohnMurphy replied to the topic Ron Cantrill and everyone else :-) in the forum General http://www.myeloma.org.uk/forums/topic/ron-cantrill-and-everyone-else-#post-89684 Sat, 22 Jan 2011 20:50:24 +0000 Hi all,
well, I'm glad to see that I am not the only one losing posts lately.Talk about being paranoid! I thought that you were all ignoring me:-D . Anyway, I submitted two seperate posts since Christmas (ie in Other Topics – new discussion)but neither one has appeared. However, I did reply to a current topic and that appeared ok. I have heard…[Read more]

]]> 2ba400b052c6c9bcc136f5a4ebcb64a7 JohnMurphy replied to the topic Relapse official in the forum General http://www.myeloma.org.uk/forums/topic/relapse-official/page/3/#post-89477 Mon, 17 Jan 2011 19:43:46 +0000 Hi Keith,
Thats tough alright. But, as you can see, there are a whole bunch of good people supporting you. As Sarah has already said, Valcade is doing well as a new drug (my wife is on it after a gap of nearly two years and is doing quite ok, although this time she is not taking the dreaded Dex and is therefore in much better form). So, look up…[Read more]

]]> 8d23c82ed678e56d0d394c2e248a03f8 JohnMurphy replied to the topic Revlimid Maintenance Therapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-maintenance-therapy/page/2/#post-96818 Thu, 13 Jan 2011 00:20:26 +0000 Dear Jo,
My wife, Cecilia, has recently gone back to Valcade at a much lower dose (and without Dex) and is doing fairly well. She has had all the usual treatments, ie SCT, Revlimid etc. Perhaps your consultant might consider previous treatments at a lower dose also.
Regards,
John

]]> e56d6e30129fb154e21c851712f67f55 JohnMurphy replied to the topic First report post SCT in the forum General http://www.myeloma.org.uk/forums/topic/first-report-post-sct#post-89592 Thu, 13 Jan 2011 00:09:11 +0000 That sure is good news David and a nice start to the New Year. Coincidentally, my catchword when I was involved in mountaineering was "Onwards, ever Upwards" and I would regularly say this to the group that I might be leading, as we re-started our trek after a rest break. Funny old world!.
John

]]> d9e5b674328e09358409bd59080ff2a0 JohnMurphy replied to the topic Second hurdle starts tomorrow in the forum General http://www.myeloma.org.uk/forums/topic/second-hurdle-starts-tomorrow/page/2/#post-89399 Tue, 04 Jan 2011 20:18:40 +0000 My dear Roz,
I wish to share in the very kind words and sentiments that have been spoken by your many friends here. I do not have the eloquence that Dai posesses, but I sincerely endorse everything he has written.
I will think of you on this Friday and pray that your pain of loss eases quickly.
John

]]> acc4d2125084283fa8fe276119f03cc2 JohnMurphy started the topic A thought for the New Year. in the forum Off topic http://www.myeloma.org.uk/forums/topic/a-thought-for-the-new-year Sun, 02 Jan 2011 19:29:50 +0000 I read this and thought you all should read it too

Read quietly

To realize
The value of a sister/brother
Ask someone
Who doesn't have one.

To realize
The value of ten years:
Ask a newly
Divorced couple.

To realize
The value of four years:
Ask a graduate.

To realize
The value of one year:
Ask a student who
Has failed a…[Read more]

]]> 34e9eac5dc755a176dc77b802799d357 JohnMurphy replied to the topic Happy New Year to all in the forum General http://www.myeloma.org.uk/forums/topic/happy-new-year-to-all#post-89425 Sat, 01 Jan 2011 13:21:11 +0000 A little bit late, I know, but we wish ALL of you a very happy, hope-filled and prosperous 2011.
Love to all on this wonderful forum.
John and Cecilia

]]> c2487ed58f4023d901b5d3dd6febb077 JohnMurphy replied to the topic The best Christmas present ever. in the forum Treatment http://www.myeloma.org.uk/forums/topic/the-best-christmas-present-ever#post-96874 Mon, 27 Dec 2010 23:10:32 +0000 That is a most wonderful Christmas present!. I am really happy for both of you. Let your New Year begin and enjoy every minute of it.:-)
John

]]> 509fa21ea6bcb0596e04050cb73a3df0 JohnMurphy replied to the topic Teeth in the forum Side-effects http://www.myeloma.org.uk/forums/topic/teeth#post-103685 Sun, 26 Dec 2010 15:48:37 +0000 Good on yer David. It seems as if you are on the up 'n up!. (Who was it that said Guinness is good for you? It seems he was right!!). Happy Christmas.
John

]]> 3f530a00380d5e452ecec38b04d74b1c JohnMurphy replied to the topic Michael passed away at 1.30am today in the forum General http://www.myeloma.org.uk/forums/topic/michael-passed-away-at-130am-today/page/2/#post-89352 Sun, 26 Dec 2010 15:42:52 +0000 My dear Roz,
Just like many more of your friends here, I am heartbroken to hear of your sad news.You are in my thoughts and prayers.

