Hi Ozzy

Yes, I too had a bit of a husky voice while on CDT. Glad to say it is now back to normal. My eyes were also a bit cloudy sometimes. Also gone now.

Best wishes.

Mavis

Hi susan

I have got a bit confused with this post. My experience is that my mobility problems are because of bone problems and not because of drugs. I have had soreness with my toes and bottom of my legs. I have found it difficult to find comfortable shoes – in fact I haven't!

All best wishes.

Mavis x

Hi Lesley,

Just wanted to say welcome from me. I went down the traditional route of CDT which worked well for me, but I am full of admiration for those of you who go on Trials. I do send you my best wishes and hope your experience is one of the really good ones!

Love Mavis

Hi Keith

Well done, that's one down. How many are you expecting?

All best wishes.

Maivs x

Hi Tina

Very interested to hear you are on the Trial. Can't remember, did you have a SCT?

Sorry you have got this annoying itchy side effect! Hope the alternative treatment works for you. I wish you a long and event free remission.

All best wishes.

Mavis x

Hi Jenny

Sorry you are feeling so crap at the moment. Sorry I don't have any experience of your particular regime, but wanted to send good wishes. I'm sure that someone will come along with some sensible advice, but do let your medical team know how low you are feeling so they can help.

Very best wishes.

Mavis

Hi Susan

So sorry that you have been diagnosed with MM, but welcome to the Discussion Group, we aren't a bad lot! I find it very helpful.

I finished six rounds of CDT on October and responded very well and am currently in full remission. I just had two Thalidomide tablets each night. I had always decided not to go down the route of SCT…[Read more]

Hi Sarah Jane

Good luck with trying to get your blood results. I try to use the Diary, but I seem to have considerable difficulty getting mine. Not helped by the fact that results of PP levels seem to take a fortnight so are never available at Consultations. Am often promised a letter or phone call, but they don't come!

Other results to…[Read more]

Hi Daniel

So sorry your Dad has relapsed. I can understand how worrying this is for you and difficult for you to cope with. I can see why you are asking "how long", but as otheres has said, it is just not possible to say. From what I have seen, not even Consultants can be certain until the very last weeks. Things are so much better and…[Read more]

Hi Deb

I too sm sorry to have to welcome you to the MM Club! Sorry you have got it so young. I am nearly 68yrs!

As others have said, if there ever was a time to have MM, now is the best. There is so much expermentation going on, and, also so many new drugs available.

Very best wishes for the decisions being made for your treatment.…[Read more]

Hi Keith

What a blow that the Bendamustine seems to be loosing its grip. As you say, you are in God's hands – is there a better place? It still doesn't mean we don't have to battle on. I was very impressed by one of the participants on this week's "Songs of Praise". He was a paraolympic who was trying out bionic legs. He said, at the…[Read more]

Hi Peggy

Sorry to hear you ahve had such a bad time and with complications at home -what are they doing!!!! They must be in a sorry state too. Hope both sides soon get the all clear.

At least yu are on the right side of the SCT, even if it has been such a bad experience.

I sympathise about the hair problems. Although I didn't lose all…[Read more]

Hi Sal

Sorry we have to welcome you to this site on your Dad's behalf. In view of his age, I do hope someone will have agood chat with him about what treatments are realistic and will still give him the best quality of life possible. I am nearly 68 yrs and was diagnosed in 2019. My approach is to have the lguhtest treatment possible while…[Read more]

Hi Heather

Welcome to you and John from me too. I do hope you got on well with the Consiltant yesterday and understood what he was saying. You obviously have a lot to cope with as well as a lot to contend with. This is a strange illness to come to terms with.

Like John my myeloma was diagnosed after lots of treatment for arthritis. I have…[Read more]

Dear Mary

So sorry to hear your sad news.

All love.

Mavis x

Hi Sue

Had missed your last post. sorry you have been so low, but it is so understandable. I had been thinking of you both, especially over Christmas, I know what a difficult time it must have been.

As everyone says, do keep nattering support staff about the pain control.

Lots of love and prayers.

Mavis xxxx

Hi Keith

Hope you begin to feel better as the new treatment kicks in.

All the best for 2013. May it be a much better year.

Best wishes.

Mavis x

Hi Dai

All the best for Monday. I do hope the new treatment is successful and trouble free.

Lots of love.

Mavis x

Hi Helen

A bit late, but wqnt to say great news that you at last feel "well". Hope you have had a good Christmas.

All blessings for 2013.

Love Mavis x

Hi Dai

So glad you got home for your birthday and Christmas. Do take care and all best wishes for the start of the treatment.

Love to you and Janet.

Mavis x