mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 10 years ago
Hi
Thank you for these inputs. I am 65 so the same age as Mavis. I think I have to wait and see what the consultant says on 31 March. He has his own clinical trials and is said to be one of the best in UK. I hope so !
Mervyn
mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 10 years, 1 month ago
Dear Matt
Thanks for this. It looks like SCT is the way to go. I hope it is working for you.
Live long and prosper.
Mervyn
mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 10 years, 1 month ago
Dear Graeme
Thanks for this advice. Very helpful. I hope your bone marrow test goes well and you have a great trip to Oz.
Mervyn
mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 10 years, 1 month ago
Hi again and thanks again for that. I will probably go for it. It would be great to get back running.
Would also like to travel worry-free.
Enjoy your trips and gym.
Mervyn
mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 10 years, 1 month ago
Dear Carol
Thank you for that. I have read that really they only give you two goes at SCT. If you get your paraprotein level really low, isn’t it worth saving those two goes and not having the SCT until the MM comes back ? Any view on that ?
Thanks.
Mervyn
mervyn53 started the topic Progress and roadmap in the forum Newcomers 10 years, 1 month ago
Hi
I am new to this so all advice welcome. I was diagnosed with MM early December 2014 after I collapsed at home. Was in hospital and immobile for 3-4 weeks but they let me out on 24/12. I have been on velcade, dexi,cyclo etc since then and my paraprotein scores have gone from 74 at the start to 48 after 2 cycles, 18 after 3 and now 9. I am still…[Read more]
mervyn53 became a registered member 10 years, 1 month ago