Hi Tom,

Welcome to the forum. My husband Phil was diagnosed in May this year with MM at the age of 43. He has just completed six cycles of PAD at St. Bart's in London. His stem cells were harvested yesterday and the transplant will go ahead December 17th. With PAD he had very few side effects other than being very tired but not being able…[Read more]

Thanks Ali,

It is really sweet that you remembered the date. Phil and I are looking forward to ticking another stage off on the road towards remission, hopefully tomorrow will be enough to get stem cells for two transplants but they have Phil provisionally booked in for Thursday as well if needed.

The picture of your Mum and Dad is great!

Megan

Hi Carol,

I am so glad to hear it is going well. Starting a new treatment (or treatment for the first time in my husband's case) is always worrying but we have the view that we just need to crack on, so far we have coped and I am glad you are too 🙂

If you have any questions about PAD going forward just let me know and Phil and I will…[Read more]

Hi Karen,

Welcome to the forum. Everyone here is very helpful and provide a lot of support. My husband Phil was diagnosed in May with MM and he has completed his initial treatment (he is also on the PADIMAC trial that Alex is doing) and will be going in for his SCT on December 17th. Myeloma is very confusing as there are so many different…[Read more]

Hi Peggy,

I hope you get the date for your SCT soon. My husband Phil was in for his lung function and heart tests this week and he is going in on Monday for the priming chemo (cyclo…. – I have a terrible time remembering all the drug names) and the cell harvest will be December 5th and 6th. Phil is then going into St Bart's in London on…[Read more]

Hi Chris and Lena,

Yes, Phil and I did see the little dog on the news, science is amazing and getting better at fixing things all the time. I never really had much time for science before this year but I am amazed at everything I have learned since Phil's diagnosis and astounded at what the human body is capable of. It gives me hope.

I am…[Read more]

Hi Ali,

Phil is due to have his cells harvested on December 5th and will then go into St Bart's in London on December 17th for the transplant. Not quite the Christmas we would normally have but MM has never seemed too concerned with our plans:-D

Our view is get it done and dusted and then bring on the New Year and start fresh. Here's to…[Read more]

Hi Chris,

I am so glad to hear that you are doing so well, even drinking beer:-) I wanted to thank you for sharing your transplant journey as my husband Phil will be embarking on his own stem cell transplant in a month and it has helped us to prepare reading your posts. Phil may not be able to beat Tom's 16 days in hospital (he will try…[Read more]

Hi Vicki and Colin,

I am glad to hear that Colin is on the mend and that the pain is under control, fingers crossed for an end of the week release from hospital.

Phil, my husband, is due to go in for his stem cell transplant mid December so I have been following your progress and Chris' as well trying to pick up as many tips as I can. Thank…[Read more]

Hi Ali,

That is wonderful news about your Mom, a great way to end what has been a long and tough year for you all. My husband Phil will be having his stem cell transplant just in time for Christmas but we are looking forward to a better year in 2013:-)

Megan

Hello Carol,

So sorry to hear that your MM has made an unwelcome return. My husband Phil has just finished PAD as his initial treatment on the PADIMAC trial which is trying to see if using Velcade upfront could delay the need for a SCT. I am not sure if this PAD would be the same dosage as yours but Phil had six cycles and he did not have too…[Read more]

Hello Stewart,

I am sorry you have joined us on this forum but it is a great place to get advice. My husband Phil and I are quite new to Myeloma as he was diagnosed in May this year at the age of 43 so we are still learning everything as well, it is very confusing! I don't think the actual level of paraprotein in itself is a problem, Phil was…[Read more]

Hello Kerry,

I am sorry to hear that Melvin had to go to the hospital again but that is very good news about the drop in pp levels.

My husband Phil has been admitted to hospital three times since his diagnosis in May, two of these times were unexpected. The first time he had gone in for his chemo as normal and they would not let him go home…[Read more]

Hi Keith,

I am afraid I can't offer any suggestions/opinions as my husband Phil is just at the start of his MM journey and he has only had one infection so far that resulted in a hospital stay and he has not needed any extra platelets yet. I just wanted you to know that my thoughts are with you and I hope you find a solution with your…[Read more]

Well done Mavis, that is wonderful news!

Megan

Trish and Peter,

That is wonderful news, thank you for sharing and enjoy your well deserved holiday. It does give me hope that holidays may happen again one day, it is all so scary at the beginning…

Megan

Hi Gill and Dave,

I am so sorry you have had to join us but you have come to the right place, this forum is very helpful and informative. My husband Phil was diagnosed with MM in May this year at the age of 43. There is a lot to take in and it all feels like an out of control roller coaster at the start but it does get easier. Phil has just…[Read more]

Hi Vicki and Colin,

I hope everything goes to plan tomorrow and that there is a bed for Colin! I have followed your thread since I first joined the site and I am happy that you have overcome all the hurdles to get to this point. Good luck for tomorrow.

Megan

Phil's last two doses of Velcade were reduced and his feet have not gotten any worse so hopefully the PN will fade over time. As Phil is on the PADIMAC trial he did receive it subcut but I am not sure how high the dosage was. Saturday was his last day of his induction treatment so he now has ten days off and then it is back to the clinic to…[Read more]

Hello Amanda and Bob,

My name is Megan and it is my husband Phil who has Myeloma, he was diagnosed in May this year. I see from your other post that you live in Cannock, we live in London but Phil was born in Walsall and still has family in the area. We were married in Lichfield. I have found this forum very helpful and everyone is very…[Read more]