Hi Dave

Welcome! It will be encouraging to folk reading your post that you have managed to dance with this dreaded MM successfully for so long.

As your PP levels are so low and you have no other symptoms, why would you be thinking of any treatment at the moment?

I haven't had a SCT. My current PP is 13 and I have no inclination to go…[Read more]

Hi Dai

Maybe things will work out for you for once. When you have the screenings you might be accepted on the Trial without the "p" results!!!!!

Sending lots of positive vibes for Monday.

Mavis

Dear, dear Bridget.

Will pray that this one dose of radiotherepy does have a good effect on the pain, also that they will agree to another MRI. So sorry you need one as I know you find them so painful, but at least it will be able to give you peace of mind. I'm glad that NHS money is being spent on you – it couldn't go to a better…[Read more]

Hi Tina

I can see that thinking about the Trial is daunting, but at least you know that you will be monitored very, very closely and doses will be adjusted if side effects are too bad.

All best wishes.

Mavis x

Hi Tom

Like everyone else I am delighted at your news. Fancy, nothing at all! I think once monthly zometa is good, but nothing, that's amazing! Couldn't happen to a nicer person!

Also hope we still hear from you from time to time.

Very best wishes for a long, long, phase of nothing.

Mavis x

Dear David

Hope you soon feel better.

Mavis x

Hi Graham

Glad you feel you are being treated like a human being at last by NHS. All the best for your tests however and whenever they happen. Must admit, waiting isn't fun, but then I remind myself I don't want to wish my life away.

Your have probably read all about MGUS. It isn't MM, but there is a belief about now that we will all have…[Read more]

Hi bridget

I have enjoyed the escapism too! I had read the bookd before, as my sister in law was a midwif around that time. The series is very true to the book.

I agree with you, it really brings home how life has changed. I loved it when the phone was grabbed out of the hand of the lady in the phone box because "it is an emergency!"…[Read more]

Hi Dai

What a lovely song. Hang onto it as you wait for your appoinment on 28th.

I had a blast from the past today. My brother is visitng and we were listening to Peter, Paul and Mary. Why do songs from the past often seem so much better?

Keep singing!

Love

Mavis

Hang in there Ros!

One day Rachaeel will come to her senses and realise she misses her Mum. I think sometimes daughters can't cope with their mother's grief and have a funny way of showing it. If they were fond of their Dads they somehow take their death out on their mums. I have seen it before.

Love

Mavis x

Hi Min

I had missed your earlier post. I am so glad you are getting through even if you feel you are living life in slow motion! You are one brave lady and I am glad life is throwing some good things at you as well. Mind you, I can't imagine anyone being able to take five large dogs for a walk at once!!! We find our little yorkshire terrier…[Read more]

Hi Zoe

So sorry you have had to join us especially as Dan is so young.

I like Dan like to read everything I can on MM. I find the Myelome Beacon (an American site) really helpful as they have threads to televised discussions between Drs on various approaches to treatment. In thsi country they aren't as keen on Allo transplants – I think…[Read more]

Dear Nikki

Sorry about your Aunt. It sound as if she is having a dreadful time. I am sure they will get on top of her infection soon and she will be able to resume her treatment. They will no doubt also give her monthly infusions for her bones which should help prevent more problems.

Do you get on with her daughters? Maybe they could…[Read more]

Dear Bridget

Do hope the Dex has stopped messing your brain and that you get a good week-end.

Keep strong we love you. You know what they say, you can't keep a good woman down!

Mavis xxxx

Hi Sarah

Do hope Henry's infection is under control and that nothing stops the SCT going ahead. I can understand how he feels about Hospital food – I always loose weight when in hospital. It is one of the bonuses for me!

Hope SCT leads to a very long remission.

Best wishes.

Mavis

Hi Jean

Sorry Frank has got shingles. He really could do with taking some pills because shingles can leave residual pain that can last forever. As it is shingles it is something he could talk to his GP about. they normally say your need to be treated within seven days. I do hope he isn't in too much pain and that he does get on top of it.…[Read more]

Dear Jill

So sorry your mum now needs the extra treatment at her great age. At least she is having it by injection which I uinderstand reduces side effects. Do hope so. It must be a real worry for you, but there are good caring schemes to help. Make sure you speak to the hospital social worker if no one else is suggesting it.

All love to…[Read more]

Hi Terry

Like the others I wish you a successful harvest. And to think, I used to think harvest was about bringing apples and pears into church!

Hope you get enough for two SCT just for your comfort, but really hope that the first SCT, when it comes, will last for years!

Best wishes.

Mavis

Hi Sue

Glad to hear that at least your treatment has gone well. Do hope something turns up for Michael soon. In the mean time tell him to take all then rest he needs so that, when something comes, he will be up for it.

Love to you both.

Mavis x