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  • Harmony replied to the topic survival in the forum General 10 years, 11 months ago

    Hi All,

    Thanks for your replies. You all seem so confident, strong and in control. I admire that so much-it’s great to be able to press a button and receive so much reassurance. I need to ‘give’ more back to you all. At the moment, I seem to be doing all of the ‘taking’ in terms of advice and reassurance.
    I’m not receiving medication at the…[Read more]

  • Harmony started the topic survival in the forum General 10 years, 11 months ago

    Hi,

    Just wanted to know if any of you have tried any supplements/special diets which you consider to be beneficial. I have started to take selenium, drink green tea daily and try to replace food with organic alternatives in the hope of keeping the cells in their ‘smouldering’ state. The survival stats look pretty grim at the moment. Does anybody…[Read more]

  • Harmony replied to the topic Christmas joy. in the forum Newcomers 10 years, 11 months ago

    I hope that your partner smoulders for a long time too! My G.P recently told me about a patient who is now in his eighties who has been smouldering since his diagnosis, when he was in his forties! In the ‘Myeloma Matters magazine’ for Autumn, there’s a short piece written by a woman who was diagnosed with smouldering MM 21 years ago. I would love…[Read more]

  • Harmony started the topic Christmas joy. in the forum Newcomers 10 years, 11 months ago

    It’s going to be my first Christmas post-diagnosis and somehow, this year feels extra special and not to be taken for granted. I’m grateful to be feeling healthy as those evil cells smoulder away. I’m looking forward to cooking dinner for the family and gobbling up every morsel of feeling healthy and well while it lasts. I have this greed to…[Read more]

  • Wish you both well Graham and Ann. Keep strong.x