Hi Helen

So glad you are now so well on the other side. I do understand about the hair though. It would be the thing I would hate the most.

Take care and enjoy getting glam again!!!

What does the Trial you are going on consist of? Is it a maintenance thing?

Whatever, very best wishes and thanks for sharing all the ups and downs.…[Read more]

Hi Dai

So sorry that your bad cough is still hanging on. Thank you for making so much effort to nearly make it. You must be very frustrated having put so much work and effort into preparing, but as others have said, there will be other opportinities.

Do take care of yourself – I'm glad Janet is keeping a sensible eye on you.

Best…[Read more]

Hi bridget

Good to hear from you again even if things have been a bit rough. If I could knit I'd knit you a Blue Peter badge!

10 out of ten for effort with the injections.

Much love.

Mavis

Hi Sue
Like everyone else I do hope things turn the corner for Michael and for you re the work situation. It always seems crazy that they don't let people who want to, go, rather than folk who are desperate to keep working.

Keep in touch.

All blessings to you both.

Mavis

Dear Min

I do hope that by the time your holiday ends you feel really revitalised to face the long window. I started to look at winter eveenings differently when a friend, who lived on her own, shared how she loved pulling the curtains and settling down in front of the warm fire and could just please herself.

I think you are dong really…[Read more]

Hi Ted

Great news and it must be a great relief to get another reprieve!!! Long may it last. It also serves to encourage me.

Very best wishes.

Mavis

Hi Gina

So sorry things aren't bettter for your Mum, but you are doing a very loving thing by having her home. I do hope she manages to stay at home now and doesn't have to go back into hospital.

Have a lovely wedding day in spite of everything.

All blessing to all the family.

Mavis

Hi David

Good to welcome you to the site. It is an encouragement to newer members to have someone who has successfully gone through what you have.

Long may your remission last!

Very best wishes.

Mavis

Hi Sarah

Though I can't add anything to all the good advice and information you've been given, I just wanted to welcome your and Henry to this site and wish you all the best as the treatment progresses.

It is a sharp learning curve.

All blessings.

Mavis

Hi Dai

Like everyone else I am grateful you have taken this on.

I agree that getting results is very important to how in control we feel. Yesterday I got them from a nurse on s napkin!! She took them off the computer because I asked her. I nromally have to wait two weeks to get my para protein results and this is after my Consultation.…[Read more]

Hi Gina

So sorry that your Mum has taken this turn for the worse. I do hope you have a good converstion with her Consultant. One thiong I would say, although it's not easy, if they suggest not to do very difficult treatment that you go with it. There does come a time, hopefully not yet for your Mum, when the treatment comes worse that the…[Read more]

Hi Mal

What good news that Mal is now home. Do hope next weeks go well.

Best wishes.

Mavis

Hi Ted

Just to show that I have appreciated the fact that I don't need to scroll down such a long list! Maybe others know how to do it quicker. It seems to take me ages.

About questions – I am only just a year into this business and wanting to delay chemo, apart from zometa, for as long as possible, Because of all the anxiety I feel each…[Read more]

Hi Jenny

Welcome from me too! In view of the fact that you haven't had any support you seem to be be doing very well and keeping in good spirits. As Bridget say, keep your eyes on the goal of a long full remission. You will get there.

I am interested as to how you got diagnosed. Were there health complications and what was your para…[Read more]

Hi Ted

All best wishes for your appointment next week. I got an extension to three months thids time, but I know how it feels when appointment looms. One good thing is that now I am having Zometa injections I have a blood test each month so can keep an eye on blood results apart from PP.

By the way, yours must be about the longest thread…[Read more]

Hi Kay

Like others I'm pleased to hear that over all your SCT has gone well. I know bone pain can be so debilitating and depressing. Hold in there and do make sure you are given good pain killers. It does take a lot of patience to find the best for you.

Be kind to yourself.

All best wishes.

Mavis

Hi Chrisitne

You all do right to get SCT put off till after Christmas. Last year they wanted to start my radiotherepy days before Christmas and I held out without any noticable effects. I think Consultnants sometimes forget how important these family times are and this will be especially good for your father if he is feeling better then…[Read more]

Hello Dai

I had missed your post because BT cut off my Broadband!!! So sorry that you have had this bad infection. Do take care. Really want to hear that you are in a good place and feeling like your old (young!) self.

I'm off for my flu jab tomorrow so hope I fare better.

All best wishes.

Mavis

Hello Dee

Glad to hear that Mike is feeling a bit better. The trouble with Myeloma is that none of us will have heard of it before we were diagnosed. I agree that getting as much knowledge yourself is very enpowering. I find the Myeloma beacon Site (USA) very helpful – they have links to interesting videos.

Another thing to keep in mind…[Read more]

Hi Jim

Like David just wanted to wish you well. If you join the Trial I hope it goes well and brings dreaded MM under control.

Very best wishes.

Mavis