Dear Dai

AS you say in another post, it isn't a walk in the park, but if this maintainance regime keeps MM at bay while you waith fornthe next best thing, it must be good. More time with your lovely family.

Lots of love.

Mavis

Hi Ian

Glad this exceptional procedure seems to be doing the job for you. I am so proud of those of yo who try these new ideas out.

Very best wishes.

Mavis

Hi terry

I think it is marvellous that you felt able to text so soon with the additional problems you have had to deal with. It feels so terrible when folk seem to ignore you because of their defficiencies, not yours. They should know better.

Glad others were ablt to give you advice about the coldness. One thing I'd say is, if yopu start…[Read more]

Hi Kirsty

Soory I missed welcomimg you earlier, for reasons I will be writing about in a minute. Still, as always, everyone else has done a good job of saying hello from the site none of us wanted to join! I find it so helpful and supportive and learn so much.

Of course you will be finding all this hard to take on boeard – who wouldn't!…[Read more]

Hi Nicola

Like everyone else, I am so sorry your dad lost the battle with MM so soon. Hold onto the fact that the love we have for one another never dies, but carrries on surrounding us with its warmth and protection. This is why memories are so comforting.

Hold on to the fact that death never has the last word. We have hope for a new…[Read more]

Dear Michelle

Like everyone else i send you my heart felt sympathy. I am so glad Phil had such a dignified end and that all the family could share.

Be kind to yourself in the days ahead and take help from wherever it is offered. It is natural to be sad, and to fall to pieces from time to time.

Love and prayers for you and all the…[Read more]

Hi Carol

Glad you've got to this point at last. Have a great break in Spain, then the best possible experience following the SCT.

All best wishes and love.

Mavis

Hi Andy

Great! By the time you read this your drastic treatment round will be over. Do hope that the recovery time isn't as bad as feared and that you keep free of infection. We will all look forward to hearing that those PP levels have shrunk beyond imagining.

Sending you lots of positive thoughts.

Mavis

Hello to another Mavis

So sorry you have had to join us, but do take some comfort from what everyone is saying, that there are lots of options – more all the time. Of course you will all be in shock, but you will be surprised how much courage you find you have.

Best wishes to all the family.

Mavis N

Hi Dai

Like everyone else I am delighted that the Rev and Dex are doing the trick. Long may it last. So glad the pain is already coming under control – that will make life so much better. You sound much more like your old self.

Very best wishes and prayers.

Mavis.

Hi Joe

Well done for going back to Uni. Very brave of you and bound to be difficult. Do be kind to yourself. Of course you will have times when you feel tearful – it shows how much you cared for your Dad. You can't just airbrush him out of your thinking. Expect this to go on for a good while. Iy is quite usual. It would be a very very…[Read more]

Hi Janet

Like everyone else, I am sorry that your remission seems to be fading. One thing about "forgetting" to ask "what next?" is that you aren't being rushed into a new decision but have time to think about the kind of treatment you might prefer.

All best wishes.

Mavis

Hi Bridget

You sound as if you have had more fun and games. As if you don't spend enough time at Hospitals! Glad to hear your grandson seems to have saved his teeth. It is a big thing.

Glad it sounds as if you are keeping the pain at bay. I know it would be a bit uncomfortable but couldn't they give you some modern version of a back…[Read more]

Hello Teresa

Glad Stuart clarified problem with Posts. I thought Moderator had taken against everyone's photo!!! Anyway, welcome to the site.

Don't know if I have got this right? You use "we" so do you and Peter both have MM? It seems very unlucky to have so much of it in your wider family. I guess most of us on here hadn't heard of it…[Read more]

Hi David

Hope these unpleasant side effects soon wear off.

Best wishes.

Mavis

Hi Andy

All the best for tomorrow – give it to them!

All best wishes.

Mavis

Dear Nicola

Just caught up with your very sad post. If they have put your Dad on the pathway the end must be near. I do hope he goes gently, suurounded as he is, by those who love him.

May God bless you all. You are in my prayers too.

Much love.

Mavis xxx

Dear Gem

Thank you so much for taking the trou8ble to answer me in such a difficult week. I do hope your Dad's funeral was a fitting clebration of his life.

Love.

Mavis

Hi Amelie

Sorry John's remission didn't last longer, but those two good years must have set him up well for the next SCT. Here's to a very long second remission. Do keep in touch.

Love to you both.

Mavis x

Hi Andy

Just wanted to add my best wishes for the new treatment. As they pump all these drugs into you, just imagine them kicking the pesky* MM cells into touch, and let's hope it does the trick.

* Wanted to use much stronger word, but thought it might not get past the moderator!!

Love.

Mavis