I would also like to express my sadness at Eva’s passing. She will be sadly missed. I send condolences to her family who will have stood alongside her and suffered too because of this awful illness.

Mavis

Hi Maureen

Good to hear Ian has a new way forward. I do hope things go very well for him.

Best wishes to you both.

Mavis

Hi Andrea

Glad you have been able to resume your CDT. I had six lots and it got me into complete remission and I have remained so for nearly 2years. For various reasons I didn’t go down the SCT route.

Hope things go really well for you.

Mavis

Hi Alison

As you have bone pain, are you on Zometa infusions? I swear mine have stopped me having any fractures from my many lesions.

Very best wishes.

Mavis

Hi Tianyl

Welcome to the Site none of us wished to qualify for! I am sure you will find it very helpful belonging. Do share your story and ask any questions.

Best wishes.

Mavis

Hi Don

Like the others I admire your style. So sorry you have so much to cope with.

I do believe attitude counts for a lot, so if anyone can get to 85 it must be you!

All the very best for the surgery. I do hope it goes well.

All best wishes.

Mavis

Hi Scott

Sorry I can’t help you with your specific concerns and I guess few on here have had an Allo transplant. Have you found Jet’s Blog? She gives a very graphic account of her Allo history.

A all best wishes.

Mavis

Hi Deborah

Your SCT should be over now. Love and prayers for a gentle landing and a long remission.

Mavis x

Hi Both of you

So good to hear a good news tale. Long may it last. While it does wrench as much out of every good day.

Best wishes.

Mavis

Hi Wendy

Very cute.

Keep good and may you smoulder for a lot longer yet.

Very best wishes.

Mavis

Hi Robbo

Sorry to have to welcome you to this a Forum. Yes, there is such a lot to take in with a diagnosis of Myeloma. It’s not helped by each case being different. However, knowledge is everything so learn as much as you can from the a web Site and ask to get the MUZk Magazine if you don’t already.

You do have the right attitude. I believe…[Read more]

Hi Loopy

Welcome from me too. Sorry your husband has had such a hard time. I was treated with CDT (admittedly not CDTa) and got into complete remission after six rounds. I have not gone down the route of SCT and have been fortunate thus far even though, like your husband, my bones are shot through with lesions.

Mobility does improve. It is…[Read more]

Hi Keith,

So pleased to hear your great news. Long may your remission last.

Best wishes.

Mavis

Hi Rachel

So sorry to hear how poorly your a Dad is and that you have had such problems getting information from your Consultant. It seems that now the priority is to make sure your adad is as pain free as possible. Is there a pain specialist nurse you could talk to. Also, is the. Myeloma Nurse Specialist who could give you support.

Lots of…[Read more]

Hi Nick

Glad to hear you have got you pp level down. The side effects will wear off in time.

Very best wishes.

Mavis

Hi David

Long may the Guinness taste good!!

Keep strong.

Mavis

Don’t know about bites, Carol, but enjoy Croatia!

Although I didn’t have SCT I still am more open to infections. I have had cellulitis of the legs several times.

All good wishes for lots of good days.

Mavis

Hi Sarah

I had six lots of CDT starting in March 2012. Following this I have continued in complete remission. If I remember correctly my PP levels went steadily down from about treatment number three.

Main side effects for me were thinning hair, metal taste that made food less appetising (I developed a craving for Salt and Vinegar Monster…[Read more]

Hi Maj

Just caught up with this post. I do hope your husband’s SCT went according to plan and that his after effects haven’t been too dramatic.

Best wishes to you both.

Mavis

Hi Gill

Thanks for this. It is good to have confirmation of something I vaguely remembered, that you could revisit CDT. Certainly if/when I relapse, I will ask about it. Not without its problems, horrible taste, thinning hair and shingles, but six lots brought me into complete remission the first time.

I do hope your Mum does well on it. I…[Read more]