mervyn53

  • mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 9 years ago

    Hi

     

    Thank you for these inputs. I am 65 so the same age as Mavis. I think I have to wait and see what the consultant says on 31 March. He has his own clinical trials and is said to be one of the best in UK.  I hope so !

    Mervyn

     

  • mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 9 years ago

    Dear Matt

     

    Thanks for this. It looks like SCT is the way to go. I hope it is working for you.

    Live long and prosper.

    Mervyn

  • mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 9 years ago

    Dear Graeme

     

    Thanks for this advice. Very helpful.  I hope your bone marrow test goes well and you have a great trip to Oz.

     

    Mervyn

  • mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 9 years, 1 month ago

    Hi again and thanks again for that. I will probably go for it. It would be great to get back running.

    Would also like to travel worry-free.

    Enjoy your trips and gym.

     

    Mervyn

  • mervyn53 replied to the topic Progress and roadmap in the forum Newcomers 9 years, 1 month ago

    Dear  Carol

    Thank you for that. I have read that really they only give you two goes at SCT.  If you get your paraprotein level really low, isn’t it worth saving those two goes and not having the SCT until the MM comes back ?  Any view on that ?

    Thanks.

    Mervyn

     

     

  • Hi

    I am new to this so all advice welcome. I was diagnosed with MM early December 2014 after I collapsed at home. Was in hospital and immobile for 3-4 weeks but they let me out on 24/12. I have been on velcade, dexi,cyclo etc since then and my paraprotein scores have gone from 74 at the start to 48 after 2 cycles, 18 after 3 and now 9. I am still…[Read more]

  • mervyn53 became a registered member 9 years, 1 month ago