Hi Mike

I remember that feeling of limbo very well. I think a lot of it was shock in my case and I used to feel sick with worry for a week before every appointment with my specialist – as things settle down though and we got to learn more and more about what was going on we got into the routine and things seems less chaotic.
Please don´t…[Read more]

Hi Beverly
Sorry that I am late in replying but a very big and warm welcome although I wish we could have met in a different way.

I was diagnosed with smouldering myeloma in 2005 and did not require treatment (other than for anemia) until 2010. After chemo and a stem cell transplant I am still getting stronger every week and am now…[Read more]

Hi Mike

Sorry you have had to join us but a very big welcome to you (and your supporters). I´m sorry that I don´t know anything about carrying etc. but did just want you to know that I was diagnosed in 2005 at age 54 and after chemo and a stem cell transplant I am still horseriding and have just come in from painting the outside of the h…[Read more]

Hi
Thank you so much for taking the time to let us know. I´m not in that position yet as my first is still holding out but it had been worrying me about what it might be like when or if I have to have another.
Hope all goes well for you both.
Love Carol xx

Hi
Congratulations. I´m so very happy for you and it´s great to hear such lovely positive news.

I don´t have any experience of withdrawal but will keep my fingers crossed that you don´t have any!

Hope all continues as well as this and better!

Best wishes
Love Carol xxx

Welcome Alethea

So sorry that we have had to "meet" you like this and that you are having such a difficult time.
I do hope that things get a little bit easier for you soon. I think you will find this site very helpful and the people are very kind and understanding. Talking to other patients who understand the condition and the ups and downs…[Read more]

Hi Andy

Sorry your having such a poor time of it. Letes hope that your meeting goes well with Dr Jackson.

Just a suggestions but I bought a back support belt (only the cheap 6.99 version) from ebay which has helped me a great deal. It has little magnets for the small of your back but I´m really not sure what they are there for. Anyway, it…[Read more]

I just want to say a massive thank you to everyone who has responded to my thread, it's such a relief to know theirs other people who understand what I have gone through, and am currently going through. Thank you all for sharing your stories… some are so horrific, but all of your stories have given me hope and strength. It's so reassuring to…[Read more]

Hi Eve,

Thank you for getting back to me. I have posted in the under 50's section too. I hope your husbands treatment goes well.

Best Wishes
Judy

Hi Helen,

Thank you for getting back to me. I hope your treatment goes well for you.

Best Wishes
Judy

Hi Paul

Thanks so much for taking the time to reply when I know your feeling under the weather.

Sorry your feeling tired and missing some hair but one thing ALL my team said in St James´s was that they were always quite pleased to see these side effects and the more severe the better (especially the hair) as they found it happened when the…[Read more]

Hi Paul

Just hoping that things are going a little better and that your not feeling too rotten.

Thinking of you lots with fingers crossed for you both.

Best wishes

Love Carol xxx

Dear Siobhan
Thank you so much for making such a brave effort to come and tell us about your Mum. To say she will be greatly missed is such an understatement as you, better than anyone else will know.

I think you must be very much like your lovely Mum and I know for sure that she is very proud of you. Keep listening as I know she will keep…[Read more]

Hi Kay
Sorry for the long delay in reply but only just popped back on the website as we are staying in Spain for a couple of weeks to see if it helps the pain I have in joints and bones.

Glad to hear that slowing down is helping. I don´t have to go out to work now but I do look after quite a big house and two VERY big horses. My husband is…[Read more]

Hi Liz
So sorry that you have had the news that all of us who are post transplant dread getting . it´s back. I can only imagine what a blow this is to you both but you sound pretty practical and a great coper.
Hope the treatment goes well and that you have better news soon.
Best wishes to you both
Carol xxx

Hi Antoinette

I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.

I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.

If it helps, I was diagnosed with this rotten…[Read more]

Welcome Rosie
Wow! you sound as if you are a real seasoned campaigner – after going through so much I can understand how you might not want to go through another STC – not much fun I do agree.

Glad to hear your coping with everything in such a brave and positive way – you must have picked up lots of information and experience along the…[Read more]