Hi – hope the meds are helping with the bone pain. Regarding the tingling feet etc – I have had this for about a year since I have had all the Chemo – lots and lots including Velcade and Revlimid. I describe it as having an electric current though the soles of my feet and although irritating can´t say mine is too bad as the back and general…[Read more]

Chrissie, so very sorry for your terrible loss. I lost Michael to cancer (brain tumour he was 42) twenty years ago. That terrible grief does pass please do believe me and hang on. The best advice I was given was as follows: Concentrate on just breathing and eventually the rest will follow, and don´t on any account make any serious decisions…[Read more]

Hi Nicola

Glad to hear your dad is improving. You are a super daughter and he must be so proud of you. Please try and look after yourself too although I know it´s really hard when life is so difficult and busy.
Best Wishes
Carol

Hi
I have been away so please accept my apologies for the delay. Welcome to the site, although so sorry you have had this awful shock.
I have been on the Myeloma trial since last July although I was diagnosed in 2005 and managed without treatment until then.
I have had a range of treatments including Revlimid and the stem cell transplant and…[Read more]

Hi Mari
So sorry that you have had such an awful shock. I had a similar one a few years ago and then it went down again after a couple of months. At the time I personally put it down to the shock at the loss of my son in law in a road traffic accident (aged only 32 and Daddy to a little boy aged 5)but who knows with MM? – not sure even the…[Read more]

Hi Terry and welcome although I´m truly sorry that we are meeting here!

You really have been through it I´m afraid haven´t you? I was going to mention Revlimid (which seemed to work ok for me apart from the side effects and it brought my paraprotien level down prior to SCT but I have just read Scott talking about it to you. Might be worth as…[Read more]

Hi Ted
So glad to hear that you are continuing in fairly good health – long may it continue!
We live in Halifax and I am beginning to think that it´s going to rain forever here!

Take good care of yourself.
Love Carol xxxx

Please accept our sympathy and very best wishes at this very difficult time.
Carol Bradley

Hello Peter

Just wanted to say Welcome to you although I´m sorry we are all meeting like this.
You and you super wife sound to have worked out how to cope with this horrid illness really well and your good lady obviously takes very good care of you. What would we do without our lovely helpers? – be pretty miserable I think.

Best wishes
Carol xxxx

Hi Jet

Good for you – fantastic news!!!
Now all you have to do is get a little stronger day by day and not be too hard on yourself if you are a bit wobbly for a while.
So pleased for you.
Love Carol
xxx

Hi David
I like that – Vasbyte is so much quicker to say and repeat than "grit your teeth"

No, your right we´re not going to live forever but for a heck of a site longer than this myeloma intends arn´t we?!!!!

My husband,beloved horse Harry and his companion are leaving for Spain on Thursday and I will follow next week when they have a…[Read more]

Hi
[b][/b]Fantastic news!!![b][/b] So pleased for you both may it continue for a long, long time.
Thank you for letting us know – it´s a real boost.
Go away and enjoy your holiday you really have earned it!

Best Wishes

Love Carol
xxxx

Hi Amelie

Luckily my doctor is very kind and sympathetic – it´s just that after my being so poorly I think my itchy back comes rather low down in the order of things to worry about so I´m trying not to worry about it.
Hope things go well.
Love Carol xxx

Hi Bridget
Glad to hear your back up and running! Hope the morphine is helping with the pain although I know it must make you rather haaaaaazy!
They have given me oramorph to be used only at those times when the Tramadol just can´t calm the old back down but I haven´t been forced to use it thank goodness although I have come pretty c…[Read more]

Hi
MySuch a relief to hear there are others out there. Took my grandchildren shopping with me today as their teachers had closed the school for a training day. My four year old little grandson spent the first 10 minutes trying to negotiate how many items I could buy before we went to McDonalds and when I wouldnt play that game tried to negotiate…[Read more]

Hi Nadine and welcome
Hope this helps. I had my STC in Feb of this year and although I can´t say recovery was as quick as I would have liked I am now in remission so I can´t ask for more.
I do get very tired but on the other hand that could be because I look after three horses every day, do all the housework and cooking and shopping, laundry e…[Read more]

Hi Amelie
Sorry to reply so late but I have only just read this. I had my SCT in Feb of this year and yes, I am FED UP with my itchy back and my medical team see to think it´s to be accepted – just the result of the Melphalan and resulting very dry skin.
However, I´m going to investigate eosinophilic folliculitis further and see if I can get s…[Read more]

Hi Paul and welcome
I am on the Myeloma 11 trial with Revlimid. Hope this helps – I had my stem cell transplant in February and although I haven´t found recovery a swift process (I´m a horse rider and sailing kind of person so I´m sure you understand my lack of pacience!) my paraprotien level is now 00. Basically this means I am officially in…[Read more]