Pilgrim

Thank you for these two links. I was very interested in the article on SMM as I think that is what I have.

So sorry it is still taking it out of you. do hope things settle down for you soon.

Very best wishes

Mavis

Hi Chrissie

So sorry to hear that David finally lost the battle to live. He certainly gave it his best shot.

Of course you feel realy broken up and wondering how you will cope. It is such early days the pain of your loss will be really acute, and it is almost worse when you have been a very close couple. It is good that David was able…[Read more]

Hi Helen

Just caught up with your posts. So sorry John has had such a bad time these past few days – just when you would have liked plain sailing to his SCT. I do hope he bounces back soon.

I expect that trying to work out the connection between MM and other cancers, and how we got MM, is something a lot of us on here do. I had uterine…[Read more]

Hi Dai

Sorry you have this bereavement to deal with along with everything else. It's so hard to make sense of it.

Hang in there and value each day you are given without feeling guilty as you have so much to cope with.

Mavis x

Hi David,

Just know you will get to your 50th Anniversary and much beyond. Let's face it, in the scale of things, even though your PP is measurable, the figures are still very low. Mine is now 13 and still no treatment apart from zometa.

Onward and upwards as always!

Mavis

Hi Dai

I just can't understand why you should be having such a difficult time – one d–m thing after another. I do feel for you and Janet. Will keep everything crossed that you get on the active arm of the trial.

Good job you are both the sort who won't give up. I will also keep you in my prayers.

Lots of love.

Mavis x

Hi Eve

So glad to hear that Slim had been told this marvellous news. Do hope you manage to plan a cruise soon.

All best wishes.

Mavis x

Hi Nicola

I am so sorry that your Dad is having such a difficult time. It must be so hard for you too. I would urge you, while not giving up hope, to take seriously what he is saying. Maybe he has had enough. If things don'ty taker a turn for the better maybe you should be speaking to his medical team about paliative pain control and care…[Read more]

Hi Bridget

Good to hear from you and that you are on form as usual. I think the thought of you wandering round "Big Brother" in a bikini quite a powerful image!! I bet it would increase their ratings.

I have to say that the extra support side at my hospital is nil. Fortunately I didn't need it as I already had DLA following four ops for…[Read more]

Hello Pilgrim

Welcome to this site! I know you will find it helpful.

I do hope you get a diagnosis one way or the other soon. Do bear in mind that, even if you do, if your protein level isn't too high you need not nessacarily need to have treatment straight away, apart form something for the bones – probably zometa monthly which isn't a…[Read more]

Hi Glen

Welcome to the site that we all say we'd rather not belong to!!! What an upbeat post in view of all you have gone through in the last couple on months. I think we'd all say that a positive attitude really helps. although we'd all admit to down times with this dreaded desease that most of us had never heard of.

Do hoped the…[Read more]

Hi Kay

Like others I am disappointed for you that your PP levels are rising. I do hope that Friday brings results that aren't as disappointing as you fear. Let's hope you have a good partial response to your SCT.

Do let us know how you get on.

Love

Mavis x

Dear Nicola

I am sorry your dad is having such a distressing time and that you are having to watch while feeling helpless.

Sorry I haven't got any specific medical type advoce to give you, but it does strike me that you need to have an honest conversation with your dad's medical team. Although it is difficult to say it, it would be terrible…[Read more]

Hi David

Hope you have had a great holiday. Thank you for all your positive messages posted this year.

Wishing a continues remission in 2012.

Love to you and yours.

Mavis x

Hi Dai

Thanks for your greetings and a belated birthday wish from me too!

Sorry things are still tough for you. Do hope the PN subsides soon. I can imagine how difficult it must be for you having had some nerve damage in my legs some years ago. It is still difficult to get comfortable at night. Do you take any medication for the PN? I…[Read more]

Dear Michelle

However you may feel you are doing, you are very brave to have got your head round things enough to plan your husband's funeral, but we will all be hoping and praying that this is not the time you need it. Sometimes preparing for the worst is a neccesary part of being able to cope with all the distress and uncertainty.

Love in…[Read more]

Dear Ed

Welcome to this site – know other carers will give you the support you need, but hope you can find some nearer home too.

I am now in the "wait and see" plus Zometa phase and take comfort with every consutation where this continues. I take heart that there are lots of folks out there for whom this phase lasts for years. I remember…[Read more]

Hi Lyn

Just caught up with your posting. Sorry you and Pete have had such a difficult time and then eventually getting the mind blowing diagnosis of MM. It is such a lot to take in. After just over a year into all this I am just beginning to appreciate just how hard it was for Gordon when I was first admitted to Hospital, had emergency…[Read more]

Hi everyone!

Yes, all the news that comes out, including latest stuff from ASH (See Myeloma Beacon Web Site) is so encouraging. Let's hope and pray we are all in this FOR THE LONG HAUL!!!

Lots of love to everyone for 2012 and many more years to follow.

Mavis xxx

Hi Shirls

Glad you had a good Christmas and that people spoiled you. As others have said – yopu deserve it.

We had a good Christmas. I drove to and from London, from Yorkshire, and was so grateful there was no snow this year as this was the first Christmas Day we have spent with the grandchildren aged 4 and 20 months. We were all so…[Read more]