Dear Andy

I am glad you managed to have a break in spite of the PP numbers. Let's hope you manage to kick them into touch soon.

All best wishes.

Mavis x

Hi Siobhan

I have only just read the sad news about Bridget. Like others I have already shed some tears and will undouboutably shed more. I owe a great deal to Bridget. She was such an encouragement to me when I was coming to terms with being diagnosed with MM. Her posts, not just to me, but to everyone, were so helpful.

It was obvious…[Read more]

HI Dsvid

You just keep beating the markers. Not just for yorself, but for all of us because you are a real inspiration. I find it is my daughter who finds it encouraging that folk are beating the printed prognosis. For myself, I keep saying they are just numbers and we are all individuals. But, we are all human as well so we can't help…[Read more]

Hi Andy

Like everyone else I am sorry your remission only lasted such a short time. I think you are right not to go for a second SCT at the mement. I do hope Velcade works well for you and that you manage to get it by injection fairly soon. If so, do you do it yourself, or do you still have to have it done in Hospital?

All best wishes.

Mavis x

Hi Keith

I'm also so sorry to hear your news. Enjoy your holiday and come back with a positive head on!!! As Dai says, there are so many good stories at the moment with new drugs coming on line. Hang on in there. I know your positive attitude will see you through.

All good wishes.

Mavis x

Dear Eve

Do hope Slim is now home. At least there will be someone enjoying all the football on TV. I am fed up with it and it hasn't even really begun yet!!! Nothing else good on TV either now all the Jubilee coverage is finished.

Hope all your round of infectins is finished witha nd tht the bllos counts settle down.

All best…[Read more]

Dear Jean

Do hope your husband has good response to the Rev and DEx. A lot of folk seem to. With this MM it seems to be a step at a time. It is really good that he hasn't had bad side effects from earlier treatments so lets hope it is the same with this.

All best wishes.

Mavis

Hi Eve and Slim

What good news that Slim is home – the other side of the SCT. After all the problems you have faced to get to this point, it is great to hear this. AS Dai says, there is a lot more hill to climb, BUT you are on the right side!

Very best wishes to you both.

Mavis x

Hi Paul

In spite of disappointing weather, I hope that you managed a break and that your legs are less jelly like!!! Knowing you, another couple of months and you will be bouncing about.

I'm also suffering with steroid round face – wouldn't mind, but people keep commenting on it – as if I didn't know!!!

Lots of love to you both.

Mavis…

Hi Andy

Just a note to say glad numbers are moving in the right direction, even if slowly. Enjoy your break, hope the weather is kind – and be encouraged that something is working for you.

Very, very best wishes.

Mavis x

Hi Keith

Keep fighting!!! If you were a nursing mother, they'd say take stout for the red cells – do whatever is the MM equivilent!

Best wishes.

Mavis x

Dear Liz and Kev

So sorry to hear your news, but at least the quick resonse should bring good results from the velcade and dex. I do hope there aren't many side effects and that you are able to have a good summer.

Very best wishes.

Mavis x

Dear Eve

I'm so glad, that after so many hurdles, Slim has at last had his SCT. Another few weeks and he will wonder what he was worrying about as he looks forward to his "new life" and that trip to New Zealand.

You know we are all rooting for you both.

Lots of love.

Mavis xx

Hi Dai

I'm also thrilled that Rev and Dex are doing the job! Just sorry you had a tortuous wait to find out they were working, with all the lows that that inevitably caused. What is it about blood results that they can't just give us a print out as a routine thing. I only found my PP level had gone down to 4 by specially asking the nurse to…[Read more]

Dear Paul

So sorry that things aren't going as well as we would have hoped. I can understand you being pxxxxx off! We must all get to the point, from time to time, when things aren't goinmg well, of thinking "is it all worth it?" Good job that at heart you are such a fighter. I know things will work for you – do hang on in there. It is…[Read more]

Hi Tina

Glad to hear your news.

At the end of round 2 my PP were 5, but I obviously don't feel as good as you. The shingles haven't helped, but do seem to be subsiding. As I lost a week of chemo I am now on day 4 of round 3. I don't seem to be getting the mood swings with CDT, but did have a very low few days, which was obviously the…[Read more]

Dear Jill

I'm also devastated with the news about Stephen when he has fought such a brave fight against this dreaded MM. I guess he now does need to work out his own way to assimilate this news and work his own way through these next difficult months. I can understand his wish to go to France and be damned! I hope he manages to pull it…[Read more]

Dear Michelle

May I add my sympathies to you and all the family. You have been able to support your Mum through this very difficult journey and it is good that you were able to with her at the end.

This week will be a very difficult one, but may all the good memories you have of your life together sustain you as well as the thought that…[Read more]

Hi Jo

So glad you manged your holiday in Greece and have another planned for IoW later. It is a case of making the most of the chances. I'm so glad your PP levels are keeping stable. You are a real encouragement to me.

Much love.

Mavis xxx

Hi Keith

Like everyone else I hope your readings are just a blip.

Come what may I can't see why you shouldn't get your holiday.

Bdst wishes.

Mavis