Hi Keith

Good to hear news from you. Sorry about the infection, but hope you make steady progress now.

All best wishes.

Mavis

Welcome Sandy

All the best for the SCT.

Mavis

Hi Barbara

Welcome to the site although I'm sorry that your diagnosis means you need to. Good that you don't need treatment yet – I hope this phase lasts for a very long time for you. How was your MM diagnosed? I'm interested what you para protein level is now. Having had a tumour removed from my spine and radiotherepy I am not currently…[Read more]

Hi Nadine

I'm sorry to have to welcome you to this site on behalf of your Mum. I am sorry for all the shock you and your Mum must be suffering from.

As someone a bit nearer your Mum's age, I'm 66yrs, may I put a slightly different perspective on things.

I gather that there are indications from tests that show whether results of SCT…[Read more]

Bonjour Gill! (Just!)

Hope the Improvers Class is a happy group and you have lots of fun.

Mavis x

Hi folks

I love the fact that I'm still alive!

I love the fact that there are people here who are willing to give of themselves even when they are really going through the mill themselves.

I love the folk who are researching with such passion to find a cure for this dreaded MM.

I love the fact that there are those – quite a few- who…[Read more]

Dear Roz

I am so sorry that you haven't been able to get the help you have needed, especially that Cruise has such a long waiting list. Hope you are onit any way – at least your turn will come eventually and you can decide then if you still want to take it up.

Do be kind to yourself and don't beat yourself up – even after nine months it is…[Read more]

Hi Sylvia

So sorry to hear that after responding so well to the intial tratments of Velcade, and having so little side effects,that you have plateaued. As your PP is only 11 is there any chance of them leaving off further treatment for the time being till your numbers start to rise? I am sorry they are saying your MM is agressive although…[Read more]

Dear Min

You are so brave and generous in sharing the aweful last journey with Peter. It will no doubt help others fo us to ahve this extra knowledge.

Hope the white tablets continue to work as you build up your strength.

Very best wishes.

Mavis

Dear Bridget

Roll on next Wednesday. I can't imagine how just one dose of RT can zap the pain. I wonder how it works? Mind you, it doesn't matter how as long as it does. It is so good you are so very positive – I'm sure this helps.

Am still thinking and praying for you lots.

Love Mavis xx

Dear Sarah

I am so sorry that things are piling up in such an aweful way for you while your grief for Gordon is so raw.

You are strong and you will get through. What a good job you and your son can support one another.

Just had a strange experience – twice when I tried to post with a couple of other comments it said "your message…[Read more]

Hi Gina

So sorry this year is getting worse for your Mum and the family. It does sound as if your Mum is getting worn out with MM, the side effects and the treaments. I do hope tht her lungs do clear to give her some relief. If they don't it may be you will need to face a decision from her not to have any more streatment. I agree with…[Read more]

Dear Alison

Welcome to the site from me too, but sorry you have to join this elite club!! Good to hear that the dialysis and drugs have worked to get you to a plateau. I wouldn't worry too much about not being advised to have a SCT at the present time. There are in fact Trials going on in America at the moment to compare SCT against other…[Read more]

Dear Bridget

I do hope they arrnge the RT for very soon and that it really does the trick. I am glad you are so positive about it. I just feel so cross you are in so much pain – it seems indecent in 2011 that we can't get on top of it.

You are one special lady! Hold in there and look forward to the dancing!!

Much love.

Mavis x

Hi Min

Just to let you know that I too will be thinking of you and praying for you and the family later today. I do hope that Peter's service will bring you some comfort and the hope that this world is not all there is and that death does not have the final word.

Much love.

Mavis x

Hi Paul

This is an "oldy" of 66yrs answering a post on the fifties strand! Having just picked up your posting i also wanted to welcome you, sadly as it were (!) to this great site.

It's good you have been given Revlimid as part of the Trial as it is supposed to be very good for a front line therepy. I read lots of stuff on the Myeloma…[Read more]

Dear bridget

Just thought to say – do dose ourself up well with painkillers before the radiotherepy or it will kill your back. I didn't find my radiotherepists very symathetic. I hope yours are more so and that it works quickly for you.

Love.

Mavis x

Hi Bridget

I'm so gutted that you are having such an aweful time. I can understand tears – with so much pain you feel so out of control. I remember being there a year ago. I am so glad that the McMillan Nurses have made some useful suggestions and help is at hand.

I feel very wild, I listened to an Amnerican Webcast about Pain, a few…[Read more]

Hi Amelie

So pleased to hear that John got his dream because you worked so hard for it. Keep dreaming and making dreams come true.

Best wishes to you both. May you have much time together.

Mavis

Hi Dai

I had been thinking of you today and wondering if you got off on your holiday. I'm so glad you have. I do hope that when you read this on your return you will have had a very well deserved break and come back to fight both the MM and the system and knock them both for six!

Very best wishes.

Mavis