Myeloma Forum | MarinaFrankel | Activity https://forum.myeloma.org.uk/members/mf1/activity/ Activity feed for MarinaFrankel. Sun, 12 Apr 2026 06:55:24 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 922f168a560911ed0505deb85f318916 mf1 posted an update: Thank you for your posts. Unfortunately, neither of us knows […] https://forum.myeloma.org.uk/activity/p/165456/ Mon, 15 Sep 2025 15:30:39 +0100 Thank you for your posts. Unfortunately, neither of us knows which specific anti-body treatment he will have. He has his MM treatment privately. He is not on any Trials. He was supposed to have his treatment in a local (England) NHS hospital from today, cancelled his work… just to find out nothing was arranged for him. His Consultant is very…[Read more]

]]> 0 a0f54d2976edec4f07def90e8fe6fed5 MarinaFrankel replied to the topic A hip operation during CTD? in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-hip-operation-during-ctd#post-101800 Wed, 20 Feb 2013 21:48:07 +0000 Thank you Megan. I had actually demanded my husband being placed in seclusion. I presume I was not vocal enough… At some point I was told that they will do the bloods and then check the amount of white cells on which they will form their decision to put him in a single room – this is (looking back) rubbish.

I am grateful to the chap who did…[Read more]

]]> 9427ec67f2558a9c863d604eee2bc022 MarinaFrankel replied to the topic A hip operation during CTD? in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-hip-operation-during-ctd#post-101797 Wed, 20 Feb 2013 21:22:57 +0000 Thank you. 🙂

]]> f03a856c1646b335877f4a26c0e4d9be MarinaFrankel replied to the topic A hip operation during CTD? in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-hip-operation-during-ctd#post-101798 Wed, 20 Feb 2013 20:45:57 +0000 Thank you, Tom 🙂

]]> 60e4624a31f86d5f670a6d3e986728c3 MarinaFrankel started the topic A hip operation during CTD?. in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-hip-operation-during-ctd Wed, 20 Feb 2013 20:25:43 +0000 My husband was diagnosed with MM in October 2012. The diagnosis came from the investigation into his excrutiating hip pain. He started his CTD in November and this week was about to complete his 5th cycle. 3 days ago he suffered from a seisure and was taken to A&E. After 15 hours of waiting in A&E for a bed, after 3 scans and explaining his story…[Read more]

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