Dear Sarah

I'm also pleased so many people turned out to wish Gordon farewell. I agree with Briget, it really does show how much he was respected and admired.

You have a wonderful family. I do hope that you find comfort and support for each other in the difficult months ahead.

Thank you to the family for their fund raising on behalf of…[Read more]

Hi julie

I've been interested to hear of your journey as i also started mine with a tumour! What are your para protein levels at teh moment. I have been wondering if they wait until you get to a certain level if nothing else too dreadful occurs. I am going to ask my Consultant in September.

I trust you and your husband have many more…[Read more]

Hi Min

All the best to Peter.

Interesting what you say about "I might get angry"! There have been a couple of ionteresting blogs on the American Site "Myeloma Beacon" about the experieinces of hospitals and how we do have to be the people who are alert to the risks.. Maybe Peter would be better off at home if they can't give him a room on…[Read more]

Hi Eve

I join everyone else in saying I do hope the Velcade works for Slim and without any serious side effects.

Hang in there through the Dex highs and lows – you are a wondeful carer!

Very best wishes.

Mavis

Hi Gaye

Also thinking of you and praying for you. Do hope they have got that pain under control and that you can be comfortable in bed!!

Much love.

Mavis x

Hi Ted

Can i also say happy many returns of yesterday!

I am not hqving any active treatment at the moment – only taking bone strentheners, because I have problems in my spine.

I am 66, but if i had got to 80 without any treatment I should certainly think twice about starting any unlees it was absolutely neccesary and the old MM was…[Read more]

Dear Dai

Do hope this week's Velcade goes better for you, that the leg continues to improve, and that you get a good run upto your holiday. Surely it must be your turn to have some good luck.

And to Brigit

Do hope you too get over this tiredness phase. Mind you ,having had so much pain lately is bound to have taken it out of…[Read more]

Hi Susannah

just to say that I hope Michael shakes off this infection and can resume the Trial soon.

Look after yourself. I know how much regular Hospital visiting took out of my husband.

Best wishes to you both.

Mavis

Dear Gaye

When I first came on the site i appreciated your posts and your support of others.

I do understand the decision you have made. Everything I read fills me with admiratin with what you all endure to prelong your life and to give this b….. MM the best fight you can. I am sure a time comes when enough is enough. I am glad you are…[Read more]

Hi Pam

I add my sympathies to ohers. I am just glad that your father didn't have to suffer treatment for MM which would have diminished his quality of life further.

I am glad he had a peaceful end and is now free of pain and at peace.

Best wishes.

Mavis

Hi Dai

At least you know what you are dealing with. Glad it hasn't travelled any further. Sorry about the Walfarin and stockings though.

As you say "upwards and onwards"!

Mavis

Hi everyone.

I found Dr Berenson's interview very interesting, particualrly as i have always said i wouldn't want to go down the road os SCT – because of my age and other non MM health issues, BUT mainly because of quality of life issues.

However, it was interesting to have seen this interview at this precise moment. Reading Jet's Blog of…[Read more]

Dear Dai

Sometmes I despair when I hear what messes happen. But silver lining of seeing the Prof is that precious two week break to look forward to.

Hopefully after the appointment tomorrow they will be able to add something to the treatment for the leg. I do hope the swelling goes down before Pembrokeshire!

Very best wishes.

Mavis

Dear Sarah

Like everyone else I am so sorry that after such a long, brave battle, Gordon is at last at peace. But so sorry for you and the family. The MM fight must have taken over your life for the past ten years and leave you absolutely exausted.

I am so in awe of those, like Gordon who walked this hard road before us and who helped give…[Read more]

Hi Bridget

I am so glad something is going your way after such a rotten few months.
Long may your improvement last. Who knows, those size 12s may get another airing eventually.

I always appreciate your obvious concerna and support of others.

Love

Mavis

Hi Dai

Do hope you got some satisfaction today. So frustrating that your treatment is going well, but that it is your leg that is setting you back.

All the best.

Mavis

Dear Sharon

Just caught up with your post. So sorry you are having such a rotten time with the CTD. Do hope you get an appointment soon and get the help and advice you need.

It's a very hard path you are having to tread so be as kind and forgiving to yourself as you can be, and as others say, make sure you are getting support with the…[Read more]

Hello Ivan

Just caught your post. Sorry about the diagnosis. Do hope you have had a good hospital visit today and felt comfortable with the Consultant.

If they said you should just "wait and see" with regular check ups, don't feel they are fobbing you off. For some folk this is the way ahead and the months without drastic treatment are to…[Read more]

Hi Dai

It sounds as if quality of life is slightly better for you. Isn't it difficult sometimes to know what is MM and what is down to other factors. Worse when you are older, I can tell you – because then you get "of course, at your age…!"

Do hope reduced level of Velcade does some good and you are able to finish the Course.

Enjoy…[Read more]

Hi Gill

Like everyone else i am hoping and praying the infection is now under control.

Best wishes to you and Stephen.

Mav is