Hi David

How I sympathise about your battle with pain. I am going through the same thing and my Consultant doesn't want me to take anti-inflamatories because of my kidneys. I have had to start again. Like you I have a goal in view. Visiting my daughter in Luxembourg in July – she is moving there with our only grandchildren so I have got to…[Read more]

Hi Ann

Sorry to go through your thread to reply to Peter!

Peter, did your Consulstant really say "cure"?!!!!

Do hope your pain soon subsides.

Love

Mavis

Dear Andy,

Like everyone else I am so pleased to hear your news. Keep getting those PPs down. Like Helen, although not a young one like her, I agree it's not all about SCTs these days.

Very best wishes to you and Steph have a great holiday.

Mavis

Hi Dai

I agree with you Post, but have you any ideas as to how we can take things forward. Do we need to ask the CO ofMUK to take this forward. The myeloma web site in America seems to have been able to make a real difference. Of course they have the advantage of scale, but still a Voluntary Org.

I have just responded to a…[Read more]

Hi Ellen

I'm sure lots of others will say the same, is it possible to send on our love and best wishes to Keith's wife, and I'm sure many prayers will be said for him too.

Mavis

Hi Helen

Sorry you had all this to cope with just when you were through the worst after SCT. Just hope it all turns out to be a blip. I remember once, on a pre-op session, being told that I had a silent heart attack. Carrying this worry for years, a later ECG showed no sign of it, so it shows they can get things wrong.

Love.

Mavis x

Hi Tony

I agree with Helen, your post was very encouraging. Has your MM had any bone involvement.
Yes, I know how we all worry about the numbers. I find it hard to get results too which is frustrating.

Very best wishes. Don't work your life away, but may your non treatment phase last for years.

Mavis

Hi Tom

Can I add my best wishes to everyone else's.

Very best wishes.

Mavis

Hi Ann

So sorry to have to welcome you to the Forum. As everyone has said, everyone's MM journey is different. If your blood shows Paraprotein, the level of PP at diagnosis, and the rate at which the readings rise will influence decisions about treatment regime. It might be useful to speak Myeloma UK Specialist Nurse with your specific…[Read more]

Hi Jo

You are always such an encouragement to everyone here. So sorry to here things haven't been going so well. Glad you are improving. Do hope things go well with Velcade, but sorry you have to have it. Hope your kidneys cope OK.

Lots of love.

Mavis xx

Hi

Welcome from me. Like everyone else I'd encourage you to continue with CDT. I had a sickness episode and was in hospital for a week and I had shingles, but six months on from the end of six cycles, and still in remission, I am glad I had it.

All best wishes.

Mavis

Hi Gill

Yes, what a lovely picture. Stephen obviously had a lovely friend in his dog!

I was mentioning about talking to a photo, in an earlier post, this would be a lovely picture to "talk" to.

Take care and continue to be kind to yourself.

Love Mavis x

Hi San

Sorry your Mum is having such a hard time. Does your Mum have any arthritis by any chance as my Pain Nurse says the morphine type drugs don't help that pain so I am taking anti-inflamitories as well.

I have also begun to have some physio at home and the exercises are certainly helping my back by strengthening my muscles.

Do keep…[Read more]

Hi Gill

In view of the short time since you lost Stephen you sound to be doing well. I used to talk to my Mum's photo for ages after she died. I found it really comforting and often seemed to get "advice"!

Keep doing good.

Love Mavis xx

Hi David

You are always so encouraging to everyone else so wanted to send you my very best wishes. Do hope the Velcade does the trick.

Love Mavis x

Hi Eve and Slim

Can't add anything to what others have said, but just wanted to send my love to you determined pair. Hope you get lots more trips in.

Love Mavis x

Dear Jackie

I'm affraid i don't have any survival techniques for you, but just wanted you to know you are not on your own out there. Do be kind to yourself and don't expect too much of yourself. The grief of daughters and wives is by the nature of things different. Trouble is, daughters still think you are their Mum, the one who should make…[Read more]

Hi Val

Great news – long may it keep coming! Very best wishes for your move and all your future plans.

Love Mavis x