My husband Phil was diagnosed with MM in May 2012. Phil started having rib and back pain in November 2011 but put it down as work related/getting older. It slowly got worse so Phil went to the GP in March 2012. After many tests and consultations he received the Multiple Myeloma diagnosis in May. He was immediately referred to St. Bart’s (diagnosis was made at Whipps Cross) and he joined the PADIMAC clinical trial, he will receive six cycles of dox-dex-velcade. The second cycle had to be delayed as there was a high risk he would fracture both of his femurs due to the lytic lesions. He spent two or three weeks (it is all a bit of a blur!) in the Royal London to have both of his femurs nailed. Phil also had five sessions of radiotherapy on both femurs after the scars from the operations had healed.

The six cycles of dox-dex-velcade were completed at the end of October. On December 5th Phil harvested 7.75 million cells. On December 17th Phil was admitted for his auto SCT, he got his cells back on December 20th. Phil ended up staying in hospital for 24 days as he caught a stomach bug that needed treatment.

As of April 2013 Phil has reached Near Complete Remission with normal plasma levels in his bone marrow and only a trace amount of paraprotein.

At Phil’s August 2013 appointment he was told he has reached Complete Remission with no detectable paraprotein 🙂

In December 2013 we found out Phil’s Complete Remission only lasted one month and he has been relapsing since August 2013 with the pp numbers slowly rising.

January 2015 pp at 13 so on January 29th Phil started the Pollux trial. This trial compares Rev and Dex vs Rev, Dex and the monoclonal antibody Daratumumab. Phil was randomised to the Daratumumab arm of the trial.