Hi David

Just to let you know that my thoughts and prayers are with you as are everyone else's.
One thing about "down", the only way is "up" and from evrything of yours I have read, I know your strength of character will get you there in time.

Till then, let all our positive thoughts help carry you and yours.

Very best…[Read more]

Hi Kevin

As a new girl i want to add my good wishes and commiserations to evryone else's. The willingness of you "old stagers", as it were, to share so honestly is a real help, believe it or not.

I do pray that something else is out there for you. I keep reading about these new treatments for refractory MM (hope I got the term…[Read more]

Hi Sandie

I empaphise with your mother as I too feel really well at the moment, in spite of having had surgery and being diagnosed in Sopt/Oct this year – my paraprotein reading was 10. I am interested that you Mum's Onc has recommended treatment even though she doesn't ahve any other symptons.

As i have said in another post, I am not keen…[Read more]

Hi Jean

I just picked up this post while getting used to the new site. It was very helpful to me because, unlike you, on behalf of your husband, I want to put off treatment for as long as possible. After an op for a plasmacytoma in Sept, 10 I feel better than I have done in the past 18 months even with my arthritis. I don't want to make…[Read more]

Hi Mari
I was interested to read in yuour post that Steve had a similar experience to me last January ?2010. I was diagnosed and had my op in Septembet this year. I am awaiting radiotherepy, but the story about further treatment changes all the time as to yes or no to immediate chemo. I am currently awaiting a recent blood test result.

What…[Read more]

Hi Susan
I had a similar experieince to your Dad and had to have surgery.
I am now getting mobile again with superb help from the mobile physio, however, I am still wobbly and it is taking time for the strength to come back to my legs. I am only just beginning to use crutches rather than a zimmer, for some of the time. This is ten weeks post…[Read more]