]]> 78200a4d2643f513340f99e2e24b21b0 JohnMurphy started the topic Not Christmassy - but might make you smile!. in the forum Off topic http://www.myeloma.org.uk/forums/topic/not-christmassy-but-might-make-you-smile Sun, 19 Dec 2010 23:00:26 +0000 A Irish man is stumbling through the woods, totally drunk,
> when he comes upon a preacher baptising people in the
> river.
> He proceeds to walk into the water and subsequently bumps
> into the preacher…
> The preacher turns around and is almost overcome by the
> smell of alcohol, whereupon he asks the drunk, 'Are you
> ready to find…[Read more]

]]> fe6893b47551efd360c4637a71bfbc85 JohnMurphy replied to the topic Happy News! in the forum Off topic http://www.myeloma.org.uk/forums/topic/happy-news#post-108644 Thu, 16 Dec 2010 11:13:47 +0000 Dear Gaye,
That is a most wonderful story, particularly at this Christmas time. Your kindness is a wonderful example of the human spirit that seems to be lacking at times in this crazy world. I salute you.
Love
John

]]> 056cf3071bc9ab018cfdef08e699c69a JohnMurphy replied to the topic Michael is dying in the forum General http://www.myeloma.org.uk/forums/topic/michael-is-dying#post-89196 Thu, 16 Dec 2010 11:03:50 +0000 My dear Roz,
I wish to endorse everything that Gill has said. You and Miceal are in my thoughts and prayers.
Love
John

]]> 74b152a137c5a0b2ea69bf4f80fa032b JohnMurphy replied to the topic BAH HUMBUG!!!! in the forum Off topic http://www.myeloma.org.uk/forums/topic/bah-humbug#post-108634 Mon, 13 Dec 2010 20:56:53 +0000 [b]Made a hurried purchse on the internet, then discovered it was a fuse!!!!!!! [/b]
Now you know why us men moan!!

]]> e4718f20e168a14a52d8c0c68e97544d JohnMurphy replied to the topic Do you forget? in the forum Carers http://www.myeloma.org.uk/forums/topic/do-you-forget#post-105815 Thu, 09 Dec 2010 22:44:03 +0000 My dear Min,
Of course you are allowed to get angry. Its an emotion, just like fear,sadness, laughter and love. It means you are human. I have got angry too and have regretted each time that I did, so much. I have been caring (as best as I can) for the past four and a half years and, just like my long suffering but beautiful wife, I get my good…[Read more]

]]> 437703ce70e98e86f60a9c194d60e6a6 JohnMurphy replied to the topic Best friends in the forum Off topic http://www.myeloma.org.uk/forums/topic/best-friends#post-108602 Mon, 06 Dec 2010 20:27:51 +0000 Nice one Roz. Thanks.
John

]]> 462f6f99850f3f31f3065c91910aee59 JohnMurphy replied to the topic Michael's nurse phoned last night in the forum General http://www.myeloma.org.uk/forums/topic/michaels-nurse-phoned-last-night/page/2/#post-89102 Mon, 06 Dec 2010 11:29:44 +0000 Here's raising a glass (well, to be honest, its a cup of coffee) to Roz!. Keep strong Roz, we are all still with you.
Love
John

]]> 82554aeb5e5678bdab202e32edb6abd0 JohnMurphy replied to the topic **YIPPEEEEE** in the forum Off topic http://www.myeloma.org.uk/forums/topic/yippeeeee#post-108588 Sat, 04 Dec 2010 12:44:43 +0000 Is'nt just great to get some good news. Heartiest congratulations Nettie

]]> 83ecda03a30a3fda598a44a6d6511b7c JohnMurphy replied to the topic Snow from my office in the forum Off topic http://www.myeloma.org.uk/forums/topic/snow-from-my-office#post-108573 Mon, 29 Nov 2010 12:23:07 +0000 Excellent photos Min. You should consider making a Christmas Card from them. T'would make it really personal.
Thanks for sharing,
John

]]> 51cab0c09530bb20d82532933fdaea3b JohnMurphy replied to the topic Musings from Ward 9 in the forum Treatment http://www.myeloma.org.uk/forums/topic/musings-from-ward-9/page/2/#post-96646 Sat, 27 Nov 2010 20:24:26 +0000 Well David, apologies for not wishing you well. Somehow I didnt realise you were undergoing your most recent procedure. With a positive cheerful personality like yours, I have no doubt you will get through with flying colours. Dont forget, there will be the odd setback (or ambush!) but remember (as Kipling said)"…be thankful you're living, and…[Read more]

]]>