[meganjaneParticipant]

Dear Eve and Slim,

That is wonderful news 🙂

Megan

[meganjaneParticipant]

Hello Vicki and Colin,

It is life changing and for us the initial shock was quickly followed by two operations for Phil to fix his femurs, we have had one thing after another since the diagnosis but now things feel like they are more under control and we are starting to understand things more. Like you we had never heard of MM but we are getting on top of it. I still find all the jargon confusing, light kappa chains, bence jones, etc but I know that when I need information I can turn to this website and of course the discussion forum.

I hope Colin's SCT goes well.

Megan

[meganjaneParticipant]

Hello Michele,

This is why I love this forum, hearing the good news from others helps me keep a positive outlook, I know MM is different for everyone but I think a positive attitude helps and knowing that things can get better makes it easier to deal with. Thank you for sharing.

Megan

[meganjaneParticipant]

Thank you all for your replies.

After the initial shock it is nice to know that things can get better.

Phil's paraprotein level started at 34 and after the 2nd round of chemo it was down to 16 so fingers crossed the results will have dropped again after the third round (we will find out next week) and will continue on a downward slide with the fourth round that Phil is doing now.

Megan

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